Cerebral Palsy + DNR order = one pissed off Strapples
DNR's and children do NOT mix... well they shouldnt mix...
i dont think anyone probably took the time to explain what it is, and if someone were to right now i bet she would be screaming back "DELETE THAT DNR... NOW YOU A$&HOLE I CANT BELIEVE I HAD YOU PIECES OF &#*^ FOR PARENTS"
i dont think anyone has the right to decide for someone other than themselves whether they live or die... i agree with your statement on this thing being murder, personally if she does die and medical care can be given and the DNR stopped it i would gladly charge both parents with indirect premeditated murder (life/death penalty) DNR's do not belong on ANYONE under the age of 16 heck if this were my world id say no one could have a DNR until they are 18 (legal adult) the only time i say a DNR can be made by someone else is if they are in a PVS for more than 6 months and are older than 30 years old...
i agree entirely!! giving a DNR to a person in these situations is like you're throwing them away!! it makes it seem like the family just doesn't want to be burdened anymore, so they're like, "hey! if she dies, we won't have to deal with it anymore!!"
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-nicky
so i dont think it be fair of me to vote because everything is situational i cant be a judge on a desion like this
the problem is you dont "suffer" from cerebral palsy... it causes problems but you just have to work through them...
i do not agree that parents should have this much control over their childs life... its just plain wrong to me... i think no one should have the ability to do a DNR on someone other than themselves at ANY age...
if i read the artical correctly they do say the girl was suffering and the out look looked bleak perhaps the parent thought they are saving her from going down a dark road and suffering by letting her life end now im not saying its right in this situation but you cant say for certainty that this kind of dnr wouldnt be right for a diffrent stiuation you really never know what a person is going through and what the right thing to do is
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Strapples
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DNR's and children do NOT mix... well they shouldnt mix...
i dont think anyone probably took the time to explain what it is, and if someone were to right now i bet she would be screaming back "DELETE THAT DNR... NOW YOU A$&HOLE I CANT BELIEVE I HAD YOU PIECES OF &#*^ FOR PARENTS"
i dont think anyone has the right to decide for someone other than themselves whether they live or die... i agree with your statement on this thing being murder, personally if she does die and medical care can be given and the DNR stopped it i would gladly charge both parents with indirect premeditated murder (life/death penalty) DNR's do not belong on ANYONE under the age of 16 heck if this were my world id say no one could have a DNR until they are 18 (legal adult) the only time i say a DNR can be made by someone else is if they are in a PVS for more than 6 months and are older than 30 years old...
i agree entirely!! giving a DNR to a person in these situations is like you're throwing them away!! it makes it seem like the family just doesn't want to be burdened anymore, so they're like, "hey! if she dies, we won't have to deal with it anymore!!"
personally if they dont want the burden of caring for her why dont i get my parents to adopt her my parents wouldnt need to do much aside from monitor us both medically and also i would have some love in my life... how could such a little cutie be a burden on someone... if i were her parent i would have not had her going to school but being homeschooled and i would have her on the couch with me as we do the schooling thing on the computer with my arm wrapped around her softly... it would be such a beautiful picture... very easy for me to imagine...
and now i am going to ask myself a question (feel free to answer yourself)
What would you do if your parents adopted her?
there would be a few things, first business must get done... i would shred that DNR into bits!! ! and then burn those bits!! ! and then i would take the ashes and flush them down the toilet! then i would go get the raw sewage containing the DNR bits and bury them in a nuclear reactor waste storage center... then comes the biggest part, i would be quite quick to grab her and kiss her all over and hug her and tell her that its not about physical function, life is about love and fun, life isnt even about knowledge or money to me... its just about love and fun... parents like hers deserve another type of DNR... a Do Not Reproduce order!! !
I would really enjoy having someone here with me all the time like that... especially someone with a disability like mine... the thing is we would be so huggy kissy touchy that i wouldnt be able to get anywhere near the computer to get on the forums and talk to you guys...
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and now i am going to ask myself a question (feel free to answer yourself)
What would you do if your parents adopted her?
there would be a few things, first business must get done... i would shred that DNR into bits!! ! and then burn those bits!! ! and then i would take the ashes and flush them down the toilet! then i would go get the raw sewage containing the DNR bits and bury them in a nuclear reactor waste storage center... then comes the biggest part, i would be quite quick to grab her and kiss her all over and hug her and tell her that its not about physical function, life is about love and fun, life isnt even about knowledge or money to me... its just about love and fun... parents like hers deserve another type of DNR... a Do Not Reproduce order!! !
