positive ways to cope with pain

Post Reply New Topic

lotusblossom,
have ever tried speech to text technology? there is a well respected program in that area called dragon: naturally speaking,which is used with a headset and every word that is spoken is turned into text onscreen,it can also control the computer using speech-am use something thats very similar but works in reverse-text to speech for communicating,so havent/cant use dragon,but do know a lot of dragon users on another forum-who use it because their physical disability makes it difficult for them to use a computer.

have just thought of it,because it would allow for more freedom-in sitting and moving.
heres a review of it: http://www3.pcpro.co.uk/reviews/221331/ ... ndard.html

also,if are interested in using a forum with others who have ank./spond. have got a link to a great supportive uk based forum for people with disabilities of all types,will pm the link if want [trying to keep troll numbers down on there so dont post it publically].


--Wheel chairs..
what are the things do not like the idea of about wheel chairs?
would one help right now?
even if it comes to getting a W/C,that would not make self any less of a person,its just a disability aid to make things more equal,like glasses,hearing aids,canes,ear defenders,mobility scooters,prosthetic leg/arm etc.
and also,if do have to get a w/c,and are able to recieve DLA for the A/S,could be able to get upgraded to high rate mobility component [if do not get it already],which means automatic access to a motability car and blue badge if either would help a lot with access issues.

if you're doing some kind of course is there any way you can get a free laptop on disability grounds? what sort of course is it?

as for pain, i know there's not much you can do. i've had a migraine most of the day and couldn't do anything at all just feels like my whole life is drifting away.

you are right, I am being prejudiced and having to get over my ego. I think it is quite painful to take on new identities even if we previously thought we were not prejediced sometimes things make us aware that we are. I just really suck as I dont like feeling disabled, but I guess that is societies prejudice that I am taking in and actually I should reject those ideas and be more embrasing of it. I found it was also very hard to take on the label of autism and found it made me feel very bad about myself. I obviously have to work on my attitude to disabilities. I am ashamed of my negative attitude.

my computer has died now (I am writing on my daughters) so I have asked my mum to get me a lap top which I think will solve alot of the issues. The main thing with ankylosing spondilitis is to keep moving so I think I should get out of the habit of spending a log time on the computer anyway.

I had a break through with painting a few days a go which rerally cheered me up. I put the painting on the kitchen surface and painted standing up and it worked real well with no pain.

please send me that forum link it would be very useful

Im doing an msc with the open university, I think they give computers and funding to undergraduates but nothing to post grad studies. I should be more proactive but I hate filling out forms and claiming things. I dont even claim disability benifts as I hate the medicals. The law is changing in the UK now and all people on income support are bing sent back to work, kinda like the uS welfare for work scheme. I think I will probably have to claim incapasity benefit or employment support allowance as it will be called. But I expect they will not let me study if I am on that as your not allowed to do that sort of thing and claim benefits.

Horror of horrors I might actually have to get a job

What have doctors told you?

the open university is a bit of a sore point with me, i tried a course with them but experienced pretty horrendous discrimination their idea of disability support is a few tick-boxes on a form, if you need anything more then all the departments are miles away and they don't understand a thing. i had a case where the council had threatened to completely withdraw my support, so needed all my energy and time to concentrate on fighting that, and i was worried sick on top, so the last thing i could concentrate on was an exam and an assignment. but the OU refused to listen at all (this despite support workers and social workers writing to them) they completely refused to let me submit work at a later date - even though they let other people do it for other illnesses. the tutor was very understanding and helpful (the OU didn't listen to him either), so i just left and went to the local university that the tutor works at!

the OU also messed up on the laptop they gave me, they gave me something way too low specification. thats messed up things for the place i'm at now who are having to get it upgraded. unfortunately they have to now use the company the OU used, who are just as badly organised and slow and it still isn't done!

i also worry about the changes to the benefit system, i know what it's like, feeling like there's some bureaucrat spying on you the whole time, ready to pounce on anything you do to twist into proof that you can do some sort of work. it is completely demoralising and i'm sure it's just making many people even more ill, certainly the worry has made me much worse. i've no idea what would happen if i was forced into work but it wouldn't be pretty, i have panic attacks about it now the annoying thing is, i'm sure given enough support and freedom from state interference i would probably be able to find my own way into productive employment. but with governments cracking the whip and breathing down my neck and causing me so much stress and worry i will never be able to get anywhere!

i hope you're feeling a bit better now and you had a nice christmas

Thanks DivaD!

My experiences with OU have been similar which is why I dont want to claim anything off them. They definately dont understand aspergers, I went to a summer school in July and had a terrible time but thats another story.

blooming benefits, I bet loads of people are getting stressed about it, its not fair.

I had a nice xmas and I hope you did too!

the doctors say to take medicine that I am not happy with taking.

They dont understand that it would cause me more stress worrying about the side effects than the benefit of the medicine.

I understand why they feel like that but it does not make me any more ok with taking drugs i dont agree with.

I follow the low starch diet which helps a lot but obviously does not help if I eat something starchy (I am greedy) and sometimes it does not help for no apparent reason.