I am considering suicide

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neilson_wheels
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14 Nov 2015, 3:43 am

Hello Smudge,
What does your GP offer as treatment, is it a topical cream, and are you using it?
(I don't have eczema but am very sensitive to steroids.)
The doctor really should be making more effort to determine what the triggers are for you. Is it possible you can change to another GP?

It might be worth listing all the foods and any other triggers here. Someone might see a link that you have missed.

I would like to suggest that a new thread specifically about eczema could also help to get you some specific advice, and would be seen by more people.
Best wishes, NW.



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14 Nov 2015, 4:09 am

With your set of complaints - ASD, eczema, noise problems, digestion issues, and very bad depression - I wonder if you have a naturopath or integrative medicine clinic available to you? Those are becoming more common in the US with more insurance plans including them. I'm sorry I know next to nothing about the UK system.

As for hormones... I'm starting to read more and more about hormone disruptors, which come principally from plastics but also from additives in our soaps, lotions, toothpastes etc. These are suspected of causing cancer, but they could also potentially cause the set of problems you are having. My household is slowly getting rid of as many of these sources as we can, it's a lifestyle change.

It's a pity you live in London, as the countryside would likely be more healthful (and quiet) for you. I'm sorry, this is not helpful - my main suggestion was about integrative medicine.


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14 Nov 2015, 4:15 am

I don't see how the doctors can refuse to do the allergy tests you asked for. That just isn't right. What else are medical professionals for?

Take it one step at a time and investigate all your options regarding treatment. I came close to tears when I read this thread and realized how much we really need each other for support. So glad you are felling a bit better emotionally than when you started this thread.

We all like you here and you post intelligent, thoughtful and amusing stuff which contributes well to WP and brightens someone's day.

Is there any way you could write a strong but tactful note to the door slamming old lady if you cannot speak to her, explaining that you have sensory issues. If she is at all reasonable (as some people indeed are even NTs) she won't take offence.


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smudge
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14 Nov 2015, 8:21 am

AR1500 wrote:
smudge wrote:
I don't know what my GP is capable of. Their blood tests seem very limited. I was told they could only test for folate, iron, and B12 levels vitaminwise, for instance.

They outright refuse to give me allergy testing, I think there must be a severe shortage or something in the UK. I've asked for tests for years.



What on Earth is bloody wrong the UK healthcare system? Because I honestly wonder if your depression and your eczema might be linked by something biochemical which is affecting your mood as well as your skin.


I don't know if they're linked. I've had noisy neighbours for a year, and it's continuing, not as frequent, but a lot louder than before. That and having bad skin is enough to drive anyone to the edge. It's sensory Hell.

The closest I've come to understanding myself is having a lack of progesterone leading to a lack of antidiuretic hormone. It would explain why I have excessively dry skin and why even though I'm drinking 3l of water a day my body is not absorbing it. I am thirsty almost all the time, especially when my skin is worse. There is something wrong with me and my health is deteriorating the more time passes. I'm reacting to more and more foods.

I have bruises that haven't healed in months either. The dermatologist told me that was normal. I think she is bullshitting.

Yes, the NHS is f****d up. They don't give a damn.

Will add this also - blood pressure has always been on low end of normal, folate and b12 levels are *just* OK, and my iron levels are low. They won't test for anything else unless I go private which is what I'm planning to do.

Does anyone here think I should see someone who deals with hormones, or an immunologist? I can only see one or the other. Which would be more helpful? A lot of allergy tests apparently aren't that good, but I need someone to test ALL my vitamin levels and my hormones.


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Last edited by smudge on 14 Nov 2015, 9:26 am, edited 1 time in total.

smudge
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14 Nov 2015, 8:27 am

BeaArthur wrote:
With your set of complaints - ASD, eczema, noise problems, digestion issues, and very bad depression - I wonder if you have a naturopath or integrative medicine clinic available to you? Those are becoming more common in the US with more insurance plans including them. I'm sorry I know next to nothing about the UK system.


Been there, done that. She was terrible. Told me it was candida overgrowth and gave me one herbal antifungal to get rid of my skin condition. It didn't do a damned thing. She also said I could have nuts, eggs etc as part of this special diet to go on, and my skin remained the same. I found out later I now react to nuts and eggs. She kept forgetting what I was reacting to and sent me recipes which included them.

I'm almost certain candida isn't the issue here, because my skin reacts to non-sugary things too. I read naturopaths in general have an obsession with candida. Thanks for the suggestion though. Indeed I did get a particularly bad naturopath, I think. I spoke to another though and she said it was candida too..


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14 Nov 2015, 8:29 am

Probably an immunologist would be best.



Waterfalls
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14 Nov 2015, 8:42 am

This sounds so obvious, but have you tried typing into a search engine "treatment for (list of symptoms)?

I have done that and the search engine if I look down far enough gives me information. I don't know what will help you, but I have pulled up vitamin c, biotin, and b12 among other things for dry skin, if you haven't searched and read through the results on a couple of pages of results it definitely might be worthwhile since it sounds like very slow going finding a knowledgeable professional. Many vitamin supplements are readily available not that this is as good as a good professional, just a start.



