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liloleme
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25 Feb 2012, 3:12 pm

Since Maddy has been having such a hard time I have been focusing on her but my husband and I realized we really need to pay attention to the great things my son has been doing lately. We sat him down and told him how proud we were of him because his therapist told us that there is a boy who has play time with him in therapy and he is very quiet and as Luc says (sometimes hes in his own place)....I love the way he words things sometimes. This little boy is non verbal and also prone to wandering off. My son tends to be the keeper of rules even if they are his own rules :lol: but with this little boy he seems to be more of a protector than trying to enforce rules on him. Obviously Luc is very tuned into this boy and whenever he starts to wander off Luc will hold his hand. We have been told that Luc is one of the few people who can just grab this boy and he typically will not hold hands.
Also there is another little boy who is in his school who Luc calls annoying (the truth is they are too much alike but they chose not to see that in each other). A few weeks ago one of the other classes were selling candy and this boy didnt have any money so Luc used his own money to buy him a candy bar.
His teacher tells us that Luc is very helpful with the other kids. I think because of his social training and the fact that some of the kids have had little to no therapy, Luc knows the right things to say and do sometimes.
I do worry about his stress and anxiety. When we lost my older son in August Luc cried for about an hour and he refuses to talk about his brother most of the time and we are not EVER allowed to say anything about death. He is very worried about me going to the hospital so much, I think he worries Im going to die. So I keep assuring him that I am doing better and the doctors are helping me.
Im just so proud of him that he is being so nice and helpful to the other kids. He does not always like us giving him praise, he is uncomfortable with it, I am too but he was ok and happy that we are proud of him and it was obvious that we were not paying enough attention to him.
Its hard when you have more than one on the spectrum and then Im sick and my daughter in Arizona is sick.....its hard to stay focused sometimes.
Anyway, thats my bragging ;).



Ria1989
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25 Feb 2012, 7:49 pm

That is something to be really proud of. :)[/i]


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aann
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26 Feb 2012, 6:39 am

liloleme, you are amazing! We lose our focus but we turn back. You are doing more than great. Hang in there!



angelgarden
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26 Feb 2012, 6:54 am

That's awesome. Sounds like he is being a super sweet kid. And trying to reach out in a very understanding way. I'd be proud too!



PenguinMom
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26 Feb 2012, 10:42 am

Good for you both, Liloleme!

It's nice to read something positive from you. You and he have both earned serious congratulations.

Out of curiosity, how supportive is the French school system in getting your kids the supports they need?


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26 Feb 2012, 12:45 pm

Congratulations! I know what you mean about trying to balance the needs of more than one.


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liloleme
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26 Feb 2012, 1:32 pm

PenguinMom, they are slow at getting things set up but my kids have a great therapy center. Unfortunately the public school system is at a loss but then again many in the US are as well. We had issues in the US as well with the bullying as we did at this public school last year and I tried taking him out of school and homeschooling but with his dyslexia I could not teach him to read and then I was in so much pain I could hardly get up. My daughter helped but she had to work as well.
My sons new teacher at the specialized school said he was very stressed the first week so she knew that he had been bullied but she said he started to relax and now he loves it there. Cant wait to get Maddy in there! The therapy center SESSAD has been very good....it took a LOOOONNNNNGGGG time to get in and then they seemed to take forever assessing my kids but they were very thorough and they even have addressed Maddy's low muscle tone that they refused to address in the US and she is getting a big kid stroller and Physical Therapy that her OT in California told me she desperately needed but the Regional Center told me they would not cover PT because all OT's said that autistic kids have low muscle tone and they did not observe that. I think they simply did not have the money....even her OT was paid by my insurance because they refused her that as well even though she was diagnosed as non verbal and severe. She did get awesome in home therapy with the best aides and she loved all of them....ok, maybe there were one or two that didnt work out so well but shes just always been so happy.
Right now it just seems to be one meltdown after another and its very difficult because she used to be such a happy little girl even when she was non verbal (she had meltdowns but not 10 times a day). She is very upset, my husband is going in tomorrow to try to find out what is going on and to set up an emergency appointment with the school and SESSAD. I blamed my illness at first and that could still be part of it but not all....because she is saying she HATES school....how can she go from crying when she cant go to school because she is sick to HATING it?
I certainly get a lot of help and great doctors and my diagnosis of Aspergers was approved the week before last so I am double handicapped now along with my bone disease.

Just had to edit real quick....I had to go put Maddy in the bathtub because she is freaking out while my poor husband is trying help my son with his reading and bending over the bathtub is not easy for me....heck walking is a challenge for me.....anyway I managed to get her hair done....go me. Wanted to thank you all for your kind words :)!