Verbal Communications Differences and Difficulties Sticky

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ViatorRose
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17 May 2009, 4:51 pm

Thank you for the replies. I have decided not to send the letter as quoted in the posts previous to this one. I realised that what I objected to was a decision taken without my consultation, so it seems slightly hypocritical to then write about those staff members to someone else without addressing them directly- I would be doing what they did to me.

Instead, I have rewritten the letter to fit on one page of A4, cutting out the poor ship analogy and emphasizing the notion that it was unexpected (as opposed to forced) and addressed it directly to the two staff members involved. Also I have explained what I like about the workshop and the benefits of attending, so it seems to be a more mature and balanced letter and less like a spoilt child having a tantrum.

What I intend to do is hand a copy of the kinder revised version, in person, to both staff members before the workshop begins, with a polite request written on that they read it before any attempt to correct me on last week's conduct is made.

Rewriting it in a briefer and more positive way and giving it directly to the staff members involved seems now like the least destructive action to be preparing to take. By next week I hope I will be less afraid of entering into the dialogue that will inevitably ensue when they read it.

But I must ask, Lau: why did you assume I was wrong and invent a more plausible scenario? I can admit that it does seem unlikely that someone would suddenly change the rules, unprovoked, but this is honestly what happened and it did shock me to the point of devastation. However now that I have written a more sympathetic letter which does not set them up as bullies (or pirates!) it seems to be less of a battle that I have found myself part of. Though there is the distinct possibility that it will all spectacularly backfire. I will report back what happens as result on Wednesday if anyone is interested.



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17 May 2009, 5:30 pm

http://thiswayoflife.org/index.html

^ ViatorRose: I do care - that you are hurt is clear and with justification. In fact, after reading your letter I re-visited the link, URL above. You may wish to check out this link (there's quite a lot) and use this as reference for Wednesday.

Hope that helps.....good luck, and you're right in that, who knows how they'll interpret? In an ideal world, they would listen. I think getting another to LISTEN can be the hardest part. That's why I think an advocate whom you trust may be a good idea.


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lau
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18 May 2009, 6:08 am

ViatorRose wrote:
...
But I must ask, Lau: why did you assume I was wrong and invent a more plausible scenario? ...

I did neither.

What I did do was fail to see that my post could be misinterpreted.

My rewording was a poor attempt on my part to show what I thought could have been an acceptable way for them to approach you. What they did do was clearly wrong - in every way.

In light of your further posts, you are correct. Addressing your explanation of the problem to the people directly involved, as a first step, is the better way to proceed. You wish to educate them, not punish them.

You might add a hint to the letter, that they could pass on the message to any others who needed to be more sensitive. You are perfectly capable of making your own decisions, as to the level of support you do, or do not require at any given point.

Again, I apologise for the ambiguity of my earlier post. I had absolutely no intention to suggest your description of the incident was anything but the pure truth.


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30 May 2009, 7:40 pm

so i havent posted again in awhile due to being so busy and my arm been hurting ;ately, ive been more verbal past week its crazzy, i think its a fluke though, last week i was basically my only verbal communication was sounds, nothing changed though. i do notice if im stressed like today my aunt and uncle are here, ugh a change in schedule, im somehow more verbal, go figure. i noticed when im more upset or more unhappy, or more stressed im more verbal, its sooo weird, but when im happy and jus myself im less verbal idk what the heck happens in my brain lol.

i use text msging to get through to jim, which works good. i had to help out with a social group thing its called friday night fever for pre teens and teens on the spectrum also with cp and other developmental disorders, mostly spectrummers. it was fun one of the dads asked if i was one of the teens haha, when i usually help out though im more high functioning, i have my times where im really good at everything, it only lasts maybe 2-3hours then im shot the rest of the night. but there since we werent at the hospital instead at a bowling alley i disappeared, oh well. all of jims friends describe me as mid-low functioning, if you hang with me the whole day im moderate but like i said in my other pro, half the time i can be very high functioning or functioning enough, and the other half im mostly low functioning. Is anybody else like this? Either way im using more and more sign, which is great, i love sign, so much easier then my pecs though.

anyways hope all is well with everybody!


