Research on girls diagnosed with autism in adolescence
Hi fellow parents.
I’m mum to an autistic 16 year old daughter. Our journey with an autism diagnosis prompted me to decide to do my doctoral research on the topic of the how an autism diagnosis impacts the way autistic girls (or young women!) view themselves as individuals and as part of social groups. I have ethical approval from Cardiff university and am now looking for participants. If you think your daughter might be interested, read on, the details are below. Thanks for reading
Are you the parent of a daughter diagnosed with autism in adolescence? A study by Cardiff University is seeking participants.
We are carrying out research to find out what impact diagnosis of an autism spectrum condition has on adolescent girls and the way they view themselves - both as individuals, and as part of social groups.
We hope the study may help to improve the experiences of young women being diagnosed with autism in the future.
Who can take part?
• Young people aged 11-19 years who are female.
• Diagnosed after the age of 11 years old (and at least 6 months ago).
• Happy to write about themselves and their diagnosis of an autism spectrum condition.
What will happen?
• The researcher will email instructions about writing a private blog / journal, with a number of headings and guidance about what to write about.
• The young person will be asked to write between 3-4 blog / journal entries under the headings supplied. There will be no expectation on number of words written. This will be up to the young person, although to be included in the final analysis the entries will need to relate to the headings provided.
• Parents will be asked to send the blog / journal entries through via email to the researcher. The blog / journal can either be written by hand and photographed OR typed.
• The blogs / journal entries will be completely anonymised and then analysed, alongside all participant entries.
• The research may be published in a professional journal at some point in the future.
How to get involved?
If you and your daughter want to take part, please contact the researcher Rebekah Morgan by email: [email protected].
This study has received full ethical approval from Cardiff University Ethics Committee. For more details regarding ethics and this project, or to make a complaint please contact: School of Psychology Research Ethics Committee, Cardiff University, Tower Building, 70 Park Place, Cardiff. CF10 3AT; Tel: +44(0)29 208 70360; Email: [email protected]
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