World Leaders need to listen - Obama Transition Team

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asplanet
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12 Jan 2009, 4:56 pm

World Leaders need to listen to Autism Community
"RAISE AWARENESS WORLD WIDE we need to show
the world that there is no boundaries for our children."

Its not a matter of just listening to the autism community, its truly wanting to know and understand and that takes time. Its also not just about autism, it has to include a huge list of many associated conditions, learning disorders, co-morbid conditions etc…. as Donna Williams says “the fruit salad mix” each and everyone of us are different with our own story, just like those of you not on the autism spectrum, we are just differently minded, have neurological differences…

Discovering what its like to live daily with a difference can take time, I often feel people are there own best judges, but it can take a while… to be honest the biggest misconceptions of people being on the autism spectrum is that we are all the same, we are not… in fact can be very diverse and different. So its not a matter of a simply check list, I wasn’t diagnosed with any think until in my late 40s, I have many co morbid, associated conditions. Autism is the center my core or as I like to say AUTISM HEART, the differently minded part, its not about any label, its about true identity.

I know only to well that others can only know what we tell them about ourselves. I am who I say I am and not what you say I am. When I was diagnosed not so long ago myself, I had no idea what the word Aspergers meant, now I feel one of my better discoveries in life as things started to make sense for the first time… but before that I had no idea myself, the autism frighten me like many and the wrong stereo type images, stigma would rush to mind and my perception was miles for what it’s really like. if you mentioned the word aspergers to me before I discovered self I would of had no idea what the word meant, so it is important that we all come together worldwide whatever our experience, as we all have our own unique story to share and we can all help RAISE AWARENESS WORLD WIDE, as it truly has no boundaries…

Before so many things never made sense to me, now I am beginning to make sense of things but that takes a while and I have found so many like myself and no longer feel alienated, the aspie/auite community have embraced me as one of their own and for the first time in my life I truly feel like I belong somewhere, but my journey continues and I have no idea where it will lead…

We all have to come together on this matter, I am more than happy to let you know just ask… I am still trying to figure those not on the autism spectrum and I thought I wasn’t for most of my life!

Recommendations for the Obama Transition Team
http://asplanet.info/index.php?option=c ... Itemid=127


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ruveyn
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13 Jan 2009, 6:19 pm

asplanet wrote:
World Leaders need to listen to Autism Community
"RAISE AWARENESS WORLD WIDE we need to show
the world that there is no boundaries for our children."

Its not a matter of just listening to the autism community, its truly wanting to know and understand and that takes time. Its also not just about autism, it has to include a huge list of many associated conditions, learning disorders, co-morbid conditions etc…. as Donna Williams says “the fruit salad mix” each and everyone of us are different with our own story, just like those of you not on the autism spectrum, we are just differently minded, have neurological differences…

Discovering what its like to live daily with a difference can take time, I often feel people are there own best judges, but it can take a while… to be honest the biggest misconceptions of people being on the autism spectrum is that we are all the same, we are not… in fact can be very diverse and different. So its not a matter of a simply check list, I wasn’t diagnosed with any think until in my late 40s, I have many co morbid, associated conditions. Autism is the center my core or as I like to say AUTISM HEART, the differently minded part, its not about any label, its about true identity.

I know only to well that others can only know what we tell them about ourselves. I am who I say I am and not what you say I am. When I was diagnosed not so long ago myself, I had no idea what the word Aspergers meant, now I feel one of my better discoveries in life as things started to make sense for the first time… but before that I had no idea myself, the autism frighten me like many and the wrong stereo type images, stigma would rush to mind and my perception was miles for what it’s really like. if you mentioned the word aspergers to me before I discovered self I would of had no idea what the word meant, so it is important that we all come together worldwide whatever our experience, as we all have our own unique story to share and we can all help RAISE AWARENESS WORLD WIDE, as it truly has no boundaries…

Before so many things never made sense to me, now I am beginning to make sense of things but that takes a while and I have found so many like myself and no longer feel alienated, the aspie/auite community have embraced me as one of their own and for the first time in my life I truly feel like I belong somewhere, but my journey continues and I have no idea where it will lead…

We all have to come together on this matter, I am more than happy to let you know just ask… I am still trying to figure those not on the autism spectrum and I thought I wasn’t for most of my life!

Recommendations for the Obama Transition Team
http://asplanet.info/index.php?option=c ... Itemid=127


High functioning Auties have to learn to look out for themselves. The most important thing they can do for themselves is learn to adapt to the world of the NT, because the Normals are not going to adapt to the ways and conditions of the Auties or the Aspies.

My advice: Learn to pass for human, if you can. I did. It took me 40 years, but I managed to do it.

ruveyn



asplanet
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13 Jan 2009, 6:54 pm

ruveyn wrote:
My advice: Learn to pass for human, if you can. I did. It took me 40 years, but I managed to do it.ruveyn


I think I have responded to you on another thread on this:

asplanet wrote:
ruveyn wrote:
If you live long enough to be an Old Aspie you might learn also to adapt to the NT world. I did. It took over 40 years but I have so much practice at it I do it from habit.


It took me over 40 years to find the aspie in me, I have had too much practice at pretending to be an NT, should be an actor really so good at it... but even when I did not know I was an aspie, you can play the part doesn't mean it feels right, still use to as in the Beatles song "Eleanor Rigby" "she wears a face she keeps in a jar by the door'....." - I feel like that a lot of the time.


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