I would really enjoy having someone here with me all the time like that... especially someone with a disability like mine... the thing is we would be so huggy kissy touchy that i wouldnt be able to get anywhere near the computer to get on the forums and talk to you guys...
if my parents adopted her, i'd be like, "yaaay!! a little sister!! ! just what i always wanted!! and i would definately love on her, too!! and, yes!! i'd most definately get rid of that DNR!! lol, that should be on a t-shirt... "parents that get Do Not Resuscitate orders for their kids should recieve Do Not Reproduce orders for themselves!!"
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Strapples
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and now i am going to ask myself a question (feel free to answer yourself)
What would you do if your parents adopted her?
there would be a few things, first business must get done... i would shred that DNR into bits!! ! and then burn those bits!! ! and then i would take the ashes and flush them down the toilet! then i would go get the raw sewage containing the DNR bits and bury them in a nuclear reactor waste storage center... then comes the biggest part, i would be quite quick to grab her and kiss her all over and hug her and tell her that its not about physical function, life is about love and fun, life isnt even about knowledge or money to me... its just about love and fun... parents like hers deserve another type of DNR... a Do Not Reproduce order!! !
I would really enjoy having someone here with me all the time like that... especially someone with a disability like mine... the thing is we would be so huggy kissy touchy that i wouldnt be able to get anywhere near the computer to get on the forums and talk to you guys...
if my parents adopted her, i'd be like, "yaaay!! a little sister!! ! just what i always wanted!! and i would definately love on her, too!! and, yes!! i'd most definately get rid of that DNR!! lol, that should be on a t-shirt... "parents that get Do Not Resuscitate orders for their kids should recieve Do Not Reproduce orders for themselves!!"
i would really be celebrating the adoption big time, especially since it would be someone physically like me! only problem with the adoption idea is id be all over her all the time i wouldnt get much else done... you would probably have to literally peel me off of her he he... thats how clingy id get because when someone like that would be living with me... my god how clingy i would get...
the first thing i would do after adoption is destroy that DNR in multiple ways...
and you know what i think i am going to put that "parents that get Do Not Resuscitate orders for their kids should recieve Do Not Reproduce orders for themselves!!" on t-shirts... why stop there coffee mugs too... thanks to cafepress.com ill get a design made sometime tomorrow and have the products up by midnight tomorrow night!
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and now i am going to ask myself a question (feel free to answer yourself)
What would you do if your parents adopted her?
there would be a few things, first business must get done... i would shred that DNR into bits!! ! and then burn those bits!! ! and then i would take the ashes and flush them down the toilet! then i would go get the raw sewage containing the DNR bits and bury them in a nuclear reactor waste storage center... then comes the biggest part, i would be quite quick to grab her and kiss her all over and hug her and tell her that its not about physical function, life is about love and fun, life isnt even about knowledge or money to me... its just about love and fun... parents like hers deserve another type of DNR... a Do Not Reproduce order!! !
I would really enjoy having someone here with me all the time like that... especially someone with a disability like mine... the thing is we would be so huggy kissy touchy that i wouldnt be able to get anywhere near the computer to get on the forums and talk to you guys...
if my parents adopted her, i'd be like, "yaaay!! a little sister!! ! just what i always wanted!! and i would definately love on her, too!! and, yes!! i'd most definately get rid of that DNR!! lol, that should be on a t-shirt... "parents that get Do Not Resuscitate orders for their kids should recieve Do Not Reproduce orders for themselves!!"
i would really be celebrating the adoption big time, especially since it would be someone physically like me! only problem with the adoption idea is id be all over her all the time i wouldnt get much else done... you would probably have to literally peel me off of her he he... thats how clingy id get because when someone like that would be living with me... my god how clingy i would get...
the first thing i would do after adoption is destroy that DNR in multiple ways...
and you know what i think i am going to put that "parents that get Do Not Resuscitate orders for their kids should recieve Do Not Reproduce orders for themselves!!" on t-shirts... why stop there coffee mugs too... thanks to cafepress.com ill get a design made sometime tomorrow and have the products up by midnight tomorrow night!
it would be nice to be allowed to be that clingy with someone.. i adore kids, but my mom is always saying how people will think i'm a pedofile if i love on them too much... wtf??! ! back to the sex thing again!! that would be awesome if those mugs became really popular...
