One small piece of information, one big life change

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Didrichs
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10 Dec 2012, 5:02 am

I watched the excellent film 'First do no harm', starring Meryl Streep, last week. It shows how a mother intuitively kept searching for a solution to her son’s epilepsy, despite being told that all was available was drugs and surgery. I referred my son at 1 year old to the doctor asking if Joshua shaking in the morning before food and running after food was significant. When he was diagnosed with Autism and Sensory Processing Disorder I asked was there any connection to his unusual relationship to food. Like the mother in the film I was told categorically’ no’, and was told in April that any such notion was 'mumbo jumbo' and should not be used to make decisions for my son. Like the boy in the film Joshua developed shaking fits, in his case 3 times a week for 6 months, and it took a flight to a London based Immunologist in May to get that piece of information we needed. Joshua has not had a shaking episode since. And his focus and language are much improved.
Autism is one of those areas in which no one can claim to be an expert, as there is so much unknown at present, and so when something is presented about a child as status quo, we may just be in want of one vital piece of information...



DW_a_mom
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10 Dec 2012, 2:17 pm

I am so glad you found the solution.

Medicine is an art. Given how much doctors do know, it is tempting for them (and us) to think they must have all the answers, but that really is not possible. Patient (or, for young ones, parent) instinct and knowledge is so very important.

Never let go of what your instincts tell you until there is enough good information for those instincts to let go of you.


_________________
Mom to an amazing young adult AS son, plus an also amazing non-AS daughter. Most likely part of the "Broader Autism Phenotype" (some traits).


zette
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10 Dec 2012, 8:47 pm

Just curious -- what did the immunologist discover that made the difference?



Didrichs
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11 Dec 2012, 2:11 am

zette wrote:
Just curious -- what did the immunologist discover that made the difference?

We went to Dr Daniel Goyal at Sincere Health and he diagnosed Josh with hypoglycemia and started him on the GAPS diet, followed by a diet tailored to his test results. Has been amazing and so simple :)



Joi
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25 Jul 2016, 7:58 am

Hi, can you provide details on how to contact Dr Daniel Goyal. I checked out the Sincere Hospital and they are in Singapore. Is that correct? I would like to see Dr Goyal. I look forward to your response.