Okay, this rant hasn't been posting, and I don't know why, but I'm going to break it in half and see what happens. I've been trying to get it to post for the past 20 minutes now, so I'd be delighted with any utterances of disgust that you'd like to offer in solidarity to either my rant or my frustrations with computers and internets and what-nots. (Yes, I do know it's not plural.)
I've been holding in an angry rant that just needs a place to go. Four days ago, I picked up a book that I'd been really excited to read. It was about Jane Austen and characters on the spectrum. This was particularly about Pride and Prejudice characters, and that happens to be my favorite book--one I've read countless times. I didn't have any qualms about reading this book--it was a Jessica Kingsley publication and Tony Attwood wrote a foreword. Naive newbie to the label, I thought ASD would be treated respectfully.
Well, I did not have to get very far before I was degraded, demeaned, and disgusted. If you don't want to be, don't read on.
"Having occasionally experienced dinner or house guests whom I now realize were on the spectrum, I can attest that most of those visits were exhausting and unsatisfying, especially if the ratio was skewed and more than one person with ASD was present. In response to the silent, monosyllabic ones everyone else tended at first to talk more or in a livelier way to try to entice them into conversation. Eventually, their limited responses, both verbally and even facially, extinguished the effort the others were putting forward. In contrast, when the guest with ASD was one who frequently launched into monologues, the eyes of the others glazed over or else developed a twitchiness as they watched for the slightest pause to enable them to return to a back-and-forth exchange between the entire group. Either way conversation was a problem rather than a pleasure."
Reading that meant that I was reminded that people have warned others against inviting me to their dinner parties for my entire life, and I was bombarded with flashbacks of trauma I would very much like to forget.
And later, I got to learn that:
"Besides the several dozen children officially diagnosed with ASD with whom I have worked professionally, I have grown to realize that I have encountered a similar or greater number of adults on the spectrum among those I have met in my varied communities and travels. Few of them have been formally diagnosed."
So basically, the woman just stripped herself of all credibility. She only knows about autistic children--admits to knowing few diagnosed adult autistics. Yet, miraculously, a degree in language speech pathology and some ridiculously fixed ideas as to what good conversation requires are all she needs to diagnose more than several dozens of adults with autism. No history, no appointment, just observation in a social setting.
She previously detailed all her "worldly" experiences (not nearly as varied as she'd like to think--Canadians and Australians of a similar socioeconomic status, most of them white). These experiences were supposed to be proof that she has come into contact with many, many different types of people in her lifetime. That and a knowledge of Pride and Prejudice made her qualified to write a book that Jessica Kingsley found worthy of publishing and Tony Attwood found worthy of promoting. Did either read it? I mean, in just the first pages, before chapter 1, she literally admits to knowing very few adults who are definitively on the spectrum, and the entire basis of the book is that she understands the behavior of scores of adults on the spectrum! I don't know what sort of authority she has in Canada, but in the United States, a language speech pathologist can have ten thousand clinical sessions with a client and still is not allowed to make a legal diagnosis of autism--can in fact be sued for trying.
To be continued momentarily:
_________________
HFA diagnosis in May 2019 (would have been AS pre DSM-V)
Complex PTSD, Depression, Anxiety
Last edited by mau_tie on 27 Sep 2019, 3:22 am, edited 1 time in total.