Who actually made the diagnosis of AS???
Was it a developmental pediatrican, pyschtratrist, or psychologist? Or were they diagnosed from the public school? I am trying to wade througth the waters of specialists and jsut wondering who and at what age your child was diagnosed officially. Thanks, LUcy (Sorry my spelling stinks!)
soljaboi51
Snowy Owl
Joined: 7 Dec 2007
Age: 33
Gender: Male
Posts: 147
Location: Seattle, Washington, United States
son's pediatrician thought he had social anxiety disorder. the psych confirmed this & added a dx of major depressive disorder.our son was finally dxed with AS by a neuropsych.
hubby was dxed by a specialist in ASD's ..
daughter was dxed with ADHD by a psych. we're taking her for a second opinion by a specialist in ASD's at the end of the month
leechbabe
Pileated woodpecker
Joined: 25 Jul 2008
Age: 49
Gender: Female
Posts: 178
Location: Melbourne, Australia
The IEP team (school psychologist, in particular) at my son's school gave him a tentative / school use diagnosis when he was 7, at the start of 2nd grade. We were supposed to follow up with a medical diagnosis but haven't bothered. It fits completely and the place we need services is at school.
_________________
Mom to an amazing young adult AS son, plus an also amazing non-AS daughter. Most likely part of the "Broader Autism Phenotype" (some traits).
In my opinion, the diagnosis should really be made by a clinical/developmental psychologist or a similar professional preferably one that has relevant specialized training. In my experience, school district psychologists and IEP team people are often astoundingly clueless about AS. More than once I've had to explain very basic features of AS to them:
Me: "My five year old son doesn't need practice labeling pictures of farm animals. He doesn't have a language delay".
District Psychologist: "But...he's AUTISTIC".
Me: "Yes, but he has Asperger syndrome -- by definition that means he doesn't have delays in basic expressive or receptive language."
District psychologist: [Blank stare]
Don't get me wrong -- there are some wonderful, highly qualified people employed by school districts and there are some unqualified PhD clinical psychologists. However, your odds are much better if you go with an independent, clinical psychologist with relevant specialized training.
I was diagnosed in 1990 at the age of 30 by a clinical psychologist. I went because of depression and a general feeling that I simply didn't belong...anywhere. I had no clique, no niche, nothing...no fiance, no prospects, no friends. I told him that I wanted and needed a mate.
The clinician was very careful when he made the diagnosis. He steared me away from support groups for fear that predators might take advantage of the situation. He began talking about all the famous eccentrics first and then said I was like them. He used a term "crypto-sensitive". Because not so much was known about this as is now, I couldn't find that term in any book. I never went back because I was tired of giving him $30.00 per hour(...in 1990 don't forget...plus a sliding scale payment method) instead of living a full life in any way that I could. Sometimes living a full life requires spending money. So, I took a vacation to Florida instead of vegetating in that darned office "even though that clinician helped me considerably." He gave definition to how I felt since I was a small child. So it wasn't a waste of time but I still wish I could have that money back or that he could've defined it in one or two sessions. I prayed to God for help because all I wanted was to get married to a decent guy. I finally met "another aspie" and got married. I could NEVER survive a neurotypical mate and practically didn't in the past. We've been together for 17 years and I still find him irresistable. Most people are generally unkind to us because we are a mixed race couple but who cares? One needs to be around one's own kind and this has nothing to do with race or religion. We both were never part of the big picture anyway! BUT we have each other and our beautiful, irresistable child who is just like us. I now read every book under the sun about Aspergers to stear my child away from the pain of lonliness that I had to endure for 30 years. The more I find more aspies, the happier I get! Sometimes a label is all you need!! !!
jelibean
Veteran
Joined: 23 Mar 2008
Age: 66
Gender: Female
Posts: 548
Location: United Kingdom/www.jelibean.com
Me: "My five year old son doesn't need practice labeling pictures of farm animals. He doesn't have a language delay".
District Psychologist: "But...he's AUTISTIC".
Me: "Yes, but he has Asperger syndrome -- by definition that means he doesn't have delays in basic expressive or receptive language."
District psychologist: [Blank stare]
Sounds like we have remarkably similar stories to tell.............I agree there has to be training for consultants in AUTISTIC SPECTRUM CONDITONS as a whole. Depending on which consultant you see and where depends on what diagnosis we get! We are NOT mentally ill, nor do we need a Paediatrician!! We need a specialist developmental expert in neurological developmental conditons..............aaaaghhhh!
I am currently working with many children seeking a diagnosis. It is staring the experts in the face YET they don't seem to see it. A lad I am working with who is VERY H, has been seen by the Ed Psych and ..................nothing! The fact he has the attention span of a gnat (sorry probably doing gnats an injustice!), concentration span of a goldfish (I heard it was 3seconds?) and has a habit of firing water pistols at the French teacher JUST for a laugh! All his life he has been a human tornado, inappropriate, in trouble and oppostional big time....................but he keeps getting sent into isolation, exclusion, suspension and detentions.......................why? Anyone looking at WHY? NO!
The professionals our side of the globe appear inept, unqualified in ASC ( I prefer conditons, I am not a disorder!) AND half of them on the spectrum themselves.
Professionals in the UK disguise who they really are here.............COMMUNITY PAEDIATRICIANS are child protection officers......................YES to all those in the UK, the vast majority of their work is in Child Protection!! Only a small percentage of it is schools, vaccinations and education! MIDWIVES are secret pre natal police................Wales in particular! I can post links to any of it if any of you are interested. Then we have GP's ? They are another group who just stare blankly into space preferring to shuttle you out of the door as soon as poss OR refer you onto the child psychiatrist who as well as being untrained in ASC has a 6mth waiting list.
And also here in the UK we have Social Services who are not actually social at all, they are the domestic police! So who to see? Who to seek advice from that has joined the dots AND can appreciate ALL colours of the spectrum?? Hair pulling is what I spend most of my time doing...........anyone got a wig company!
Sorry UK, to show you in a bad light, it is just a reflection of the truth ...........SADLY.
Blank faces? Yea completely know what you mean
Don't get me wrong -- there are some wonderful, highly qualified people employed by school districts and there are some unqualified PhD clinical psychologists. However, your odds are much better if you go with an independent, clinical psychologist with relevant specialized training.
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