Pediatrics organization warns against elimination diets

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ASPartOfMe
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20 Dec 2019, 4:33 am

American Academy of Pediatrics warns against elimination diets as treatment for autism

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The American Academy of Pediatrics is warning parents against using gluten-free and casein-free diets as part of their child's autism treatment.

The new guidance is the first one released on autism by the AAP in more than 10 years.

The report cites data from a 2016 clinical trial in which researchers found that elimination diets did not have an effect on a child's autism symptoms. The AAP advises parents to only use research-based interventions and treatments.

Insider reports that anywhere from between 23% and 70% of children with autism suffer from various gastrointestinal issues which may explain why elimination diets, like gluten-free and casein-free, became a popular alternative therapy. Casein-free refers to the milk protein and requires the elimination of all dairy products from your child's diet. A gluten-free diet means no wheat, barley, rye or oats-based products.

The new guidelines don't mean that elimination diets are without benefits, the guideline authors explained in AAP's journal Pediatrics. When there is an underlying physiological issue, an elimination diet might help with those particular symptoms.

However, for core autism symptoms and behaviors, the authors recommend proven treatment methods like behavioral analysis, which works on new skills like eye contact and using positive reinforcement to reduce aggressive behaviors. They also suggest the Early Start Denver Model, which focuses on improving language and cognitive skills in children with autism.


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eikonabridge
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20 Dec 2019, 12:54 pm

ASPartOfMe wrote:
American Academy of Pediatrics warns against elimination diets as treatment for autism
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The American Academy of Pediatrics is warning parents against using gluten-free and casein-free diets as part of their child's autism treatment. ...

Thanks. This is long overdue. So many Asian parents believe that diet solves everything. This should be a good message for them.

However, the emphasis on language and behaviors in the article is still misplaced. I just don't know why people keep forgetting about the case of Helen Keller. She did not speak ... she was deaf-mute, after all. She also had horrible behavior issues. Don't people realize that language and behaviors are totally irrelevant to the development of a child? For autistic children, it's the other way around: no training in language or behavior is needed. Instead, if you properly develop the cognitive capabilities of these children, language will come automatically, and behavior issues will disappear. People out there still have a strong neurotypical bias. When you have a hammer, all you see are nails ...


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Aspie1
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20 Dec 2019, 2:23 pm

eikonabridge wrote:
Thanks. This is long overdue. So many Asian parents believe that diet solves everything. This should be a good message for them.
Another issue is that elimination/prohibition diets open doors for power narcissism. That's when whatever rules/restrictions that are implemented "for the good of the child", like the "gluten free, casein free" diet, stop being for the good of the child, and start being for the sake of enjoying power over him. Namely, to enjoy watching the defeated look on this face and the tears in his eyes, when telling that him that he can't have cheese and crackers. Which, in the child's mind, means that he can't have cheese and crackers for as long as he lives. To protect him from the evil gluten and casein, of course. :roll:

That's "no harm, no foul" is he doesn't like them. But what if he does? Is enjoying power really worth making one's own child unhappy? We're talking about popular, semi-healthy kids' foods here, not whiskey! NT adults and even NT kids may not notice the enjoyment of power. But for aspies, the jig is up: we know. All thanks to our unique brain wiring.



TwilightPrincess
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23 Dec 2019, 8:35 am

Aspie1 wrote:
eikonabridge wrote:
Thanks. This is long overdue. So many Asian parents believe that diet solves everything. This should be a good message for them.
Another issue is that elimination/prohibition diets open doors for power narcissism. That's when whatever rules/restrictions that are implemented "for the good of the child", like the "gluten free, casein free" diet, stop being for the good of the child, and start being for the sake of enjoying power over him. Namely, to enjoy watching the defeated look on this face and the tears in his eyes, when telling that him that he can't have cheese and crackers. Which, in the child's mind, means that he can't have cheese and crackers for as long as he lives. To protect him from the evil gluten and casein, of course. :roll:

That's "no harm, no foul" is he doesn't like them. But what if he does? Is enjoying power really worth making one's own child unhappy? We're talking about popular, semi-healthy kids' foods here, not whiskey! NT adults and even NT kids may not notice the enjoyment of power. But for aspies, the jig is up: we know. All thanks to our unique brain wiring.