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14 Nov 2015, 8:47 am

Also I think they'd refer you to a nutritionist or dietician for the difficulty eating, and I think you wrote you lost weight? That isn't quite probably enough but might be a start and perhaps the consult and maybe any supplements might even be paid for that way.



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14 Nov 2015, 8:59 am

My daughter has eczema. She used to get it on her scalp and behind her ears, it was difficult of course because it was easy to agitate and she was a little one. Well she used to take Aveeno eczema baby baths, then I read the ingredients and that stuff is just ground up oatmeal. So I got a coffee grinder at good will and a tub of oatmeal for the same price. We do meal supplement shakes as well as daily vitamins too. I used to get ensure, but in the sports nutrition section you can get muscle milk for half as much.

I hope that's helpful and I hope you start doing better.


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14 Nov 2015, 9:05 am

I agree, I think an immunologist too.

I've done that. It just suggests all the normal vitamins. I took this supplemental regime for a couple of months (see bottom of page):
http://www.softress.com/eczema_information.php

And the amount of zinc had an unwanted side effect, so I stopped the plan immediately. Some say that excess vitamin D will make the condition worse too. I honestly don't know, there is a lot of contradicting information out there. I will say, the plan didn't make much difference. The zinc made me very hot so I took copper to counteract it. I'm not too hot anymore. I get hot flushes though, especially at night, when my skin flares up.


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14 Nov 2015, 9:08 am

SippingSpiderVenom wrote:
My daughter has eczema. She used to get it on her scalp and behind her ears, it was difficult of course because it was easy to agitate and she was a little one. Well she used to take Aveeno eczema baby baths, then I read the ingredients and that stuff is just ground up oatmeal. So I got a coffee grinder at good will and a tub of oatmeal for the same price. We do meal supplement shakes as well as daily vitamins too. I used to get ensure, but in the sports nutrition section you can get muscle milk for half as much.

I hope that's helpful and I hope you start doing better.


1) I can't have dairy

2) Anything with even a tiny amount of sugar makes my skin a lot worse. Even sweeteners dries my skin out (no rash though from sweeteners)

..How do you use the ground up oatmeal? Thanks.


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14 Nov 2015, 9:34 am

smudge wrote:
SippingSpiderVenom wrote:
My daughter has eczema. She used to get it on her scalp and behind her ears, it was difficult of course because it was easy to agitate and she was a little one. Well she used to take Aveeno eczema baby baths, then I read the ingredients and that stuff is just ground up oatmeal. So I got a coffee grinder at good will and a tub of oatmeal for the same price. We do meal supplement shakes as well as daily vitamins too. I used to get ensure, but in the sports nutrition section you can get muscle milk for half as much.

I hope that's helpful and I hope you start doing better.


1) I can't have dairy

2) Anything with even a tiny amount of sugar makes my skin a lot worse. Even sweeteners dries my skin out (no rash though from sweeteners)

..How do you use the ground up oatmeal? Thanks.


Sounds like we react to a lot of the same things.

The staple of my diet is beans and rice. Kidney beans, black beans, white beans, and lentils.

I'm able to supplement with fruits too, to a certain extent. Tart apples work very well. Like granny smith apples. Banans too in moderation. Too much gives me constipation.

Would you be willing to try to limit your diet to something like that for a couple of days?

Try for a couple of days to have rice and beans with crushed tomatoes as sauce. It's very, very mild and my stomache doesn't react to it at all.

Then supplement with fruits and vegetables. See what you react to. When you start from the bottom with very mild foods and then gradually build from that, it becomes much easier to detect the offending food that causes the reaction.

Sorry if I come across as pushing this, but it works very well for me. It keeps the eczema under control and I feel less "inflamed" in the body so to speak.

Also, I would recommend you get that vitamin D checked. It plays a significant role in skin health.



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14 Nov 2015, 9:48 am

I am not a nutritionist. So have no professional expertise about this.

I do know that in the past there was a time I did not eat well and got very sick from that. Getting protein in and just making myself eat and time made that better. I'm not comparing though and have never had excema.


Here is a link, not great, there's not a lot. I have found this site informational in general.

https://umm.edu/health/medical/altmed/s ... n-h-biotin

There isn't a lot of good information, but when I looked for me into dry skin issues discovered that regular supplements usually don't have the 250 micrograms recommended for skin/hair/nail dryness and cracking issues.



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14 Nov 2015, 9:52 am

I said above I was living on rice, vegetables and beef, lol (arggghhhhhhhhhhhh). Of course I've cut those things out. But yes, I get we react to similar things. I react to lentils too, though. I will give the tart apples thing a try, thanks.

I've tried Biotin too, in 10mg. It made my skin a bit worse.

Perhaps no more suggestions from people. There's one thankful side of me and another in despair.


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Waterfalls
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14 Nov 2015, 10:06 am

I think I am confused. What type of responses would you like?



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14 Nov 2015, 10:15 am

oatmeal in bath, or tar-soap
used to use them for my son when he was terrible,terrible itchy and irritated , it worked well