Any parents with adult AS/HFA children? Need advice.

Page 1 of 1 [ 11 posts ] 

autisticstar
Snowy Owl
Snowy Owl

User avatar

Joined: 30 Jul 2007
Gender: Female
Posts: 125

28 Jan 2008, 12:46 pm

I am an adult on the autism spectrum and have had to rely on my father and stepmother financially as my income is not sufficient to meet all of my expenses. My father and stepmother have retired and thus income has been reduced significantly. I got into a huge fight with my father since I have trouble keeping my apartment neat and now having a roommate will become a necessity. If you have adult children with AS/HFA do they live with other people? I am terrified of getting a roommate because I don't think I can "act normal" in my own home. Sometimes I do weird things like dance around or listen to the same CD several times in a row. I laugh out loud when something strikes me as funny and this is when I think of something funny. I don't know what to do because my Dad has demanded that I become neat and organized and get a roommate.



Nan
Veteran
Veteran

User avatar

Joined: 1 Mar 2006
Age: 68
Gender: Female
Posts: 3,795

28 Jan 2008, 12:53 pm

painful as it seems, you are probably going to have to keep at least the shared sections of your apartment clean, if you get a roommate. hopefully you have more than a one-bedroom apartment, and you will be able to keep your own room to yourself.



Ticker
Veteran
Veteran

User avatar

Joined: 25 Aug 2006
Age: 55
Gender: Female
Posts: 2,955

28 Jan 2008, 1:10 pm

Have you considered getting a 2nd job, changing jobs or asking for overtime at your current job? You should be able to support yourself. Many of us do all the time. I live alone and have only had a roommate/fiancee for one year. It sucked because she also seemed to be on the spectrum and expected me to do all the housework and all the shopping.

Have you considered maybe you should stop twirling around the room? Maybe being forced to get a roommate will make you grow up some. As Aspies get older they do normally learn to control their weird behaviors. Yes twirling around the room if you are a guy is going to get you in hot water with a roommate. Most likely he will learn to dominate you when he sees such behavior. Best thing you can do is find a way to make more money so you don't need to get a roommate. And if your expenses exceed your income maybe you need to adjust how you live your life. Eat cheap foods, go to the food banks if you have to, don't eat out or order pizza delivery, don't buy dvds and video games, conserve your water and electricity so utility bills aren't so high. This is part of life. Many people have to do that AS and NT alike.



Tortuga
Veteran
Veteran

User avatar

Joined: 11 Dec 2007
Gender: Female
Posts: 535

28 Jan 2008, 2:20 pm

Is there any way you can become self-sufficient without getting a roommate? Maybe reduce your expenses. Has your dad been giving you a set amount of money each month?

I've known NTs who've had a similar arrangement with their parents. It's not that they couldn't survive without the stipend, it's just that they wanted to live above their means.



Triangular_Trees
Veteran
Veteran

User avatar

Joined: 17 Jul 2007
Age: 43
Gender: Male
Posts: 1,799

28 Jan 2008, 3:17 pm

autisticstar wrote:
I am an adult on the autism spectrum and have had to rely on my father and stepmother financially as my income is not sufficient to meet all of my expenses. My father and stepmother have retired and thus income has been reduced significantly. I got into a huge fight with my father since I have trouble keeping my apartment neat and now having a roommate will become a necessity. If you have adult children with AS/HFA do they live with other people? I am terrified of getting a roommate because I don't think I can "act normal" in my own home. Sometimes I do weird things like dance around or listen to the same CD several times in a row. I laugh out loud when something strikes me as funny and this is when I think of something funny. I don't know what to do because my Dad has demanded that I become neat and organized and get a roommate.


I can't keep things neat, because when things are neat I literally can't find anything I need. My room may be a complete mess, but its an "organized" mess. if you don't touch my papers i won't have trouble finding them. If you stick them in a binder with tabs delineating which type of paper is in each section, I won't be able to find the paper i need.

Rather than try to keep the entire place neat, just designate your room as your space. That can be a mess. With the rest its not your space so don't leave anything there, and have scheduled times each week/month to clean the appliances/floors etc



riverotter
Veteran
Veteran

User avatar

Joined: 10 Oct 2007
Age: 57
Gender: Female
Posts: 970
Location: the frosty midwest

28 Jan 2008, 3:21 pm

Ticker wrote:
Have you considered maybe you should stop twirling around the room? Maybe being forced to get a roommate will make you grow up some. As Aspies get older they do normally learn to control their weird behaviors...

Ticker, your statements are overly harsh. Personally I think the best part of being an adult is being able to do stuff that I want (especially in my own home and if it doesn't harm anyone!) Give the guy a break. Headphones are a must though I think. Keeping shared areas neat is important in any situation involving other people whether it be co-workers, family, or what have you. That's pretty basic. But aye geez, let the guy twirl in his own room if he needs to.



lelia
Veteran
Veteran

User avatar

Joined: 11 Apr 2007
Age: 72
Gender: Female
Posts: 2,897
Location: Vancouver not BC, Washington not DC

28 Jan 2008, 4:26 pm

I think dancing around is great, not weird. However some people can't cope with someone who's not a sheeple, so the trick might be to find someone who works in special ed and is used to varient behaviour.
One reason I like going to Rwanda so much is I can be myself, like clapping and squealing with delight at some seedling trees that are growing successfully. The Rwandans don't think, or at least don't say, gee, you're weird, they think, she's American. They don't expect me to mirror every one of their behaviours. And they act like they love me as much as I love them. And of course, they like that I love research.
Oh, so would having a foreigner as a roommate work out?
I don't know. Luckily I never had a roommate besides my sister and my husband. My daughter has had a number of roommates, and every single one of them cheated her. She has ADD and so only wants to hang around "exciting" people.
You don't want to fight with your dad. You want to ask him, Help me figure out how to make this happen. You local ARC or autism society might know of someone decent looking to share an apartment.
I don't know if a single thing I said here is useful, but I do wish you well.