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mmaestro
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Having read over a more detailed article on what's going on, I have to say that it seems like the parents agonized over this decision, and made it with the best interests of their daughter at heart. Her condition is such that she's not going to have a long life - she will die, probably fairly soon, and the question is really how long you extend that for, and with what degree of intervention. Prolonging a painful death benefits no one, and that is what the parents are trying to avoid. I completely understand their decision, and given it's been reviewed and approved by doctors, the school district, etc. I have to conclude it's been made with the best interests of the child at heart.
It's also worth noting that this is not a case where if she stops breathing she'll simply be left to die. There are some proceedures that the school will follow, they just won't resort to drastic means to prolong her life. They will also call out paramedics so that the parents can decide, depending on the situation, to resort to drastic measures if they feel it's in the child's best interests. From the Chicago Tribune article:
"The end result could still be the same, and you had the last few minutes with her as mad chaos, and her being whisked away in an ambulance," Beth Jones said. "We don't want that."
...
Beth Jones will be called first, then paramedics, who will be on standby at the school in case Katie's mother decides that she wants them to intervene. Meanwhile, Katie will be moved to a nurse's office, shielding her from other students.
School nurses will be allowed to use suction to ease Katie's breathing and give her oxygen with a mask. The child can be positioned in a way that makes it easier to breathe.
But they will not perform cardiopulmonary resuscitation or use a defibrillator. Nor will they intubate her, a procedure that puts a flexible plastic tube down the patient's throat to provide ventilation.
"We're not just standing by doing nothing," said Susan Hodgkinson, nursing coordinator for the Special Education District of Lake County. "We're providing supportive measures. But most importantly, we are there loving her."
Try to make her death as comfortable as possible, rather than a huge mess of frenzy, machines, and invasion. Certainly sounds like how I'd like to go out.
Strapples, I've got to say you've presented this whole thing in a horribly misleading and inaccurate way. I don't know if that was because of your own ignorance, or if you've simply got your own drum to beat, but the real story is really not very similar to the one you presented to us.
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Strapples
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Posts: 17,861
Location: Chicago Area IL (FAR FROM AUTISM SPEAKS)
It's also worth noting that this is not a case where if she stops breathing she'll simply be left to die. There are some proceedures that the school will follow, they just won't resort to drastic means to prolong her life. They will also call out paramedics so that the parents can decide, depending on the situation, to resort to drastic measures if they feel it's in the child's best interests. From the Chicago Tribune article:
"The end result could still be the same, and you had the last few minutes with her as mad chaos, and her being whisked away in an ambulance," Beth Jones said. "We don't want that."
...
Beth Jones will be called first, then paramedics, who will be on standby at the school in case Katie's mother decides that she wants them to intervene. Meanwhile, Katie will be moved to a nurse's office, shielding her from other students.
School nurses will be allowed to use suction to ease Katie's breathing and give her oxygen with a mask. The child can be positioned in a way that makes it easier to breathe.
But they will not perform cardiopulmonary resuscitation or use a defibrillator. Nor will they intubate her, a procedure that puts a flexible plastic tube down the patient's throat to provide ventilation.
"We're not just standing by doing nothing," said Susan Hodgkinson, nursing coordinator for the Special Education District of Lake County. "We're providing supportive measures. But most importantly, we are there loving her."
Try to make her death as comfortable as possible, rather than a huge mess of frenzy, machines, and invasion. Certainly sounds like how I'd like to go out.
Strapples, I've got to say you've presented this whole thing in a horribly misleading and inaccurate way. I don't know if that was because of your own ignorance, or if you've simply got your own drum to beat, but the real story is really not very similar to the one you presented to us.
i still continue to disagree... if she were my child i would want her to live no matter what... if theres pain that is what pain medications are for... but i would want her to be with me for as long as she could possibly be.
and i disagree with you that i was misleading and inaccurate... and i am not ignorant... please cease posting in my thread so as to not start a flame war!!
