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RE: Kids w/ Classic Autism, PDD-NOS & Speech Delays

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Wreck-Gar
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13 Nov 2011, 7:53 pm

Washi wrote:
My son has been coming out with a lot of new stuff lately he's been saying "you STUPID" a lot (I think he got it from watching Charlie Brown) and "help me!" in stores which is embarrassing but lots of good stuff too. Tonight he walked up to his Dad and said "Excuse me Daddy, I want the phone". I've never heard him say "excuse me" or "I want" in proper context before. I had been prompting him to say "Mommy, may I have the black iphone please" but he actually made up his own sentence. He also surprised us by going into a sumo pose and making a Bruce Lee face too, that was very funny and so unexpected. I think he may have picked it up from a martial arts themed Scooby Doo movie he has, but I admit I don't watch everything he does so I'm not sure.


"I want (whatever)" is one of the few sentences my son uses. And we often have to remind him. Usually he just uses a single word to request something.

Also, lately when he wants something he says "Do you like (whatever it is he wants)?" *sigh*

He can answer questions like "What is it?" or "What color is it?" but he only does it when he feels like it.

I noticed that he has started to become more aware of what's around him lately. Yesterday on the way to the park, he looked into the air and said something like, "It's the sky. What color is it? It's blue."



blondeambition
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13 Nov 2011, 9:05 pm

Wreck-Gar, it sounds like he's making progress!

My older son's progress has always been much slower than I would like. I've also tried many products that haven't worked for him.

My younger son has learned everything except potty training quickly after getting on meds. (sigh). He still hasn't started pooping in the potty, and now he's started to wet his pants again after learning how to do that part in the potty. I have some ideas on how to address that--maybe some time in a daycare center for ASD where they do potty training--but resources are a little tight at the moment.

Anyway, I hope that the Visa for your wife is still coming along.


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Wreck-Gar
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13 Nov 2011, 9:46 pm

blondeambition wrote:
Wreck-Gar, it sounds like he's making progress!

My older son's progress has always been much slower than I would like. I've also tried many products that haven't worked for him.

My younger son has learned everything except potty training quickly after getting on meds. (sigh). He still hasn't started pooping in the potty, and now he's started to wet his pants again after learning how to do that part in the potty. I have some ideas on how to address that--maybe some time in a daycare center for ASD where they do potty training--but resources are a little tight at the moment.

Anyway, I hope that the Visa for your wife is still coming along.


Yeah he's coming along but progress is still much slower than we'd like. Most of what he says, while used appropriately, is still scripted from videos & songs.

We are hoping once he is in a fully English speaking environment he will improve more quickly. Unfortunately people in this country really don't speak much English. At his day care I think the teachers can understand some of what he says but they do not respond to him in English.

Visa should be fine, I just need a job now!



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14 Nov 2011, 4:07 pm

it can be hard to just be patient, but sometimes thats all we really have to do, especially when it comes to developing skills. my youngest didnt speak much until he was 4, not that he couldnt, he just chose not to. he said mama and dada before he was a year old, had a few other words before two, but he literally wouldnt use them. you ask him to say something and he would say no! at 3 1/2 he started preschool and still rarely spoke. now at 5y9m he is a little chatter box. we didnt have reciprocal conversations until this past year, tho, and they are still limited, but its coming.

we have really tried to have a relaxed and laid back attitude towards speech development. our youngest also had a severe articulation impairment which made his developing speech impossible to understand. he is our third child tho, and the third to be in speech therapy, so it really wasnt much of a concern for us. his oldest brother was ten times worse when it came to intelligibility and his speech is fine now, so in comparison, our youngest just didnt seem that bad.

sometimes i feel so much pressure to DO, to find treatments for my son. its hard to just step back, relax, and let him develop at his own pace.


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blondeambition
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14 Nov 2011, 4:35 pm

azurecrayon wrote:
it can be hard to just be patient, but sometimes thats all we really have to do, especially when it comes to developing skills. my youngest didnt speak much until he was 4, not that he couldnt, he just chose not to. he said mama and dada before he was a year old, had a few other words before two, but he literally wouldnt use them. you ask him to say something and he would say no! at 3 1/2 he started preschool and still rarely spoke. now at 5y9m he is a little chatter box. we didnt have reciprocal conversations until this past year, tho, and they are still limited, but its coming.

we have really tried to have a relaxed and laid back attitude towards speech development. our youngest also had a severe articulation impairment which made his developing speech impossible to understand. he is our third child tho, and the third to be in speech therapy, so it really wasnt much of a concern for us. his oldest brother was ten times worse when it came to intelligibility and his speech is fine now, so in comparison, our youngest just didnt seem that bad.

sometimes i feel so much pressure to DO, to find treatments for my son. its hard to just step back, relax, and let him develop at his own pace.


