Page 1 of 1 [ 16 posts ] 

BreKmom
Butterfly
Butterfly

User avatar

Joined: 8 Jun 2010
Gender: Female
Posts: 10
Location: Tennessee

09 Jun 2010, 1:04 pm

I should start with hello - since this is my first real post. My daughter is going to turn 13 at the end of June and things are getting quite difficult. I would love to ask the million questions in my mind - but I will start with just one.

My daughter loves to plan a party - loves the thought of the party - is excited to leave the house to go to the party (ok so I guess you get that point), but then she HATES being at the party. The chaos and multitudes of people (some she knows and some she does not) seems to really upset her. In the beginning of May we went to my graduation party (college) and she did fine because she kinda took off with one friend. Later that weekend we went to a little girls b-day (she was turning 6 which is my sons age) and she was miserable. I thought she was bored at first. People attempted to speak to her, but of course if she has nothing to say she will not make small talk. There was maybe 20 people there. She excused herself to the bathroom and I realized it was taking tooo long. I went to check on her and she was in a corner crying. I guess the question is: "How do I help her cope with meltdowns when we gather for public events?" She really wants to attend, but never really seems to enjoy it.



Happynolucky
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 16 Jun 2008
Age: 37
Gender: Male
Posts: 26

09 Jun 2010, 1:22 pm

I always seem to do better in a 1 on 1 setting, parties are nice and fine as long as I have my social guide there heh(I usually have one really good friend who helps me cope with the world/helps the world cope with me) and they can interact with everyone while I sit by them and listen and interject as needed, but the focus is not on me so I dont get as awkward. It pretty much makes it so that I dont have to talk to anyone, I just get to listen and say the funny jokes in my head. Where my buddies do the actual interaction.

Ps Love the quistis avatar.



Willard
Veteran
Veteran

User avatar

Joined: 23 Mar 2008
Age: 65
Gender: Male
Posts: 5,647

09 Jun 2010, 1:30 pm

Happynolucky wrote:
I always seem to do better in a 1 on 1 setting, parties are nice and fine as long as I have my social guide there heh(I usually have one really good friend who helps me cope with the world/helps the world cope with me) and they can interact with everyone while I sit by them and listen and interject as needed, but the focus is not on me so I dont get as awkward. It pretty much makes it so that I dont have to talk to anyone, I just get to listen and say the funny jokes in my head. Where my buddies do the actual interaction.

Ps Love the quistis avatar.



Agreed. I am hopelessly lost in a gathering on my own, but function okay with a liaison, who can run interference for me and allow me the luxury of interacting only when I feel comfortable participating. Its a night-and-day difference as far as making the situation navigable rather than overwhelming. That said, group encounters still wring me dry psychologically and emotionally, and recuperating after requires hours of solitude.



Last edited by Willard on 09 Jun 2010, 1:32 pm, edited 1 time in total.

BreKmom
Butterfly
Butterfly

User avatar

Joined: 8 Jun 2010
Gender: Female
Posts: 10
Location: Tennessee

09 Jun 2010, 1:31 pm

I wish she had that "one friend" but she has not really gotten there yet. I always say all she needs is one great friend who loves her unconditionally. I was a ff freak in my early twenties and still like the game - hence the avatar lol. But yes, like you said the day when she did have that one girl she did OK I never really though of it the way you just explained it. This is a girl I am trying to bring her around more often. This girl is 9 though and she is 13. She just seems to do better with children that are around 9ish. She is not immature - she is just unconcerned with the insignificant things that are soooo important to girls her age. She likes animals always and now she has been into Percy Jackson - so she equates every life experience with PJ. This doesn't go over well socially. She also freaks with sports so that was a BAD avenue I attempted to push her down for socialization. Most of my hs friends came from cheerleeding so I thought sports were a magic wand.



Tracker
Veteran
Veteran

User avatar

Joined: 16 Jun 2008
Age: 38
Gender: Male
Posts: 933
Location: Behind your mineral line

09 Jun 2010, 1:34 pm

You could try altering the party set up. If 30 person parties dont work out, then try making smaller parties with only a few friends.



PenguinMom
Deinonychus
Deinonychus

User avatar

Joined: 30 Oct 2009
Age: 47
Gender: Female
Posts: 322

09 Jun 2010, 2:03 pm

Some ideas,

1) Work on a plan before you go. "If things are too much then child will ..."
2) Work out code words or signals so she can let you know how she feels privatly in public.
3) Try to arrange for her to play with a small group of kids. Maybe get 3 or so girls she knows involved in a crafts activity.
4) See if you can figure out before hand which of her friends or acquiantances will be going and work out a plan with the other moms. Meltdowns are not uncommon, so they may be very glad to work with you.

Good luck



BreKmom
Butterfly
Butterfly

User avatar

Joined: 8 Jun 2010
Gender: Female
Posts: 10
Location: Tennessee

09 Jun 2010, 2:06 pm

I like that plan. I am so not structured and I know that is one issue that I need to work on because she lives for schedules. I am too spontaneous for her. Thank you for the party plan idea!



DW_a_mom
Veteran
Veteran

User avatar

Joined: 22 Feb 2008
Gender: Female
Posts: 13,689
Location: Northern California

09 Jun 2010, 2:21 pm

Way back when some of our moms with AS were talking about school functions, and the stress of them, one mentioned how she learned to go with a camera in hand. How the job of being the photographer helped her deal with it all, and gave her a defined way to interact. As I read your post, I thought about discussion, and how doing something similar might help your daughter.