Juliette
Veteran
Veteran

User avatar

Joined: 28 Sep 2006
Gender: Female
Posts: 4,743
Location: Surrey, UK

28 Jan 2008, 7:30 pm

Hi autisticstar - I have a 22 year old son(AS) and a 20 year old daughter(AS) who have their own places. They both have longterm girlfriend/boyfriends(ironically turns out both are AS - and very talented) but do not live with them. They both moved out initially to be nearer their academy/university. It took some adjusting, but economically, they know they are far better off sharing with others. Thankfully, people are as accepting of them as they are of others. They've found it can be alot of fun and has many benefits. Their bedrooms are their 'sanctuary' :). While he studied at the ACM, my son shared an amazing house(even had a jacuzzi!) with 4 other students. It worked out really well - they used a roster and were very supportive of one another. From there, my son's dream was to live and work in London. He's achieved that, but wouldn't be able to afford it if not for accepting the fact that he would have to share a place with others. He works full-time and also supplements his income by teaching guitar.

My son is very tidy and cleanly, always has been since a young child(as am I). We both need order in our lives I guess. My daughter will admit, she is not so tidy, but as other posters have said of themselves, she knows where everything in her room is, it simply appears a little on the chaotic side to others(if they dare to enter:)! They both found that drawing up a roster for cleaning works well.

Losing the freedom of having your own place all to yourself will take some adjusting. But, if it's truly necessary, then, there are definite positives. You may actually make a good friend or two, and you may find yourself enjoying doing those dishes and wanting to put an effort into keeping the living areas presentable. I hope though, that you never feel that you cannot be yourself in your own home. If you're self conscious, perhaps dance when they're not home with you or dance in your room. They may even dance with you:)! Why not listen to your music(via ipod/headphones) while you clean. Why should you break those habits you enjoy when you're not hurting anyone. They're probably how you're used to unwinding and destressing, and they make you happy.

My daughter's having to face finding a new place for September in Southhampton and is seeking others to share with her. So far, she has recruited her best friend, a male(AS) who is far quirkier than her and alot of fun! He is doing the same course. They will dance no doubt:)! I hope it works out wonderfully for you and that the positives of sharing, outweigh the negatives.



Mikomi
Veteran
Veteran

User avatar

Joined: 24 Jan 2008
Age: 46
Gender: Female
Posts: 753
Location: On top of your TV, lookin' at you funny.

28 Jan 2008, 8:30 pm

The thought of a roommate may seem overwhelming, but maybe it will prove positive for you. I left home at 16. Best thing that ever happened to me.



lucy1
Deinonychus
Deinonychus

User avatar

Joined: 16 Aug 2007
Age: 68
Gender: Female
Posts: 316

30 Jan 2008, 4:18 am

autisticstar wrote:
I am terrified of getting a roommate because I don't think I can "act normal" in my own home. Sometimes I do weird things like dance around or listen to the same CD several times in a row. I laugh out loud when something strikes me as funny and this is when I think of something funny. I don't know what to do because my Dad has demanded that I become neat and organized and get a roommate.



I have adult children - I love to dance around and sing - and listen to same CD's over and over - and I love to laugh out loud. These are all happy things to do, and I always thought very normal expressions of joy.
No one else dances around in the house like I do - but we can't all be alike.

Give getting a room mate a try - if it doesn't work out - well .... where's the harm. Hopefully with time you will begin to feel comfortable and more relaxed with the room mate. In the meantime - you could leave the dancing until your room mate is out and you have the house to yourself.



Pandora
Veteran
Veteran

User avatar

Joined: 17 Jun 2005
Age: 63
Gender: Female
Posts: 3,553
Location: Townsville

03 Feb 2008, 1:32 am

riverotter wrote:
Ticker wrote:
Have you considered maybe you should stop twirling around the room? Maybe being forced to get a roommate will make you grow up some. As Aspies get older they do normally learn to control their weird behaviors...

Ticker, your statements are overly harsh. Personally I think the best part of being an adult is being able to do stuff that I want (especially in my own home and if it doesn't harm anyone!) Give the guy a break. Headphones are a must though I think. Keeping shared areas neat is important in any situation involving other people whether it be co-workers, family, or what have you. That's pretty basic. But aye geez, let the guy twirl in his own room if he needs to.
Yeah, I'm Ticked off by Ticker's comments. I think they are cruel and unnecessary. I would be scared of getting a roommate too.

We often value our personal space and privacy. It would probably make more sense financially for this guy to return home and pay board but as the parents are elderly, also do home maintenance jobs such as mowing the lawn.


_________________
Break out you Western girls,
Someday soon you're gonna rule the world.
Break out you Western girls,
Hold your heads up high.
"Western Girls" - Dragon