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Strapples
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21 Jun 2009, 11:07 pm

I use text messaging, an AAC system ( my computer and text to speecH) and also ASL (i really only know very few things, like i need the toilet and basic stuff like that)


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11 Jul 2009, 8:58 pm

Hi Strapples - new Dx, yes? I think you do very well. I have a NEO & now have Text-2-Speech but I prefer for other to read, limitations if with more than one. **

Since texting is really popular then being NV can be less noticable.

Sometimes I go through verbal phases, even almost chatty! But I don't trust my verbal very well; writing is safer. Sometimes when I must speak I can become very overwhelmed and cannot express the meaning - then I frustrate myself. The simplest things are not understood (by other).

** Question: There is much pressure for me to speak, such as presentations (academics). I have proposed to others (in academics, such as faculty) that I use Text-2-Speech so I'm not excluded. Just very unsure. Do you think others would rather HEAR a human reader then mechanized Text-2-Speech? Personally, I don't mind mechanized voice but apparently some do who are not accustomed to this sound - preference for human voice.


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11 Jul 2009, 8:59 pm

LabPet wrote:
Hi Strapples - new Dx, yes? I think you do very well. I have a NEO & now have Text-2-Speech but I prefer for other to read, limitations if with more than one. **

Since texting is really popular then being NV can be less noticable.

Sometimes I go through verbal phases, even almost chatty! But I don't trust my verbal very well; writing is safer. Sometimes when I must speak I can become very overwhelmed and cannot express the meaning - then I frustrate myself. The simplest things are not understood (by other).

** Question: There is much pressure for me to speak, such as presentations (academics). I have proposed to others (in academics, such as faculty) that I use Text-2-Speech so I'm not excluded. Just very unsure. Do you think others would rather HEAR a human reader then mechanized Text-2-Speech? Personally, I don't mind mechanized voice but apparently some do who are not accustomed to this sound - preference for human voice.


*cough* about your question

Steven Hawking holds hundreds of lectures a year using a mechanized voice and I have held 3. so GO ahEAD!


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11 Jul 2009, 9:03 pm

:D Thank you Strapples. I admire Stephen Hawking too but some are not too accepting of NV.


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11 Jul 2009, 9:05 pm

LabPet wrote:
:D Thank you Strapples. I admire Stephen Hawking too but some are not too accepting of NV.


THen they can burn in hell. a lot of famous people are nV due to disease. look at christopher reeve as another


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11 Jul 2009, 9:07 pm

:D Yes. And Lab Pet is the scientist. I have illuminated that 'they' don't need permission to use their voice so I ought to be allowed - then no limitations with just writing.

Strapples - We need to get a pic with you & Stephen Hawking's together! Really. Then post that on your site. You & Stephen could be a major feature! Have you thought about writing/communicating to him?


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Strapples
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11 Jul 2009, 9:28 pm

LabPet wrote:
:D Yes. And Lab Pet is the scientist. I have illuminated that 'they' don't need permission to use their voice so I ought to be allowed - then no limitations with just writing.

Strapples - We need to get a pic with you & Stephen Hawking's together! Really. Then post that on your site. You & Stephen could be a major feature! Have you thought about writing/communicating to him?


Me and stephen hawking would blaze through newspapers and headlines across the globe. I have tried but unfortunately never get replies :(


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11 Jul 2009, 9:32 pm

Well, keep trying. Maybe others can help with arrangements. I know S. Hawking's is elusive/busy but he would have 'people' who could get in touch with your 'people.' 8)

And you would be headlines for sure.


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11 Jul 2009, 9:45 pm

i cannot travel overseas and he does not travel here often and my make a wish credit is sitting here rotting away. thankfully i can use it any time. ugh...


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11 Jul 2009, 10:12 pm

Then Lab Pet will wish for you :star:


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SierraBell
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13 Aug 2009, 6:34 pm

:bounce: :cat: :jester: :alien: :ninja: :tongue: :nerdy:



:?: :?: :?: :?: :?: :?: :?: :?:



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14 Aug 2009, 7:13 pm

Why not? And appropriate for this forum.....listen to these two chat!

This one is especially for KingdomOfRats :cat:




[youtube]http://www.youtube.com/watch?v=z3U0udLH974&feature=channel_page[/youtube]


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