Going through the process and looking for help

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glynny48
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13 Mar 2011, 11:24 am

Hello everyoone! I am a mother of a 7yr old that is going through the process of being tested for Aspergers and Autism. We just completed his CARS and it said there was a 78% chance he will fall somewhere on the spectrum. He is really struggling at school and this worries me. Also at home we have issues of meltdowns when something doesn't got the way he thinks it should or doesn't get to do something??? Any ideas or advice.... I am really looking for help and a supporting ear that doesn't judge my parenting skills at the same time! :(



Bombaloo
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13 Mar 2011, 12:32 pm

Welcome to WP! This site is chock full of incredible information so for starters I suggest you poke around a bunch. One of the very knowledgeable folks who posts here often, Tracker, has written a great book and posted it at http://www.asdstuff.com/grats.html

I think many of us suffer from anxiety that we are bad parents because what we are doing with our kids just doesn't seem to be working. At least we may feel this way until we learn that our kids need a different way of parenting that no one ever explained to us might be part of the package of being a parent. The great news is there are many resources for us to learn about ways that will work better. A friend of mine's child (4 yo boy) isn't diagnosed yet but is having some pronounced difficulties especially with self-confidence and anxiety. She tearfully confided in me that when she hears him say things like "I'm a loser, I'm no good, I can't do anything right" her heart just breaks and she fears that there is something she is doing that is causing him to feel this way. She has always tried to be supportive and has tried to build his confidence, not tear it down. I told her that her methods would work perfectly well with an NT child such as my older son but that its very likely that her son is on the spectrum and that his brain is probably wired a bit differently than many. The cause and effect cycle of what you as a parent say and do and what our children on the spectrum hear and perceive is completely different than it is with mostparents and NT kids. My friend is just starting down the road of having her son evaluated and is learning as much as she can about ways she can help her son. When I talked to her yesterday, I could tell she was already feeling better because she had caught a glimpse of a better road ahead.

I guess I relate this story because I know that it hurts to be a parent when you see that even though you have the best of intentions, your child is not thriving mentally, physically and/or emotionally. I think it is common for us to blame ourselves and feel very lost and afraid that other people are going to judge us harshly. In my experience, once I tossed out almost everything I thought I knew about parenting, things started to get better for my son and our whole family.



glynny48
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13 Mar 2011, 12:55 pm

I can so relate with your friend my son has those issues too. Self confidence and anxiety is a major issue for him too. I am already feeling better by know that their are others out their that might be able to help me. I am a special education teacher so I have some education in it but I am learning I know not near enough... because i have never had a student on the spectrum. So the balancing act between teacher, advocate and parent has been very hard for me!



tskin1
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13 Mar 2011, 1:05 pm

mine has this issue too .. your not alone :) breaks my heart when he calls himself stupid.. i just have to remind him he's really quite intelligent and it has nothing to do with smarts



glynny48
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13 Mar 2011, 1:25 pm

Have you found anything that eases his fears???? I find some but then they stop working and I am left out of ideas! :( So hard to watch at the age of 7 already!



tskin1
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13 Mar 2011, 1:31 pm

well i just tell him that everyone has things they're good at and some great at and some they struggle with. that he isn't stupid how many kids does he know who can tell you everything about the titanic, or take apart a vehicle and put it back together , or fix a broken intendo. That yes this is hard but that it always starts hard and only with practice gets better ... there isn't much else i've found but he seems happy afterwords intil the next thing that's hard comes up then it's a repeat of the same again.



glynny48
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13 Mar 2011, 3:36 pm

That is what we do to! May I ask how old your kiddo is???



tskin1
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13 Mar 2011, 5:16 pm

he is 10:) yours?