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aurea
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03 Apr 2011, 4:38 pm

As some of you may recall, I have been wanting a dx for my 21 year old son for some time now. We did see one psychologist who in my opinion was a complete idiot. I have been writing down as many things as I can remember about my son Chris, his childhood up until now. I have ended up with pages and pages of stuff. I got frustrated with it all and just quickly jotted down random things off the top of my head, some maybe applicable some not so much. I plan on giving all this info and more to the new psychologist we are due to see tomorrow. I am pasting some of it hear to see what you all think. Cheers aurea xoxox


Here Goes;

From the time I can remember Chris has always put everything in his mouth, usually without thinking, ie, the remote control, the phone, straws etc.
He plays with my hair clips, he clicks them. He is usually fiddling with something or chewing on something.
He likes to pull things apart if given half the chance or you tube "how things work".
He switches from in your face touchy feely to stand offish.
He hates his feet being touched, he is extremely difficult to wake up, but if his feet are touched it's instant grumpy awake Chris.
He gets an idea in his head and he will nag and nag and nag until he either gets it or moves on to something else.
As a younger kid he would scream uncontrolably if he had a hair on his hand or if a fly flew near him.
He went threw an extreme hand washing ocd type fetish, things were so bad I had to tell him he wasn't allowed to wash his hands
without permisson any more. He washed so much they were getting to the stage they were starting to bleed and crack.
He's always had a bit of a germ issue. He would flat out refuse to play with Adrian or go near anyone that had been to the bathroom
unless he knew they had washed their hands.
He was affectionate with house hold members but never with anyone out side of the house. One of my sisters would try to bribe him for hugs
by offering him money.
If I had vistors over he would always stay with the adults and never the children. He seamed to get along well with adults, but acted scared
of the kids.
He is a hoarder, always has been. I can't throw any thing away when Chris is around because he has been known to go threw bins and get
things back out. Or throw massive screaming fits.
Chris refused to wipe his own bottom up until about grade 4, because that was disgusting.
He slept in my room until aged 9, I tried to get him in his own room but he was terrified and wouldn't stay there.
He wet the bed up until mid high school.
He used to sleep walk from time to time.
He would occasionaly make up strange words or replace words with his own
He was happy just playing by himself.
He would play with our dog, he would tie the dog up somewhere either in the house or the yard and then "forget" he'd left him there.
I would always have to explain my own feelings and facial expressions to him, eg; Chris I'm cross, Chris I'm sad, Chris I'm tired.
He is extremly un organised and messy with every thing.
He is extremly shy until he trusts someone. It's usually me that has to intiate first few meetings with new people before he will even
consider attending appointments on his own.
During many family social events, Chris will blurt out some random off topic converstaion or irrelevant bit of information.
I have memories of saying often to Chris "the whole world does not revolve around Chris."
He had some clothing issues; Socks were worn in side out because the seam would bother him, all tags were removed, they bothered him.
Sunscrean would make his skin feel like it was burning.
He would complain of feeling sick after eating certain foods, it was so bad for a while that there was only a limited few foods he would eat
He is lactoss intolerant
He complains even now about some smells but not others.
Lights bother him sometimes.
Some noises bother him
He is a picky eater
He has complained about hearing noises, that I can't hear. Humming sounds. Lights, the fridge etc etc..
I've had his ears and hearing checked several times, because he appears not to hear me or to respond when spoken to. His hearing is fine.
He has to be reminded and directed to buy things for birthdays, mothers day xmas etc And unless given specific instructions will buy inappropriate
items or things that interest him
He appears to have a really bad memory, but can remember the things he is interested in.
He gets distracted easily.
He has extremely bad sleep problems, and is a nightmare to wake up.
He avoids all social contact if he can. He has even told me he dislikes most people.
He gets very stressed with any change, unless it's one that he has intiated.
It can be virtually impossible to get him to try anything new.
He often has to be told to shower, usually always told to shampoo his hair (I still do this for him sometimes) he is always told to shave.
He will annoy his brother to the point his brother is screaming or crying, then Chris says "but I didn't know, I was only playing"
He is extremely honest, he will try to lie sometimes but his face always gives him away.
He often looks cranky when he says he's not.
He will often laugh, when he really shouldn't
He spends most of his days now in a darkened room watching dvd's or on his pc or asleep.
Apart from school he has always done what he was told, never been one for breaking the rules or pushing boundries.
He appears very moody more and more often.
He also appears from time to time to be very depressed.
He is getting harder and harder to motivate into anything.
He doesn't fill out any forms for himself, he tells me he doesn't understand them.
He hates reading anything or writing anything.
He wont attend appointments without me because he doesn't know those people and he gets confused.
He believed in santa claus and the easter bunny, right up until approx year 8 at high school. I sat him down and told him the trueth (which
I honestly thought he knew any way) He was devastaed, and angry with me for lying to him.
It took almost my whole pregancy with his younger brother for Chris to accept the idea of a new baby. He made statements like
"I don't want it" "give it back" "get rid of it" "you wrecked my life" Chris was 8 years old at the time.


