Am i the only one who thinks living with autism is Hell?

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FAKE NEWS!

You are the single biggest poster here that likes to say I'm lying, perpetuating a hoax, or am a snake oil salesman despite the fact that I've never offered anything for sale - only offered the story of my personal experiences. The fact that my symptoms were textbook & strong, I did this thing & that process, and it alleviates these textbook symptoms. That's it that's all, but you like to call me names for it & suggest I'm not being transparent and truthful with what I say despite the fact that you have Zero reason nor evidence to the contrary. Basically, you're rude af towards me, but I tolerate it because I know you're socially impaired enough that you believe making friends is an impossibility for you.

The OP is right. Only people with mild autism like me are okay with it. People with severe autism and their parents who are stuck taking care of them are in a never-ending nightmare and their whole lives suck.

There, is everyone happy now?

No I believe that you believe wholeheartedly in your home-made autism treatment.

The problem with your presentation is that it's extremely unappealing because of the way you present yourself. And then you write off how you appear to others here as being their problem not yours.

Not sure I fully understand the exchange going on above but I can think of at least several friends from grade school, high school, etc. who hadn't seen me in a while and said 'wow - you really conquered it'. Not so much.

There are symptoms that can cause people to be really socially abrasive, whether it's moral eccentricities, rigid routine, need to hold a captive audience to lecture to them on topics they could care less about, etc.. There are also the people who are, to the best of my reckoning, more on the ultra-light end of the autistic spectrum who may have had some ASD traits as kids (my case was PDD-NOS dx in 1991 with AS traits) where the social-blindness isn't as thick, you can tell what's going on pretty quickly in terms of what's working and what isn't, you can tell what kind of behavior is rewarded and what isn't, and for all of that awareness it simply isn't enough.

I found out the hard way in my early 20's that one might call practical conformity, ie. making sense or being conversationally or socially on-point, isn't nearly enough but rather it's something like the bare-minimum bar of entry and past that point most attempts at logical road map get garbled. You'll be chastised for even just having wiring that proceeds logically but maybe causes you to add something - on topic - to a conversation that the rest of the participants wouldn't have thought to. I eventually had to compare my constant need to pre-filter everything I said and manually review it to see if it sounded hoi polloi enough rather than analytical or observant, to the kinds of people who might be center of the bell-curve on intellect who can thoughtlessly say blue-sky things and they don't get a single complaint, and it got to be really clear to me that having good rote social skills barely scratches the surface.

One of my biggest complaints about getting dx'd in the early 90's, aside from dealing with some doctors who reminded me of the bunch from 12 Monkeys (weirdos...) was being told that there was this wonderful roadmap of achievement out of ASD - ie. this nice little row of milestones like having x many friends, doing edgy things, and perhaps the capstone on that row of milestones - having a girlfriend. I have to hope that's gone by the wayside in the last couple decades because there were two things incredibly wrong with it. The first and most obvious is it takes an incredibly complex world, filled with people of all levels of trustworthiness, a whole grab-bag of evolutionary game-theory and zero-sum destructive social competition games, and attempts to explain it like a simple board game where if you haven't won it you either aren't showering, aren't brushing your teeth, or haven't figured out that unzipping your pants and chasing women around with your willy isn't a smooth way to break the ice. I've known so many high IQ NT's with absolutely stellar social skills, no trouble in the looks department, and either couldn't find partners or didn't find them until well into their 20's because their minds were too far past everyone else's - how well do they fit on that board game map? The second thing was this absolutely pernicious idea that everyone else had social skills, I didn't, and I had to trust the judgment of other people over my own. That's the precise recipe for making a wall-flower, push-over, or floor-mat out of someone and especially for guys that's guaranteeing failure and strangely enough you need a degree of what the big 5 would call disagreeableness to be well respected as a guy, it is that but a different format and style that ASD tends to offer.


My apologies if that got long-winded but what I wanted to underscore is that to even overcome the markers of 'difference' and gaining traction with the world you live in are still two very different things and if you're able to pass as socially normal, or have even done such a good job of re-engineering yourself that you can appear mostly normal without constant effort, that's great but it's still so many miles from having wiped one's personal map of ASD or having 'overcome' it. In certain ways it can be a job well done but in other ways the horror really gets to set in that if you're truly different there's no logical answer to fixing it and when it comes to trying to perfectly replicate the second, third, fourth, etc. order consequences of beliefs other people have that you don't hold, let alone a wiring schema you don't have, it's impossible to fake under any realistic degree of scrutiny.

Last edited by techstepgenr8tion on 04 May 2018, 9:34 pm, edited 3 times in total.