This scenario is highly unlikely.

Most parents put their kids on elimination diets because they actually think that it will help them, especially if they don’t have a strong understanding of scientific studies and research. People get involved with homeopathy or are anti-vaccines for similar reasons.

Sometimes even well-educated parents who are really struggling are willing to try almost anything just in case it might help their kid.

Elimination diets are really hard to implement and most don’t go that route unless their kid is having notable problems and they’re hoping to find some help or relief for him or her.



timf
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23 Dec 2019, 8:49 am

I would expect that most parents would use an elimination diet experimentally to determine if there might be a causative relationship between a particular food item and some particular problem.

I know someone at a major food company to whom I voiced my suspicions that the "gluten free fad" seemed overly hyped. He told me that there had been a major shift in wheat varieties for yield and production benefits that has resulted in digestion difficulties for many. I know that some might suspect GMO influence, but I am told it has been mostly variety substitution.

I had a physician friend who disparaged the idea of supplemental vitamins saying that anyone who ate a balance diet, did not need such supplementation. My response was "who eats a balanced diet".

If one considers industrial farming where only nitrogen is returned to the soil, one might consider an increasing depletion of trace minerals in food derived from decades of farming the same land with the same one or two crops.

Parents who attempt an elimination or supplementation regime, usually do so with an eye towards making things better for their child. One might expect, given the difficulty of maintaining such a regime, that it would not be continued unless there were observable positive effects.



eikonabridge
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23 Dec 2019, 11:22 am

timf wrote:
... I had a physician friend who disparaged the idea of supplemental vitamins saying that anyone who ate a balance diet, did not need such supplementation. My response was "who eats a balanced diet".

We have healthy breakfast smoothie every morning, plus Vitamix-blended, organic fruit/veggie juice with pulp in the afternoon. That probably puts us at the top 1% of families when it comes to healthy diet. Even with all that, I can tell perfectly well that vitamin supplements are still needed. I think people that don't take vitamin supplements, are simply kidding themselves.

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... Parents who attempt an elimination or supplementation regime, usually do so with an eye towards making things better for their child. One might expect, given the difficulty of maintaining such a regime, that it would not be continued unless there were observable positive effects.

Unfortunately, often there are observable NEGATIVE effects, and the parents continue to enforce the diet. I see with my eyes how the body shape of a boy gets deformed when the parents forced him to follow SCD diet for over a decade by now. Some people may think the comments from Aspie1 are hyperbole, but, sadly, nope. Some parents do truly have "power narcissism."

What can you do? To some parents, treating their children as equal-rights fellow human beings, is just a totally foreign concept to them.

This is a bit like prescribing stimulants for ADHD. The drug are there not to help the students, but to help the (neurotypical) teachers. Com'on, I only needed 3 seconds of attention to teach my son to read and to acquire so many other skills.


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Aspie1
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23 Dec 2019, 11:57 am

eikonabridge wrote:
Unfortunately, often there are observable NEGATIVE effects, and the parents continue to enforce the diet. I see with my eyes how the body shape of a boy gets deformed when the parents forced him to follow SCD diet for over a decade by now. Some people may think the comments from Aspie1 are hyperbole, but, sadly, nope. Some parents do truly have "power narcissism."
You got that right! I read about the SCD diet on https://www.webmd.com/digestive-disorde ... iet-review, and damn it, it eliminates so many perfectly healthy kid-pleasing foods! :evil: If my parents tried it on me, I would have thrown myself off the balcony. (We lived in a high-rise condominium, not a house.) I'd do it in early spring, after the snow melts but the ground is still frozen, so it's as hard as possible. I knew all that by age 8, when I already had a suicide plan in mind.

My parents, for no explainable reason, tried their own "diet": limiting my water intake. I was allowed to have only one glass of water at each meal, but I wasn't allowed to go near the water cooler at any other time. (My parents used a water cooler because the city water tasted bad, and some outlying neighborhoods, like where my grandparents lived, were on well and septic.) They said I get plenty of water from food, like soups and citrus fruits. I got around the rule by guzzling water out of the faucet each time I went to the bathroom or brushed my teeth; sometimes I pretended to use the bathroom just to drink the water. The prohibition was ended when my family moved across the country when I was 10.