Page 1 of 1 [ 11 posts ] 

consmom
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 27 May 2008
Age: 62
Gender: Female
Posts: 37

26 Aug 2008, 11:45 pm

My son chews on his shirt, and it just tears them up. At OT they suggested a chew tube necklace. I asked his teacher if she thought kids would make fun of him, and she told me not to worry about it she would handle it. The kids have asked him what it is and he just tells him “it’s a chew tube” and that’s the end of it.
Today the PE teacher tells him to “get it out of your mouth your in 4th grade”. To think I was worried about the kids giving him a hard time. I called her to tell her that I was sorry if no one informed her that my son has AS and AS kids chew. I told her if I need to educate her on AS I’d be glad to but please don’t tell him to take it out of his mouth! You would think her being the adult if she had a question about it she would have asked his teacher before making that comment. Oh I want an IEP sooooooooooo bad.



leechbabe
Pileated woodpecker
Pileated woodpecker

User avatar

Joined: 25 Jul 2008
Age: 49
Gender: Female
Posts: 178
Location: Melbourne, Australia

27 Aug 2008, 4:57 am

I do hope you can get the PE teacher sorted out.

We had a meeting with the OT today, she'd gotten 6 families together who are doing sensory diets for their children. Was fascinating how many of our children are needing things to chew and the different directions that takes them.

We've just had to increase the density of the chewy tube that Heidi uses. She did have a thin green tube we'd put on a piece of elastic but it was not enough any more. Now we have a T shaped thing strung through a shoelace. Heidi loves her chewy necklace.

Tried out the chewellry but while Heidi loved the bouncy springs to play / fidget with she had no interest in chewing it.



ster
Veteran
Veteran

User avatar

Joined: 23 Sep 2005
Gender: Female
Posts: 2,485
Location: new england

27 Aug 2008, 5:18 am

:evil: ......i hated PE teachers ! !! !! !! !! !!



consmom
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 27 May 2008
Age: 62
Gender: Female
Posts: 37

27 Aug 2008, 5:54 am

that should read '"tares" I'm in tears.


The school just doesn't understand AS ( other then his teacher) the asst. principle had him all upset on the first day because she changed his after school meeting place for his sister. We spoke with the principle, had the place he was to meet his sister all picked out. On the first day of school, the asst. principle told him he couldn't wait there and he couldn't find his sister and was in tears and all upset. His teacher found him crying got sis and walked them out to me. The rest of the day was bad, he missed 18 out of his 20 spelling words at homework time and a hour more of tears. His school needs to know how to deal with AS!



ster
Veteran
Veteran

User avatar

Joined: 23 Sep 2005
Gender: Female
Posts: 2,485
Location: new england

27 Aug 2008, 1:51 pm

is there any way you can help to educate them that you haven't already tried ?



Gifted-Monster
Deinonychus
Deinonychus

User avatar

Joined: 12 Jun 2008
Age: 35
Gender: Male
Posts: 389

28 Aug 2008, 5:18 am

You can't make NT's understand Aspergers.

They have to want to. And many NT's fear Aspies. And since they fear us, they don't understand us. And what they don't understand, they destroy.

*Shrugs*

If you could arrange for a cooldown time for your child, perhaps in an empty classroom, that could greatly help.

Failing that...if you want your child in school, go with medication.

Regards
GM


_________________
"We will not capitulate - no, never! We may be destroyed, but if we are, we shall drag a world with us - a world in flames."
- Adolf Hitler


ster
Veteran
Veteran

User avatar

Joined: 23 Sep 2005
Gender: Female
Posts: 2,485
Location: new england

28 Aug 2008, 5:45 am

GM, that's a bit harsh...........I'm NT....... it's true you can't make anyone understand you. all you can do is bring them more information. they can choose to listen, or not listen- this is true of everyone, not just NTs.



Gifted-Monster
Deinonychus
Deinonychus

User avatar

Joined: 12 Jun 2008
Age: 35
Gender: Male
Posts: 389

28 Aug 2008, 6:11 am

It may be harsh, but it is true when you examine the greater spectrum of society and in particular the school system.

Granted, it often has to do with overcrowding and as such they can't take the time to understand but really...it's also laziness.

Out of...roughly 1000 students, there'd be...what...10-50 Autistic Spectrum students? They view us as not worth the effort. Students slip through the cracks and they can blame the autism when the time comes to account.

This also ties in with the whole chew tube issue. Have you considered gum perhaps in lieu of a chew tube to tone down on the insults he could recieve?

Regards
GM


_________________
"We will not capitulate - no, never! We may be destroyed, but if we are, we shall drag a world with us - a world in flames."
- Adolf Hitler


DW_a_mom
Veteran
Veteran

User avatar

Joined: 22 Feb 2008
Gender: Female
Posts: 13,689
Location: Northern California

28 Aug 2008, 12:11 pm

I had no idea they sold chewy necklaces. Where do you get that? My son goes with straws and carrots ... he has, fortunately, outgrown the overwhelming desire to chew his clothes. We still have quite a lot of evidence of those years in his drawers, however!

I am sorry the PE teacher didn't get it. She may have been concerned about safety? So many details to be worked through ...

My son cannot spell, either. But he does have a great short term memory. So, we've learned to help him basically fake it through the tests, by helping him memorize the spelling list the night before and morning of the test. He got into the process once he saw how much difference it made. He likes doing well.


_________________
Mom to an amazing young adult AS son, plus an also amazing non-AS daughter. Most likely part of the "Broader Autism Phenotype" (some traits).


consmom
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 27 May 2008
Age: 62
Gender: Female
Posts: 37

29 Aug 2008, 6:14 am

I get his chew necklace at OT but , we use the ones at this link the pen suspenders.
http://www.senseabilities.com.au/index. ... 5&range=00

I thought about the safe issue too, but the way she said "your in 4th grade " had nothing to do with being safe. He does take it off before he goes outside, he's a climber and that could be bad.

Maybe his school can't get the whole picture, but anyone can understand not to change his plans without notice or not give a child a hard time for chewing on a necklace. I know they can't read his mind, trust me I've been saying I wish I could crawl in his head to his little world and see whats in their way before I new he was a aspie. He is on med's for ADHD.



DW_a_mom
Veteran
Veteran

User avatar

Joined: 22 Feb 2008
Gender: Female
Posts: 13,689
Location: Northern California

29 Aug 2008, 1:09 pm

consmom wrote:
I get his chew necklace at OT but , we use the ones at this link the pen suspenders.
http://www.senseabilities.com.au/index. ... 5&range=00



Oh, cool! When my son was in K and 1st we tried making him necklaces with baby chew toys but, well, those were BABY chew toys, and not too cool to wear. What you have is a MUCH more socially acceptable answer!


_________________
Mom to an amazing young adult AS son, plus an also amazing non-AS daughter. Most likely part of the "Broader Autism Phenotype" (some traits).