I wish that I could just relax and let my older one develop on his own, but he is too impaired to do it without help. Everytime I stop working on something or other with him, he stops making progress. He will regress if he goes long enough without using a skill. :( Thank goodness for technology and picture books so that he can review information easily. Hopefully get to the point of learning most of what he needs to know via computer, books, and video.

My younger son has much higher cognitive skills and learns much more easily. Now that his OCD is somewhat under control with meds, he is picking up more stuff and can probably learn just about anything on his own from this point forward, I think. (Whether he learns it before he starts kindergarten will be the main issue, I think, not whether he will learn a skill at all.)


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Wreck-Gar
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14 Nov 2011, 4:38 pm

azurecrayon wrote:
it can be hard to just be patient, but sometimes thats all we really have to do, especially when it comes to developing skills. my youngest didnt speak much until he was 4, not that he couldnt, he just chose not to. he said mama and dada before he was a year old, had a few other words before two, but he literally wouldnt use them. you ask him to say something and he would say no! at 3 1/2 he started preschool and still rarely spoke. now at 5y9m he is a little chatter box. we didnt have reciprocal conversations until this past year, tho, and they are still limited, but its coming.


The thing I am most worried about with my son is his receptive language - he doesn't seem to understand much of what is said to him.

And when he speaks, it's now often a jumble of his favorite words, nothing meaningful. Or a big long "Mmmmmmmmmmmmmmmmmmmmmm!" He is three and a half.

His first words were things like dinosaur and hexagon. He never did the mama/dada thing. He has a decent vocabulary but just won't use it to communicate.



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14 Nov 2011, 4:56 pm

http://www.freevideosforautistickids.co ... Links.html

Wreck-Gar, I don't know if you have seen the above link to speech materials from my free website.

http://www.freevideosforautistickids.com/Games.html

Some of the games (see above, especially Zoodles games for preschool), some of the ebooks links on the website, and Starfall.com (free reading website for preschool) might help with speech.

Good luck! You will probably be able to get materials more easily when you move back to the U. S.


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Washi
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14 Nov 2011, 5:57 pm

Wreck-Gar wrote:
The thing I am most worried about with my son is his receptive language - he doesn't seem to understand much of what is said to him.

And when he speaks, it's now often a jumble of his favorite words, nothing meaningful. Or a big long "Mmmmmmmmmmmmmmmmmmmmmm!" He is three and a half.

His first words were things like dinosaur and hexagon. He never did the mama/dada thing. He has a decent vocabulary but just won't use it to communicate.


Sounds like my son. I can get the Moms and Dads out of him now but sometimes he mixes us up. Letters, numbers, colors and shapes all came first. He says either "what's up?" or "you happen!" over and over like they have complicated meaning. And instead of "Mmmmmm!" mine has a gurgling bird sound he's always used. He can answer what something is if he's labeling things, but if I were to ask him his name he'd typically echo back, "what's your name?" or give bazaar answers like "Dr. Seuss" or a number.



Washi
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14 Nov 2011, 6:00 pm

And he also acts deaf sometimes, it doesn't matter if you shake his shoulder or torment him with a stuffed animal, if he doesn't feel like talking he'll completely shut you out - unless you've got something he'd really want like french fries. :)



Wreck-Gar
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14 Nov 2011, 7:54 pm

Washi wrote:
And he also acts deaf sometimes, it doesn't matter if you shake his shoulder or torment him with a stuffed animal, if he doesn't feel like talking he'll completely shut you out - unless you've got something he'd really want like french fries. :)


Yeah my son does this too. If I tap/shake his shoulder he will not turn his head. I think it's a joint attention thing.



Wreck-Gar
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14 Nov 2011, 7:56 pm

blondeambition wrote:
Some of the games (see above, especially Zoodles games for preschool), some of the ebooks links on the website, and Starfall.com (free reading website for preschool) might help with speech.

Good luck! You will probably be able to get materials more easily when you move back to the U. S.


Thanks. But you know he won't play games. We can't explain to him what is expected. If we take out a game he will just throw the pieces around or something like that.



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14 Nov 2011, 8:00 pm

Washi wrote:
Sounds like my son. I can get the Moms and Dads out of him now but sometimes he mixes us up. Letters, numbers, colors and shapes all came first. He says either "what's up?" or "you happen!" over and over like they have complicated meaning. And instead of "Mmmmmm!" mine has a gurgling bird sound he's always used. He can answer what something is if he's labeling things, but if I were to ask him his name he'd typically echo back, "what's your name?" or give bazaar answers like "Dr. Seuss" or a number.