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mmaestro
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That can, at times, be a selfish attitude, though. I love my dog. It would be great if she'd live forever and, being responsible for her and having enough money, when she reaches the end of her life, I'll be able to keep her around for quite some time. But that doesn't answer the question of whether I ought to. All things come to an end, and that includes lives. Sometimes, it's time for our pets to go. And sometimes, it's time for people to go. We can use medical technology to keep them hanging on, in pain, unable to move or communicate or feel contact with anything, for a long long time when their body is clearly telling us that it's time for them to move on.
Pain medications are not 100% effective, and many conditions cannot be managed adequately with pain medication.
See above. We really ought not to consider what we want when thinking about medical intervention, but rather what is best for the patient. And sometimes that is to let them pass.
I don't intend to start a flame war, and my apologies if I offended. What I meant by ignorance is this: you presented things as fact which are not true. Here is what you said in your initial post:
And here is something from the news story:
...
Dave Jones and his wife, Beth, chose to create a Do Not Resuscitate order for Katie, in consultation with her doctor, as her health deteriorated due to cerebral palsy. The directive would give them some control over an otherwise uncontrollable disease, the doctor said.
I don't know much about cerebral palsy, and whether the quoted "deterioration" is purely because of that or some other complication, but the news story presents this as a degenerative case, as clearly her doctor believes it to be. That's diametrically opposed to what you said, you said it's not progressive. But her condition is worsening. And that changes the terms of the debate profoundly.
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Strapples
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Posts: 17,861
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That can, at times, be a selfish attitude, though. I love my dog. It would be great if she'd live forever and, being responsible for her and having enough money, when she reaches the end of her life, I'll be able to keep her around for quite some time. But that doesn't answer the question of whether I ought to. All things come to an end, and that includes lives. Sometimes, it's time for our pets to go. And sometimes, it's time for people to go. We can use medical technology to keep them hanging on, in pain, unable to move or communicate or feel contact with anything, for a long long time when their body is clearly telling us that it's time for them to move on.
Pain medications are not 100% effective, and many conditions cannot be managed adequately with pain medication.
See above. We really ought not to consider what we want when thinking about medical intervention, but rather what is best for the patient. And sometimes that is to let them pass.
I don't intend to start a flame war, and my apologies if I offended. What I meant by ignorance is this: you presented things as fact which are not true. Here is what you said in your initial post:
And here is something from the news story:
...
Dave Jones and his wife, Beth, chose to create a Do Not Resuscitate order for Katie, in consultation with her doctor, as her health deteriorated due to cerebral palsy. The directive would give them some control over an otherwise uncontrollable disease, the doctor said.
I don't know much about cerebral palsy, and whether the quoted "deterioration" is purely because of that or some other complication, but the news story presents this as a degenerative case, as clearly her doctor believes it to be. That's diametrically opposed to what you said, you said it's not progressive. But her condition is worsening. And that changes the terms of the debate profoundly.
then if it is progressing then it is NOT cerebral palsy... CEREBRAL PALSY IS A STATIC BRAIN DISORDER THAT DOES NOT CHANGE OR PROGRESS...
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mmaestro
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What did I ever do without Wikipedia? OK, I did a quick skim over CP stuff, and yes, you're right. But, secondary symptoms caused by muscles not being exercised, incorrect bone formation, etc. do occur, and those can progress. Speculating here, but as the article mentions that she's more susceptible to infection, barely able to move, has to be fed through a tube into her stomach (and being unable to ambulate yourself or feed yourself is a risk factor in having a significantly decreased life expectancy), it may simply be the case that complications make her life expectancy only another year or two. I don't know, I'm not her doctor - but neither are you.
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Strapples
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What did I ever do without Wikipedia? OK, I did a quick skim over CP stuff, and yes, you're right. But, secondary symptoms caused by muscles not being exercised, incorrect bone formation, etc. do occur, and those can progress. Speculating here, but as the article mentions that she's more susceptible to infection, barely able to move, has to be fed through a tube into her stomach (and being unable to ambulate yourself or feed yourself is a risk factor in having a significantly decreased life expectancy), it may simply be the case that complications make her life expectancy only another year or two. I don't know, I'm not her doctor - but neither are you.
well thank you very much... now your trying to say my life expectancy is going to be significantly lower because i cant move much for myself. and i soon will have to have a feeding tube... and soon wont be able to move at all in a matter of a few years... my girlfriend had the same thing as this girl... shes lived to be 16 and still living strong and healthy with major assistance. i am extremely suceptible to infection too, in fact i usually get more than 4 upper respiratory infections per year. and im still alive... incorrect bone formation can be corrected through proper orthoses... i believe these parents do not know all the arrays of therapies and treatments available for CP
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mmaestro
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I said nothing of the sort. I have no idea what your life expectancy is - I'm not your doctor, either. And, what I said was directly related to CP - a condition you said you don't have. I've made absolutely no judgement on your quality of life, prognosis, anything.
