Not sure how to trust my doc or any other medical person.

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KenM
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23 Sep 2009, 4:19 pm

Critical for them to figure out what other drugs they want to try and hook me on or what they are going to preach to me about next, instead of just accepting who I am. I got you.



tota
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23 Sep 2009, 4:42 pm

AH well that good worried you were another roschac baddass nutjob good to hear you're not.

You hit the edit button at the bottom right of you're posts you look at this thread signed in and you will see an edit button near you're posts bottom right.



Janissy
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23 Sep 2009, 4:46 pm

Critical to finding out if your blood sugar levels are changing over time. In other words, critical to finding out if the diabetes is getting worse and if so, how fast.

There isn't anything they can do to fix this. Literally all they can do is tell you how you can fix it. Their job isn't to accept or reject people. It's to assess what is wrong with a person's body and then do whatever is in their power to change it. Unfortunately, the only thing that is in their power is to give you insulin and advise you on lifestyle changes.So this is what they will continue to do for as long as you continue to go to them. To use your car metaphor, asking them to just accept that you won't do anything to help yourself is liking asking your mechanic to accept that you like to put butter in your gas tank along with the gas. He can't make you stop. He can only warn you that a car can't run on buttered gas and hope you stop on your own. But in the end it is your car. And it is your body. But expecting them to stop doing their job is pointless. They won't stop doing their job, even if what constitutes their job aggravates you.



KenM
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23 Sep 2009, 4:50 pm

How about if I tell them: "If you continue to tell me how to live my life through diet and exercise when I have continued to ask you to stop I will consider it harassment and take legal action."

Think they will stop then?

I don't consider Rorschach a nut job.



Janissy
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23 Sep 2009, 5:48 pm

KenM wrote:
How about if I tell them: "If you continue to tell me how to live my life through diet and exercise when I have continued to ask you to stop I will consider it harassment and take legal action."

Think they will stop then?

I don't consider Rorschach a nut job.


That would make them stop, yes. To be exact, what they will stop doing is seeing you as a patient. If you threaten to sue them for treating you as a patient, the most obvious thing for them to do is just not see you any more.

You are asking something impossible of them. You are asking them to treat you but simultaneously to not treat you. These two things are in conflict. You can't ask somebody to both do and not do something.



KenM
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23 Sep 2009, 6:06 pm

I feel they are treating me like a little kid. I have told them nicely to not waste time and tell me to diet or exercise. But they keep doing it. I told them I am open to other things for treatment. But when they keep telling me to change my diet and exercise when I have asked them to stop shows they do not respect me.



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23 Sep 2009, 6:32 pm

It doesn't show that they don't respect you. It shows that there is no other treatment. You are asking for something that doesn't exist. Diet and exercise is the treatment, alongside insulin. That's it. There's nothing else. There doesn't need to be anything else because those things work. There are no other options for them to offer you. That's why they haven't. They aren't witholding information or treatment. They've given you all they have to give.



KenM
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23 Sep 2009, 6:56 pm

I understand that is all there is. I am taking my insulin. But they keep telling me to do those other things after I have respectifully told them to stop mentioning them. You would think after two and half years that they would figure out that I was not trying to BS them, that I will not do them and they would stop trying. They have medical degrees, so I know they are smart. But looks to me like they are trying to push something onto me that they KNOW I will not try. So why don't they stop? If you tryed to get somneone to do something for two and half years even though that person told you there is no way they would do it, would'nt that be a pretty clear sign not to try to make them do it?

If there is no other treatment, fine. I accept that. But don't keep trying to push something on me when I know and they know I won't do it. Thats all I'm trying to say. Respect me enough to stop trying to push me to do things I refuse to do.

Basically I want an apointment with my doc or NP to go something like this:

NP: Hi Ken, how are your feeling, how are your sugar levels?

Me: Good, no big spikes or really low. Right around it needs to be, here are my readings from my meter so you can see. I feel good.

NP: Ok, sounds good, see you in 6 months or so.

No "Ken you HAVE to eat better, and work out more. if you don't you are not with the program."

What they have to get into there heads is that I am doing everything I am willing to do to control my diabetes. I am controling it with my shots. They want me to give up EVERYTHING that I like to eat or drink. (soda, I don't drink alchohol) and totally change my lifestyle by working out 24/ 7. I am not going to change my life over this. I have it under control with my insulin.



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27 Sep 2009, 10:55 pm

Multiple health related issues:

Diabetes, sleep apnea in need of tracheostomy but they won't do it for fear my weight will make it fatal, apnea causes memory lapses that make it difficult to remember medication & other self-help measures, addiction to cafeine and sugar to point I eat nothing else despite I hate it and am working 12 step program to give it up, unsuccessfully trying to get diagnosis and treatment for ADHD in hopes I can stop medicating ADHD with caffeine, trouble with blowing up when frustrated so doctors stop listening, in a wheelchair for curvature of the spine and nerve damage in my back that eliminates exercise, eligible for and need a new wheelchair with legs lifts because of blood clots in my legs that have gone to my lungs more than once.