I believe it because I know it's fact. I share it as it is because it's the truth.

I've been on these forums longer than I've known how to treat my symptoms. A recent resurrected thread about probiotics even had a vintage post of mine from 2013 where I said I didn't think probiotics had anything to do with ASD. Oh how times change with new information.

I'm literally one of you, same syndrome, same complaints and symptoms right up until I learned & did new things that treated them. I experienced the difference that medicine makes, and shared here with the group what I did & what it did to my symptoms and the responses I've received from you and others here over the last 5 years are pretty overwhelmingly negative.

It's very weird, tbh. Try putting yourself in my shoes for a moment. You have textbook symptoms completely ruining your life, you learn how to treat them and do it, you share it with others it may help, and the response is "you're lying!" "this is a hoax!" "you're a snake oil salesman!" and I bet you'd do the same " *blink* ummmm, hello? " as I've been doing for the last 5 years or so.

Now take into consideration the research that's been done over the last 5 years, the fact that some research teams are looking to the intestines as root causes of ASD, and that probiotics are being used to successfully treat ASD symptoms in mice. All of these things are happening 100% independently of me and what I learned & shared on these forums with a group of similarly afflicted people that the information could be life changing for. These are not my medical studies. I'm not involved with them. I have not financed them. I haven't provided nor been asked for my input on them. They're research studies happening because that's where science is now leading doctors to figure out this puzzle and how to treat it. Science will explain it all and come to conclusions and explanations for everything I've transparently shared about what I learned more than 5 years ago because that is what is causing these symptoms in people & this is how you can treat it.

I'll continue beating my same drum of truth regardless of whether or not you believe me doesn't matter - it doesn't change the truth one bit.

The responses are negative because of how you come off. Which you've been told this over and over again. And instead of considering there might be a problem with how you present yourself, you argue against it. Until you overcome this problem, you're going to keep getting the same negative reactions.




It seems unrealistic to others because of the way you present it and especially yourself.

Feel free to elaborate and explain yourself instead of vaguely saying you have a problem with how I share information or present myself. It doesn't help get your point across to me if you don't say what you're talking about.

You've had it all laid out to you in spades many times already by several people here.

This is the problem with self evaluation. I was once successfully treated for generalized anxiety disorder. And I felt so great eventually. So much more confident, outgoing and adventurous and certain autism traits were suppressed. What could be wrong with that?

The thing is though from everyone else's observation I had become aggressive and reckless. There was nothing good about it. If at that time I had been running around saying "you gotta try this stuff It's amazing" people would be saying "uh no thank you".

No, it was a real question. You haven’t said what you don’t like about how I present myself, only that you don’t like it, and that isn’t helpful.

I don’t play some troll character on these forums. I am my authentic self. What’s your specific issue with me?

5+ years on and you still don’t comprehend my message. Textbook ASD symptoms hindered my entire life to the nth degree. I couldn’t work/play/live. I figured out how to treat it, did it, and shared the results here with the people who’s lives this knowledge can help the most. Other people like me. Now textbook ASD symptoms remain controlled well enough that I can work/play/live and be more socially connected than ever. The same will hold true for the next 5 years, the 5 after that, and the rest of my life. My story is never going to change because it’s the truth whether you ever come around to believing me or not.

Lets see you said:



You have been told many times by several people, that I have seen with my own eyes, what the problem is. And you are aware of what they have said according to your statement above. People are "calling you names" and dismissing what you say, because of how you act, not because they are "in love with their autism".



That's great, you discovered something that works for you. Just like Jason Lu (eikoniabridge) discovered something that has worked wonders for his autism for years. And Danny Reede discovered something that has worked wonders for his autism for years. And I'm sure there are countless others who have discovered something that's worked wonders for their autism for years.

That's all I'm going to say about this, because I've said all of this already before.

Blah blah blah, you’ve said you don’t believe me countless times & I’ve maintained that just because you don’t believe me, that doesn’t make me a liar.

Same same.

I just said above that you discovered something that works for you. Although you seem to still have significant TOM issues that prevent you from realizing how you come across to others. You also seem to have a problem differentiating between what you imagine is real or the truth from reality. But that wouldn't make you a liar. It would just mean that you have cognitive impairments congruent with autism.

Like I said, I figured out how to treat AS and you don’t believe me. We’ve been over this before.

Yes we have been over it before. I have said I believe you discovered something that treats certain aspects of your AS - which you interpret calling you a liar.

Yeah yeah, I said I get it. You still don’t believe me.

I really feel like I'm being trolled at this point.