That seems unlikely. Their daughter is in a specialist school which looked to have a number of other kids with severe CP in the classroom, they have a specialist doctor, and it seems like they've spent a long time thinking about this decision - and it took over two years for the school district to accept it. You don't spend two years fighting for this sort of thing without having alternatives presented to you.
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Strapples
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Posts: 17,861
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I said nothing of the sort. I have no idea what your life expectancy is - I'm not your doctor, either. And, what I said was directly related to CP - a condition you said you don't have. I've made absolutely no judgement on your quality of life, prognosis, anything.
That seems unlikely. Their daughter is in a specialist school which looked to have a number of other kids with severe CP in the classroom, they have a specialist doctor, and it seems like they've spent a long time thinking about this decision - and it took over two years for the school district to accept it. You don't spend two years fighting for this sort of thing without having alternatives presented to you.
i have no comment... please let other thread visitors make comments... if you wish to comment again with a comment that has a better "respondability" rate please do so
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Strapples
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and now i am going to ask myself a question (feel free to answer yourself)
What would you do if your parents adopted her?
there would be a few things, first business must get done... i would shred that DNR into bits!! ! and then burn those bits!! ! and then i would take the ashes and flush them down the toilet! then i would go get the raw sewage containing the DNR bits and bury them in a nuclear reactor waste storage center... then comes the biggest part, i would be quite quick to grab her and kiss her all over and hug her and tell her that its not about physical function, life is about love and fun, life isnt even about knowledge or money to me... its just about love and fun... parents like hers deserve another type of DNR... a Do Not Reproduce order!! !
I would really enjoy having someone here with me all the time like that... especially someone with a disability like mine... the thing is we would be so huggy kissy touchy that i wouldnt be able to get anywhere near the computer to get on the forums and talk to you guys...
if my parents adopted her, i'd be like, "yaaay!! a little sister!! ! just what i always wanted!! and i would definately love on her, too!! and, yes!! i'd most definately get rid of that DNR!! lol, that should be on a t-shirt... "parents that get Do Not Resuscitate orders for their kids should recieve Do Not Reproduce orders for themselves!!"
i would really be celebrating the adoption big time, especially since it would be someone physically like me! only problem with the adoption idea is id be all over her all the time i wouldnt get much else done... you would probably have to literally peel me off of her he he... thats how clingy id get because when someone like that would be living with me... my god how clingy i would get...
the first thing i would do after adoption is destroy that DNR in multiple ways...
and you know what i think i am going to put that "parents that get Do Not Resuscitate orders for their kids should recieve Do Not Reproduce orders for themselves!!" on t-shirts... why stop there coffee mugs too... thanks to cafepress.com ill get a design made sometime tomorrow and have the products up by midnight tomorrow night!
it would be nice to be allowed to be that clingy with someone.. i adore kids, but my mom is always saying how people will think i'm a pedofile if i love on them too much... wtf??! ! back to the sex thing again!! that would be awesome if those mugs became really popular...
ugh... i cant stand the way people stereotype ANY type of love platonic or not as sexual... the only time i say love is sexual is when i see a guys USB connector go inside of a girls USB port. so i agree WTF!! !??? i am still working on designing those mugs! and i seriously will sell them!
the link to my cafepress store is below.
http://www.cafepress.com/cp_shop
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I find this very saddening.
Yes, we know that said girl has an uncurable disease, but still, it is in my opinion as someone who views life higher then anything, that she be allowed to live until she can no longer, and To Hell with the DNR. Tell the parents that they're UWTR and SNABTAS. That's just my opinion.
I think that if House were here, he'd make sure he could do whatever he could to fix her problem, because as much of a Horses ass he is, he's got a great heart, vicodin or no vicodin.
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