My son is similar, in being very drawn to social situations, but having trouble with the actual situation. Defining a role beforehand definitely helps him. Whether it be the map guy at a theme park, the photographer at a parade, or the equipment guy on a camp out, it is the knowing what his place is that seems to make a big difference. Wandering around and trying to figure out how to enjoy themselves is really really difficult for our kids. But walking in with a job to do - that works.


_________________
Mom to an amazing young adult AS son, plus an also amazing non-AS daughter. Most likely part of the "Broader Autism Phenotype" (some traits).


BreKmom
Butterfly
Butterfly

User avatar

Joined: 8 Jun 2010
Gender: Female
Posts: 10
Location: Tennessee

09 Jun 2010, 2:29 pm

I like that plan. I am so not structured and I know that is one issue that I need to work on because she lives for schedules. I am too spontaneous for her. Thank you for the party plan idea!



redwulf25_ci
Toucan
Toucan

User avatar

Joined: 13 Feb 2010
Age: 48
Gender: Male
Posts: 263
Location: Michigan

09 Jun 2010, 3:12 pm

When I find a wedding reception or something like that is overloading me with people I don't know and loud music I go outside for a bit to recover and comeback when I'm feeling better. Maybe something similar would work for her and parties.



BreKmom
Butterfly
Butterfly

User avatar

Joined: 8 Jun 2010
Gender: Female
Posts: 10
Location: Tennessee

09 Jun 2010, 3:21 pm

I think she needs to really understand what bothers her. She thinks she was on the bathroom floor in a ball crying because she was bored. I will talk to her about stepping outside that may help. I bought her "Freaks, Geeks and Aspergers syndrome" and she loved that book I think she is beginning to try out some of what that boy said. Luke Jackson wrote it and he is a 13 yr old boy with Aspergers. - kinda neat.



redwulf25_ci
Toucan
Toucan

User avatar

Joined: 13 Feb 2010
Age: 48
Gender: Male
Posts: 263
Location: Michigan

09 Jun 2010, 3:54 pm

BreKmom wrote:
I think she needs to really understand what bothers her. She thinks she was on the bathroom floor in a ball crying because she was bored.


I wouldn't necessarily discount that either. Especially if she's forgoing something that's a special interest of hers to be at the party (a favorite show perhaps). I react very badly to boredom.



BreKmom
Butterfly
Butterfly

User avatar

Joined: 8 Jun 2010
Gender: Female
Posts: 10
Location: Tennessee

09 Jun 2010, 4:22 pm

Really? That is helpful. She blames a lot of her meltdowns on boredom. She also DOES not react kindly to losing a privilege she really wanted i.e. a show, video game time, pool time



DW_a_mom
Veteran
Veteran

User avatar

Joined: 22 Feb 2008
Gender: Female
Posts: 13,689
Location: Northern California

09 Jun 2010, 7:34 pm

BreKmom wrote:
Really? That is helpful. She blames a lot of her meltdowns on boredom. She also DOES not react kindly to losing a privilege she really wanted i.e. a show, video game time, pool time


With my AS son, "bored" often means "there is something I want to do right now but for whatever reason I cannot do it right now." Which creates frustration, and the frustration creates the tendency to melt down.


_________________
Mom to an amazing young adult AS son, plus an also amazing non-AS daughter. Most likely part of the "Broader Autism Phenotype" (some traits).


Happynolucky
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 16 Jun 2008
Age: 37
Gender: Male
Posts: 26

10 Jun 2010, 9:55 am

The close friends will come when she has one on one settings with an open minded person, I pretty much not let a person know who I am when there are a bunch of people that are not just part of the scenery. I just have to put up so many "guards" (I put it this way because they are not the typical guards that people have to defend themselves against others they are guards on my noise senses/ my very short fuse) and with that many guards up I don't get to express myself at all since it is holding back a tantrum or worse.

The fact that she was balled up crying on the floor and said she was bored could mean it was not a sensory overload, it could have meant that she was so excited to go to the party and then at the party she was alone in a sea of people. My biggest source of depression was seeing everyone enjoying themselves at a social gathering and not understanding why I wasn't getting that same joy. Heh its when I see this that I sometimes wish I had LFA or was NT, seeing all my friends that look up to me in certain aspects growing as human beings while I seemed to just miss out on every type of relationship or they were invited somewhere by people we both knew and I wasn't/ being the eternal third wheel. It was not so much each individual time, but when it becomes a recurring theme and you don't know why it creates a lot of sadness.



OzAspi
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

User avatar

Joined: 8 Jun 2010
Age: 61
Gender: Male
Posts: 74

12 Jun 2010, 3:42 am

DW_a_mom wrote:
Way back when some of our moms with AS were talking about school functions, and the stress of them, one mentioned how she learned to go with a camera in hand. How the job of being the photographer helped her deal with it all, and gave her a defined way to interact. As I read your post, I thought about discussion, and how doing something similar might help your daughter.

My son is similar, in being very drawn to social situations, but having trouble with the actual situation. Defining a role beforehand definitely helps him. Whether it be the map guy at a theme park, the photographer at a parade, or the equipment guy on a camp out, it is the knowing what his place is that seems to make a big difference. Wandering around and trying to figure out how to enjoy themselves is really really difficult for our kids. But walking in with a job to do - that works.


I couldn't agree more. I attend a church and there is no way I could go unless I played guitar in the band and help to setup and pack up. It gives me an excuse to be doing something (and something I love by the way) and not have to interact. When I was younger I would never go to a party or a club unless there was a band playing and I was in that band.
Your daughter seems like a very industrious person and having something to do will give her a great sense of accomplishment and pride. I can only seeing it helping her.