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findingaplace
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28 Oct 2014, 11:29 am

My son has an official medical testing facility diagnosis of ASD. The school wants to put him in a social skills class to help him with that area but says he needs a diagnosis from them, not his official one. I'm worried they will try to say he doesn't need help because he is smart and makes limited eye contact. He does much better in the structured school environment and sometimes (depending on the person/tone/etc.) with strangers. Does anyone know if they do their own testing can they just ignore the diagnosis if they come up with something else? Do you know what the testing entails (we've been through two already!). Also, they mentioned ADHD in one instance and I know he isn't (his doctors even said as much) and don't want them trying to say that he is so they can medicate him or something. I was told only an official facility could dx ASD so why is the school saying they can? Thanks for any help.



Last edited by findingaplace on 28 Oct 2014, 3:36 pm, edited 1 time in total.

DW_a_mom
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28 Oct 2014, 12:10 pm

Even though we have a school diagnosis and not a medical one that we have relied on all these years, as the school itself told us, ASD is a MEDICAL diagnosis and, in theory, schools are not qualified to definitively determine it. I know some schools are doing what you've said, requiring their own, but that seems ridiculous, really, given what our school told us. I don't see how they can make that requirement.


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AspieUtah
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28 Oct 2014, 12:16 pm

If I were you, I would telephone the diagnostician who diagnosed your son. Ask that person what your state laws are about who is authorized to diagnose ASDs for the sake of curriculum supports. I would also make a similar call to your state Board of Education and ask to speak with a staff attorney.

Every state's laws are different, and yours might provide that a diagnosis must be performed by an educational staffer, not a medical professional (though I doubt it). Cooperate with both your diagnostician and the Board of Education attorneys to achieve allowing your son's current medical diagnosis to be their accepted diagnosis. Point out the stress it would cause him to complete a new assessment and the expense to you or them to do so. Unless your state laws require them to do another assessment, they will likely agree that your current diagnosis is acceptable.

Good luck.


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Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)


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28 Oct 2014, 12:48 pm

It could just be that the school sees an assessment as an opportunity to spend some one-on-one time observing him and figuring out how best to help him. Staff has to get paid, and for that they have to be doing something "official" like an assessment.



AspieUtah
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28 Oct 2014, 1:16 pm

YippySkippy wrote:
It could just be that the school sees an assessment as an opportunity to spend some one-on-one time observing him and figuring out how best to help him. Staff has to get paid, and for that they have to be doing something "official" like an assessment.

That is what I am afraid of. If true, their requirement fails to help their student. It becomes unnecessary and academic to perform a reassesment for the sake of paying somebody a fee.


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Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)


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28 Oct 2014, 1:31 pm

Quote:
That is what I am afraid of. If true, their requirement fails to help their student. It becomes unnecessary and academic to perform a reassesment for the sake of paying somebody a fee.


On the contrary. Giving the staff a chance to get to know him better isn't unnecessary. Calling their observations an "assessment" just keeps the number crunchers happy. (If indeed that's what's going on here)



asdfor3
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28 Oct 2014, 1:58 pm

My daughter and I just went through the same thing you are right now. First off the assessment the school gives is just for there records it DOES NOT overwrite a professional diagnoses. The assessment the school does shows if she had any trouble academically or was in need of OT or speech therapy. They cared little for social skills or her inability to understand how to make and keep a friend to play with at recess. So my daughters is still autistic but doesn't require any support academically there for no extra help.
This is where the school system is lacking for our kids. My daughter at age 5 is reading, writing, and doing math at a 4th grade level (at least) but she can't carry on a conversation with a peer, or learn to make or keep a peer friend to play with at recess. My daughter wont learn from watching others interact and play like her peers will, its sad.



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28 Oct 2014, 2:00 pm

They do have to evaluate even if just a review of records prior to classifying a child through CSE. Are they reassessing for ASD or doing s psychoeducational eval? The psychoeducational eval of some sort is a requirement before the CSE can classify and provide services.



findingaplace
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28 Oct 2014, 3:34 pm

Waterfalls wrote:
They do have to evaluate even if just a review of records prior to classifying a child through CSE. Are they reassessing for ASD or doing s psychoeducational eval? The psychoeducational eval of some sort is a requirement before the CSE can classify and provide services.


Per the teacher, because they haven't worked with him yet (not sure what they mean there, he is in class and small accommodations have already been made), he doesn't qualify for the class unless they do their own assessment for ASD. This just seems off to me. I am purely communicating through the teacher too at this point and the social worker or any other staff has not contacted me at all. I'm sory, I don't know what CSE stands for.



findingaplace
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28 Oct 2014, 3:47 pm

asdfor3 wrote:
My daughter and I just went through the same thing you are right now. First off the assessment the school gives is just for there records it DOES NOT overwrite a professional diagnoses. The assessment the school does shows if she had any trouble academically or was in need of OT or speech therapy. They cared little for social skills or her inability to understand how to make and keep a friend to play with at recess. So my daughters is still autistic but doesn't require any support academically there for no extra help.
This is where the school system is lacking for our kids. My daughter at age 5 is reading, writing, and doing math at a 4th grade level (at least) but she can't carry on a conversation with a peer, or learn to make or keep a peer friend to play with at recess. My daughter wont learn from watching others interact and play like her peers will, its sad.

This is exactly what I am afraid of too. That they will see he is smart and can meet academic standards currently and so he will be denied any help for other areas of difficulty like social skills. I'm not against an assessment to see where his needs may be, but if they are trying to reassess him for ASD and not accepting his medical diagnosis, this is a problem to me.



findingaplace
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28 Oct 2014, 3:56 pm

AspieUtah wrote:
If I were you, I would telephone the diagnostician who diagnosed your son. Ask that person what your state laws are about who is authorized to diagnose ASDs for the sake of curriculum supports. I would also make a similar call to your state Board of Education and ask to speak with a staff attorney.

