We've been mostly fortunate with the schools my son has been in, but I know the experience varies widely. I think it is worth the battle when you have a school that you believe is capable and willing, but beaurocratic or blind in a few spots. When you have a school that just wants to bury its head in the sand about the whole thing, however, I'm not sure you have TIME to battle. As parents, our first duty is to our kids, and sometimes the damage can rack up too fast while we're trying to get someone else to do the right thing, so the only answer is to pull out and make it happen ourselves. It doesn't pave the road for the next child, but sometimes the scale tips that way and you have no choice. Many AS kids are being homeschooled as a result, and that is working for the kids, and I am very glad for it.
If you have the time and energy to go to battle, please do so, but don't put all your eggs in that basket. As someone dedicated to working for and through the school system, I don't like saying that, but I am also quite pragmatic. If your son is happy homeschooling, make that as enriching as possible and assume its the road you'll probably finish high school on. I really, really wish we could make all the schools positive learning environments for our kids, but I don't know how to get there while also serving our kid's more immediate needs.
Sorry for rambling, lol. You've hit on a difficult issue. I wish you all the luck in the world tryng to write the positive plan, but this is a battle I haven't had to fight - yet.
Do you need ideas for what should be in the plan? Would you like a list of some of the things that we have in our kid's IEP's?
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Mom to an amazing young adult AS son, plus an also amazing non-AS daughter. Most likely part of the "Broader Autism Phenotype" (some traits).