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Mum of 2 fantastic boys. oldest 21 yrs= newly dx'ed ASD
youngest 12yrs =dx'ed ASD, ADHD,OCD,GAD and tourettes.


smithie
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04 Apr 2011, 2:30 am

Wow, that is some list, and I can only imagine how hard it was to write. It's difficult when we see our kids 'faults', for lack of a better word, laid out in front of us. So many of those things describe my daughter to a tee, and I'm sure other parents will find similarities. I think this will be excellent to present to the psych you are seeing and good luck :)


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DW_a_mom
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04 Apr 2011, 3:28 pm

I think it's a good list. I hope you make better progress with the new psychologist!

I think the thing is ... even if the expert tells you it isn't AS, he needs to tell you something that MAKES SENSE to you. If they come up with something different that is right ... well, you might rebel a little at first, but the more you think about it and research it, the more you'll know it really is right. We may not know all the possible clinical definitions, but we know our kids.


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aurea
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04 Apr 2011, 3:29 pm

Thank you for responding. I started to think no one ever would.

It's strange writing every thing down and then reading back threw it even I think OMG, I re read it all so many times because it looks bad, but no every thing is true and needs to stay. I actually have written more this is just the quick list.

I also want the psych to know, I wouldn't have swapped kids with anyone ever. For all Chris's not so typical behaviors he could be the sweetest, kindest most loyal child a mum could ever want. I also never really got any of the rebellious teenage behavior, because that would be breaking the rules.


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Mum of 2 fantastic boys. oldest 21 yrs= newly dx'ed ASD
youngest 12yrs =dx'ed ASD, ADHD,OCD,GAD and tourettes.


luckymommy
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04 Apr 2011, 3:58 pm

I'm really glad you got a chance to post this. Sometimes, there's something cathartic about posting something online...especially in a place of people that understand. It is absolutely crucial to get a good psychologist and I'm sure your detailed notes are going to be extremely valuable. There are many things that I saw on your list that are true about my son as well. And, like you, I love him to pieces and he is a sweet, pure angel of a person.



aurea
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05 Apr 2011, 2:46 pm

Up-date.

We had our first session with the new psychologist. He wanted me present for the first one, so he could gather all the background and family history. He also wanted my input and observations. The 1hr session actually became closer to 2hrs, but he only charged for the one.

He seamed to understand why Chris did and didn't do some things, and Chris was fairly comfortable with him. This psychologist has a couple of kids on the mild side of the spectrum himself. Yay I'm so excited, I may finally get an answer or at the very least feel confident in ruling asd out (I seriously don't think so though)


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Mum of 2 fantastic boys. oldest 21 yrs= newly dx'ed ASD
youngest 12yrs =dx'ed ASD, ADHD,OCD,GAD and tourettes.


smithie
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05 Apr 2011, 4:13 pm

That sounds very positive :D I'm glad to hear that the session went well, and that Chris was comfortable with him. Let's hope this will be a beginning in getting the correct dx and support for him, to enable both of you to move forward in life. Please keep us posted.


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