Stanford Neurodiversity Project
https://med.stanford.edu/neurodiversity.html
Just attended a presentation by Dr. Lawrence Fung https://neuroscience.stanford.edu/people/lawrence-fung. The idea is to link up students on the spectrum with employers out there.
I hope they are successful. Stanford certainly is in an unique position to do so. I worry a bit about their funding, though.
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In the same meeting, I was with a friend at the lunch table. A mom at the table brought up that her 20+ year-old daughter often had meltdowns, and said even at the very moment the daughter was having meltdown at home. My friend asked her whether she had tried medication, she said, oh yes, she had tried 23 different medications and none of them really worked. At that moment I just stood up and left the table. Ha ha. You've seen them one, you've seen them all. People make choices. People live the consequences of their choices.
You treat an autistic child as an equal-rights fellow human being, and they blossom.
You treat autism as a medical condition, and after 20+ years you end up where you have started.
While people on the neurodiversity side train students and help them land jobs, people on the medical condition side don't move an inch from where they are, from where they have always been. They blame it all on autism. Self-fulfilling prophecy.
You treat an autistic child as an equal-rights fellow human being, and they blossom.
You treat autism as a medical condition, and after 20+ years you end up where you have started.
While people on the neurodiversity side train students and help them land jobs, people on the medical condition side don't move an inch from where they are, from where they have always been. They blame it all on autism. Self-fulfilling prophecy.
Hi Jason. I always enjoy your posts and am very heartened by the initiative by Stanford. Here in Australia Curtin University of Technology in Perth have already established an industry employment program for adults with autism who have a background or interest in programming
https://research.curtin.edu.au/projects ... es/autism/
I think the institute is pitched as harnessing the untapped talent of graduates on the spectrum. I think in future paper qualification is going to be less relevant then people on the spectrum can certify themselves online and participate in industry programs but this seems to be a step in the right direction.
I also read your experience with the mother of the 20 yr old. It seems we have both reached the same conclusion (which is the wisest thing to do) that we should just ignore the label (and associated medical consequences) and let our children blossom in their own way. I posted on another thread my daughter declares she doesn't have autism. I smile and agree with her if that's what she wants. And yes...live with the consequences...as long as our children are happy
There are changes happening in the world where development is becoming less tied to profits and more tied to wellbeing. This is the seed we should be nurturing. What use is it for our children to be NT clones when NTs themselves don't like what they have become.
Precisely.
I just attended a children's play "My Son Pinocchio". I think this webpage (https://lovelondonloveculture.com/2019/08/02/review-my-son-pinocchio-jr-southwark-playhouse/) describes it well:
... It is a story that has a strong moral message at its core about being careful for what you wish for, while at the same time warning parents about trying to change and shape their children’s futures without listening to them. ...
In the play, Pinocchio wanted to be a train engineer, but his father Geppetto wanted him to be a toy maker.
See, recently my son finally fully showered himself from beginning to end, including drying himself with a towel, using the hair dryer, and putting on body cream (Cetaphil). The first day he did it, he proudly went to his mom and told her: "I did everything all by myself!" and had the biggest smile on his face. He is 10 years old. Most neurotypical children accomplish the same thing when they are 7 years old. Had I trained my son to do all that at age 7, I probably could have made him do it. But I would have deprived him the sense of achievement in taking initiative all by himself to become independent. I would have ruined his self-confidence. As I always say, I spoon fed my daughter until she was 10 years old. If you look at all that BS out there about life skills, and how my children have become independent all on their own, tell me, what do you gain by forcing them to shower themselves earlier or feed themselves earlier? Haven't my children acquired all those "important life skills" before they turned adults? What would you have gained by hurrying them up? The answer is: you would have gained nothing. Nothing. All on the contrary, you would have introduced psychological scars in them, suppressed their self-esteem, suppressed their ability to take initiative, made them look down on themselves.
It's all very simple: respect your children as equal-rights fellow human beings, and not as circus animals for you to manipulate at your whim.
Same thing with behavior issues. Tell me, who here has never gotten mad at one point or another? When you are mad, would you like me to come over and lecture you about self regulation? Huh? Would you like your children to lecture you about self regulation? Huh? Then, why do we the adults take the preposterous attitude that we need to lecture our children about self regulation? Give me a break. Seriously, who do you think you are?
Respect your children. I don't teach my children coping techniques, relaxation, self regulation. They need none of that stuff. I simply tell them: sometimes life is tough, sometimes life is fun. That's all. I simply tell them facts and only facts. I tell them everyone is entitled to get upset, that getting mad is a sovereign right. Strangely, by allowing them to throw tantrums whenever and wherever they want, my children turned out to be very polite. Isn't that curious?
Recently a teacher (not the room teacher) suggested some punishment and rewards approach toward my son. Guess what? I wrote an e-mail, cc'ed other teachers, and explained that punishment and rewards is not the correct approach, I sent them the article about fun and facts. I further explained that I don't hide things from my son, and that I read my e-mail communications with the school to my son. I further indicated that this is a good material for my son to learn about the quirks of neurotypical people, and that I would read the e-mail to my son, year after year, until he grows up.
It's all very simple: treat your children as equal-rights fellow human beings. If you don't want your children to grow up and hate your for the rest of their lives, then, don't do manipulation. Don't treat them as circus animals that you can manipulate with punishment and rewards.
Agree with everything you wrote.
My daughter was also late (she was 12 before mastering bath/showing/towelling). At 14 she is helping maintain the bathroom.
I'm not sure if you have seen the Ben Affleck movie "The accountant" or the "Good Doctor". what do you think of the parenting in both movies? both boys were struggling as children in both speech and function.
I haven't watched the Good Doctor. "The Accountant," though fictional and exaggerated, actually portraits autism pretty well, if you remove all the exaggerations. (Remember the purpose of movies. If a movie just portraits real life, there is no point in watching it: we already live real life.) What can I say? The father had the harsh training attitude. Sure, some of these children eventually grow up with Stockholm syndrome and think that's the correct way. I am not a Tiger Dad kind of person, though. I believe children are born with creativity. And creativity is so much more important than skills. With creativity, you can develop skills. Not the other way around.
I haven't watched the Good Doctor. "The Accountant," though fictional and exaggerated, actually portraits autism pretty well, if you remove all the exaggerations. (Remember the purpose of movies. If a movie just portraits real life, there is no point in watching it: we already live real life.) What can I say? The father had the harsh training attitude. Sure, some of these children eventually grow up with Stockholm syndrome and think that's the correct way. I am not a Tiger Dad kind of person, though. I believe children are born with creativity. And creativity is so much more important than skills. With creativity, you can develop skills. Not the other way around.
Yes I agree, in the accountant Ben Affleck's character is coerced through punishment (an extreme from of ABA) creating conditioning through fear and aggression. Affleck's boyhood character learns through sheer repetition.
In the good doctor (I recommend you watch) the boy has a good visual memory which he is stimulated to learn when he sees his brother die and becomes obsessed with the idea that if he knew medicine he could have saved his brother. This drives him to get into medical school and become a surgeon. The tension in the TV series is how he overcomes his social deficits (this is worth watching).
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