My son learned "Hello, how are you?" "Nice to meet you," and "What's your name?" from an ESL video. He says them a lot, sometimes appropriately, but he will not answer the questions himself.

The "Mmmmmmm" thing, to me anyway, seems like verbal constipation...as if he wants to say something but cannot find the words or get them out. He might do "Mmmmmm" for a minute or so, then break down and start crying like a baby.

One cool thing, he spontaneously hugged me and said "I love you" the other day. First time ever to do that to Daddy!



Washi
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14 Nov 2011, 8:31 pm

Wreck-Gar wrote:
My son learned "Hello, how are you?" "Nice to meet you," and "What's your name?" from an ESL video. He says them a lot, sometimes appropriately, but he will not answer the questions himself.

The "Mmmmmmm" thing, to me anyway, seems like verbal constipation...as if he wants to say something but cannot find the words or get them out. He might do "Mmmmmm" for a minute or so, then break down and start crying like a baby.

One cool thing, he spontaneously hugged me and said "I love you" the other day. First time ever to do that to Daddy!


Ethan walks up to strangers now and says "what's your name?" but of course he never answers properly when they ask him his. He got it from me asking him all the time. Those hugs are the best.



Washi
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14 Nov 2011, 8:45 pm

Wreck-Gar wrote:
blondeambition wrote:
Some of the games (see above, especially Zoodles games for preschool), some of the ebooks links on the website, and Starfall.com (free reading website for preschool) might help with speech.

Good luck! You will probably be able to get materials more easily when you move back to the U. S.


Thanks. But you know he won't play games. We can't explain to him what is expected. If we take out a game he will just throw the pieces around or something like that.


Except for simple puzzles I can't engage my son in any games with pieces either, but he's doing great playing computer games - especially on the iphone, he likes the Wii too. The trouble is keeping him out of programs that aren't meant for him. I just deleted "Words with Friends" (a Scrabble type facebook game) because he challenged some person I don't know to about 20 games or more over the past week. He figured out how to put disks into the computer and Wii to start games too. He clicks through most of the yes/no menus as though he understands them (I'm 90% sure he can read that much). If I get up from my computer to do something and leave him unattended near it for a moment when I come back he'll have put in and started one of his own games....



Wreck-Gar
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14 Nov 2011, 8:56 pm

Washi wrote:
Wreck-Gar wrote:
blondeambition wrote:
Some of the games (see above, especially Zoodles games for preschool), some of the ebooks links on the website, and Starfall.com (free reading website for preschool) might help with speech.

Good luck! You will probably be able to get materials more easily when you move back to the U. S.


Thanks. But you know he won't play games. We can't explain to him what is expected. If we take out a game he will just throw the pieces around or something like that.


Except for simple puzzles I can't engage my son in any games with pieces either, but he's doing great playing computer games - especially on the iphone, he likes the Wii too. The trouble is keeping him out of programs that aren't meant for him. I just deleted "Words with Friends" (a Scrabble type facebook game) because he challenged some person I don't know to about 20 games or more over the past week. He figured out how to put disks into the computer and Wii to start games too. He clicks through most of the yes/no menus as though he understands them (I'm 90% sure he can read that much). If I get up from my computer to do something and leave him unattended near it for a moment when I come back he'll have put in and started one of his own games....


See this is the sort of thing my son cannot do at all. It is one reason we are very worried. I just don't think we could explain to him what he is supposed to do, including using the mouse.

However if you have some suggestions please let me know and I will try with him and see what happens.

I don't have an iPhone.



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14 Nov 2011, 9:39 pm

Wreck-Gar wrote:
blondeambition wrote:
Some of the games (see above, especially Zoodles games for preschool), some of the ebooks links on the website, and Starfall.com (free reading website for preschool) might help with speech.

Good luck! You will probably be able to get materials more easily when you move back to the U. S.


Thanks. But you know he won't play games. We can't explain to him what is expected. If we take out a game he will just throw the pieces around or something like that.


I wanted to clarify that the links on my website are to computer games and picture books that get read aloud to the child online. Starfall.com is an online reading program. These things mainly use a mouse and arrow keys.

My older son took a long time to learn to play board games correctly. First he had to get the speech thing down, then following directions, then waiting his turn, and then avoiding getting upset if he lost.

However, both kiddos have always loved computer games and were very eager to figure out how to use the mouse. I think that at one point I put a sticker on the correct part of the mouse for my younger son to push, but getting them to use the computer was really pretty easy because they were so motivated.


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