Multiple health related issues:
Diabetes, sleep apnea in need of tracheostomy but they won't do it for fear my weight will make it fatal, apnea causes memory lapses that make it difficult to remember medication & other self-help measures, addiction to cafeine and sugar to point I eat nothing else despite I hate it and am working 12 step program to give it up, unsuccessfully trying to get diagnosis and treatment for ADHD in hopes I can stop medicating ADHD with caffeine, trouble with blowing up when frustrated so doctors stop listening, in a wheelchair for curvature of the spine and nerve damage in my back that eliminates exercise, eligible for and need a new wheelchair with legs lifts because of blood clots in my legs that have gone to my lungs more than once.
Current doctor treats me as an imbecile (as confirmed by my professional advocate who can't get through to her either) and denied the wheelchair like I was making up the need. Getting a new doctor in November from the same clinic (only one that does in-home medical care) and plan to send him my MRI and blood clot hospitalization records before I even see him. But despite requests to work with this advocate who really listens and really cares the advocacy agency keeps sending me in with total strangers who are typically fresh out of college with no expericence. I meet them 5 seconds before the appointment when they have no idea what they're there for or what the issues are.
Then I have a case manager who wants to institutionalize me for not trying hard enough. If I get close to getting heard, she interferes with that-she's the source of my imbecile diagnosis - and says I can't manage my own medical decisions and has even managed to override my medical power of attorney until she just walked away from the whole thing. I got a Do Not Resuscitate order just out of fear I'd get rerouted to a nursing home or worse if I ended up in a hospital. I might get more of the help I need if I can stop getting frustrated over the lack of it and imploding from too many issues building up. Don't know how to not be angry anymore.
Many people admire me for my independence which is stronger than most NT women, I have a degree in mathematics with honors, have written an unpublished book, make extra money presenting speeches to audiences of 1500. I also know diabetic people in nursing homes who are constantly hospitalized because they get high sugar diets despite doctor orders and aspies in nursing homes who are constantly abused by staff and not heard, not to mention I would give up and die for lack of anything meaningful to do. I fail to see her point how that will help me live better. I have the legal right to fire her, but I have to get her permission that she agrees with that.
Wondering if I wouldn't live longer by refusing all medical and other care just from the lowered stress alone?