Current doctor treats me as an imbecile (as confirmed by my professional advocate who can't get through to her either) and denied the wheelchair like I was making up the need. Getting a new doctor in November from the same clinic (only one that does in-home medical care) and plan to send him my MRI and blood clot hospitalization records before I even see him. But despite requests to work with this advocate who really listens and really cares the advocacy agency keeps sending me in with total strangers who are typically fresh out of college with no expericence. I meet them 5 seconds before the appointment when they have no idea what they're there for or what the issues are.

Then I have a case manager who wants to institutionalize me for not trying hard enough. If I get close to getting heard, she interferes with that-she's the source of my imbecile diagnosis - and says I can't manage my own medical decisions and has even managed to override my medical power of attorney until she just walked away from the whole thing. I got a Do Not Resuscitate order just out of fear I'd get rerouted to a nursing home or worse if I ended up in a hospital. I might get more of the help I need if I can stop getting frustrated over the lack of it and imploding from too many issues building up. Don't know how to not be angry anymore.

Many people admire me for my independence which is stronger than most NT women, I have a degree in mathematics with honors, have written an unpublished book, make extra money presenting speeches to audiences of 1500. I also know diabetic people in nursing homes who are constantly hospitalized because they get high sugar diets despite doctor orders and aspies in nursing homes who are constantly abused by staff and not heard, not to mention I would give up and die for lack of anything meaningful to do. I fail to see her point how that will help me live better. I have the legal right to fire her, but I have to get her permission that she agrees with that.

Wondering if I wouldn't live longer by refusing all medical and other care just from the lowered stress alone?



KenM
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28 Sep 2009, 8:10 pm

Well I got to talk to a patient avocate from the practice today. I told her my concerns about how I feel they are not respecting me when I ask them not to keep telling me to work out and eat better. She said that due to regulations, they are required to tell me all fourms of treatment everytime I come in. :roll: So becase diabetes is pretty much a perminate condition, I will hear it from them every time I go into them. Or they can get in trouble with the insurence billing and all that. Always comes down to money. So no matter how much I ask them to stop telling me that, that I am in my right mind and I know that those treatments will help me, I am fully aware of them but I will not do them, they will cram it down my throat and not respect me. Unless I sign a waiver, that they will keep on record. But the avocate said its up to the doc to allow that. So we will see.



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01 Oct 2009, 6:39 pm

KenM wrote:
Unless I sign a waiver, that they will keep on record.
Why wouldn't the doc allow that?

Have you looked for books in the local library about diabetes? I'm sure there's something that will tell you what you need to know and how it all works. That's a better way to learn anyway. For me, In-person lectures often go in one ear and out the other.

Has anyone read this one, and is it worth anything?
"How to Halt Diabetes in 25 Days" by Mike Adams
http://www.truthpublishing.com/haltdiab ... t21267.htm


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02 Oct 2009, 5:24 am

Tahitiii wrote:
"How to Halt Diabetes in 25 Days" by Mike Adams
http://www.truthpublishing.com/haltdiab ... t21267.htm

That has scam written all over it.

Fist they mention this groundbreaking study by UCLA without citing anything, then the rest is a tirade against Medical Science. Talk about wanting the cake and eating it (no pun ;)). The thing to do is to contact UCLA and if they can verify any of this.

I am more convinced that some people are never going to understand something beyond a certain complexity so they would rather accept an explanation that sounds good to them rather than a one based on science.



KenM
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02 Oct 2009, 7:35 am

Tahitiii wrote:
Why wouldn't the doc allow that?



The patient avacate I talked with says he may not allow it do to the health insurence. If they lose the waiver that I signed, the practice does not get the money from the insurence company.

But I did talk to the patient avacate again and she said there won't be an issue. Its documented right on my medical records that are electronic. They will just put a note in my file that I have been informed of that choice, many times and to please not mention that to me again.



KenM
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05 Oct 2009, 6:34 pm

I think I will be ok. The avocate said I should just see my doc, not any NP for awhile until I feel more comfortable. So I am going to go in with an open mind.



AngryJessman
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05 Oct 2009, 11:51 pm

i havent read the whole thread but i suggest you take the meds, you might just need a while of taking the needle in the arm so you dont feel like a drug or heroin addict, if its prescribed or whatever meds and not on the streets i really think you should consider taking it and man up about the drug addict thing, cos you need to do what you need to do to survive, stop trying to shine a negative light on your survival



KenM
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06 Oct 2009, 9:04 pm

I have gotten over the taking the shot and feeling like a druggie issue. So I am going to control it through my insluin.