Every state's laws are different, and yours might provide that a diagnosis must be performed by an educational staffer, not a medical professional (though I doubt it). Cooperate with both your diagnostician and the Board of Education attorneys to achieve allowing your son's current medical diagnosis to be their accepted diagnosis. Point out the stress it would cause him to complete a new assessment and the expense to you or them to do so. Unless your state laws require them to do another assessment, they will likely agree that your current diagnosis is acceptable.

Good luck.

I did consider calling them and seeing what my options are. He has been through both an informal, pretty intensive evaluation and then the ADOS. He again went through speech testing with a speech pathologist and I was grilled on his ASD (which I was not prepared for since we were only supposed to be looking at speech). Then we had a sleep evaluation. The poor kid is exhausted from all of these tests and it's rough on him plus he misses class for all of them because of their scheduling. I don't see how pulling him from class for more of the same testing he's been through is going to prove anything. If it's required by law, then I guess I have no choice but it just seems like excessive testing at this point.



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28 Oct 2014, 4:36 pm

Are you in the US (if not, what country)? Does he already have an IEP in place? Assuming your answers are yes you are in the US and no he doesn't have an IEP, then the school does have to do evaluation "in all areas of suspected need". So at a minimum this might be an academic test, a speech eval, an OT eval, and a school psychologist observing him in class. Our district actually has a neuropsychologist on staff who is qualified to give the ADOS, but I think that is unusual. For my son, she did a full neuropsych evaluation, but skipped the ADOS since it had already been done and they weren't going to dispute it.

The whole process should begin with a meeting where they decide what to test and who will do it. You can ask for the names of the tests they plan to do, and refuse anything you don't want tested. (Although refusing one of their tests makes it more likely they will claim he doesn't have any need in that area.)

The school has to "take into consideration" the reports from any external evaluations you've had done, but are not bound by them. If you can get one of the evaluators to come to the IEP meeting that will likely carry a lot of weight. In any case, if the school denies eligibility for an IEP or denies services he needs, there is an appeals process, and the external evaluations will carry a lot of weight there.



findingaplace
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28 Oct 2014, 4:44 pm

zette wrote:
Are you in the US (if not, what country)? Does he already have an IEP in place? Assuming your answers are yes you are in the US and no he doesn't have an IEP, then the school does have to do evaluation "in all areas of suspected need". So at a minimum this might be an academic test, a speech eval, an OT eval, and a school psychologist observing him in class. Our district actually has a neuropsychologist on staff who is qualified to give the ADOS, but I think that is unusual. For my son, she did a full neuropsych evaluation, but skipped the ADOS since it had already been done and they weren't going to dispute it.

The whole process should begin with a meeting where they decide what to test and who will do it. You can ask for the names of the tests they plan to do, and refuse anything you don't want tested. (Although refusing one of their tests makes it more likely they will claim he doesn't have any need in that area.)

The school has to "take into consideration" the reports from any external evaluations you've had done, but are not bound by them. If you can get one of the evaluators to come to the IEP meeting that will likely carry a lot of weight. In any case, if the school denies eligibility for an IEP or denies services he needs, there is an appeals process, and the external evaluations will carry a lot of weight there.

I am in the US. I requested an IEP but so far I've only filled out paperwork with his strengths/weaknesses/behavioral strategies and provided them with his ADOS paperwork. There has been no meeting so far and the teacher is the only one I've talked to.



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28 Oct 2014, 5:48 pm

In the US I think the procedure is you have to ask that the CSE evaluate for suspected needs. Once you sign and submit your request they have a timeline to get it done by. They don't need to repeat tests and it really is a requirement for services that they evaluate. They can skip things and use the outside evaluations but they usually do some kind of in house assessment. I don't think they are necessarily operating in anything but good faith, are you getting the impression they do or don't want to provide services?

You also need to sign a consent for their assessment before they start.



zette
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28 Oct 2014, 6:19 pm

findingaplace wrote:
I am in the US. I requested an IEP but so far I've only filled out paperwork with his strengths/weaknesses/behavioral strategies and provided them with his ADOS paperwork. There has been no meeting so far and the teacher is the only one I've talked to.


Did you request the IEP verbally or in writing? Once you request it in writing (ALWAYS make requests IN WRITING), by law they have to form a team and hold a meeting to discuss what testing they are going to do. The meeting has to take place within 10 days (or maybe it's 15?) If that timeframe has expired, I would write a second letter reminding them that you have requested an IEP evaluation, and would like to know when the initial meeting to determine what testing will be done will be held.

If you can afford an advocate, I highly recommend you use one at least your first time through. In my area they range from $60/hr for someone who will explain the basics and walk you through it, to $200/hr for someone who can get results in the tough cases.

This video explains a lot of your rights (it's focused on dyslexia, but the majority will still apply): https://www.learningally.org/parents-st ... /webinars/ -- scroll down to the webinar labelled "Know Your Rights"

The book From Emotions to Advocacy by Peter Wright also explains the IEP process in detail.



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28 Oct 2014, 7:19 pm

There is a website associated with Peter Wright which is extremely helpful, www.wrightslaw.com

And I found the descriptions there of trying to work with the school extremely helpful. Because you don't just need to get services on paper, you are trusting your child to these people. You need them to really care if at all possible.

Zette's suggestion about talking to an advocate is a really good idea. Even if they don't accompany you they can help advise you about the process. I talked to a lot of people including an advocate and she was more helpful than lawyers for me.