Marcia wrote:
The questions in relation to your child "controlling" your life are ambiguous, and difficult to answer. They are worded in such a way that they seem to imply a deliberate attempt, on the part of the child, to exert control. But then, you could also be trying to determine to what extent, if any, the parent(s) have had to make changes to accommodate the focus child.
For example, there have been times when I have had to arrange my life around my son's various appointments with professionals, go for hospital appointments etc. To that extent my life has been "controlled" by him, but I wouldn't express it like that. His having AS has meant that he has been more involved with different health professionals than the average child, but that's just life really.
Still going through it, but have to say I am struggling a bit with the way the questions are worded.
Thanks for your comments Marcia. This is the problem with closed response questions - lots of information can be missed, like the distinction between feeling controlled by your child and being more involved in their life, like you mentioned. The questions are part of validated questionnaires, so we can't alter them in anyway, but we can definitely make comments in the discussion section of our reports related to their adequacy. Thanks also for your observations about the the direction of the scale points - we will take that into consideration as well.
Andrew