Not sure how to trust my doc or any other medical person.

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Tahitiii
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21 Sep 2009, 4:01 pm

KenM wrote:
When something goes wrong with my car, I bring it to my mechanic and he fixes it. When there is something wrong with me, I want to go to my doc and he fixes it. No coming in for blood work every 3 months, no being told how to live my life and all that. Then after he fixes me I go on my way until I need to be cured again.
That would be so nice. Too bad it doesn't work that way.

The doc would be right if he tried to educate you. These are your choices... take it or leave it... It's all in the attitude. While a doctor has more scientific information (I hope), his values are no more valid than yours and he is no more qualified to make a decision than you are. He is actually less qualified, since it's your body. No one can make value judgments for you.

Did I mention my father's triple-bypass? He said that it wasn't worth it. He wasn't afraid of dying, he just didn't like living with that kind of pain. No one attempted to educate him, so he didn't know what he was getting himself into. He died maybe a half-year later. A half year of discomfort, wasted. At the taxpayer's expense.

Even with transplants, they rarely work for long. It's mostly a lot of physical pain, trouble and expense for very little return. If I were in a position to receive something like that, I doubt that I would bother. Especially when you're older, it's probably not worth it.

If you don't agree with his highness, it can only be because you are stupid and too incompetent to make your own choices. Sometimes the respect is so rock-bottom that they actually lie and try to trick you into doing something "for your own good." We do have laws, but good luck trying to enforce them. If you could take a friend to your appointments, that might help. They tend to show a little more respect when you have a witness.

If you could name a religion that addressed the issue, they would back off. But a lowly crip is not allowed to have an independant thought. (Shame on you for having non-standard feelings and opinions.)


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KenM
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21 Sep 2009, 5:15 pm

When I came down with my dietbetes, I did ask my doc about options. He told me there were no option I have to do what they saw or I'll die. I thought that was a bit extreme. Plus with my AS I took that literaly. They know I have AS and I think they use that against me.



KenM
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21 Sep 2009, 6:48 pm

One other thing about people telling me its a quailty of life matter. I look at it this way: I can either:

1. Do everything my doctor tells me to, totally change my diet and eat just the stuff they think is healthy for me, live longer and be totally miserable because I'm not able to eat or spend as much time doing the things I love.

2. Keep eating and doing the things I love when I can, for as long as i can. I might not be here as long but i would be happy.

What option to you sounds like the better quaility of life?



Janissy
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22 Sep 2009, 8:33 am

Option 1) is better quality of life. In option 2), blindness and gangrene followed by foot/leg amputation frequently precede death. Those things would be a lot more miserable than a healthy diet.



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22 Sep 2009, 9:18 am

Janissy wrote:
Option 1) is better quality of life. In option 2), blindness and gangrene followed by foot/leg amputation frequently precede death. Those things would be a lot more miserable than a healthy diet.

Let's not forget chronic renal failure too! Without a kidney transplant you will have to undergo dialysis which means even more extensive bloodwork (hours) nearly every day, and without it you'd die in a matter of days.


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Stinkypuppy
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22 Sep 2009, 9:32 am

KenM wrote:
When I came down with my dietbetes, I did ask my doc about options. He told me there were no option I have to do what they saw or I'll die. I thought that was a bit extreme. Plus with my AS I took that literaly. They know I have AS and I think they use that against me.

No, KenM, this isn't extreme at all, and it's actually good that you took that literally. You're supposed to. With diabetes, you exercise and change your diet, or do the drugs. Or you die. That's seriously all there is to it. If you don't believe it, then really what do you think your other options are?


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22 Sep 2009, 9:35 am

Stinkypuppy wrote:
KenM wrote:
When I came down with my dietbetes, I did ask my doc about options. He told me there were no option I have to do what they saw or I'll die. I thought that was a bit extreme. Plus with my AS I took that literaly. They know I have AS and I think they use that against me.

No, KenM, this isn't extreme at all, and it's actually good that you took that literally. You're supposed to. With diabetes, you exercise and change your diet, or do the drugs. Or you die. That's seriously all there is to it. If you don't believe it, then really what do you think your other options are?


QFT!

Hope you feel better soon Ken, don't expect the doctors to make it happen though.



KenM
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22 Sep 2009, 3:39 pm

Janissy wrote:
Option 1) is better quality of life. In option 2), blindness and gangrene followed by foot/leg amputation frequently precede death. Those things would be a lot more miserable than a healthy diet.


So eating stuff I totally hate and being miserable and taking it out on everyone around me beacuse I was forced into it is a much better way of life?

Where do I sign up? :roll:

So I loose a foot, after that it won't matter aboyut my diet it will be too late. Then maybe my doc and them will lay off with preaching to me and trying to control every aspect of my life and judging me. if loosing a foot what I have to do to get my doc and NP to SHUT UP AND STOP PREACHING TO ME then so be it.

I have not stoped taking my shot, I just take my shot and still eat what I want, I am on my feet at work all day. I'm not going to exercise when I'm not at work. My doc and NP are trying to get me to totally change my life. I will not. I don't tell them how to run there life, they need to respect me the same way.



KenM
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22 Sep 2009, 3:42 pm

Stinkypuppy wrote:
and without it you'd die in a matter of days.


You mean I'd be off this screwed up world and not have to worry about it anymore? Sounds good to me.



KenM
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22 Sep 2009, 3:58 pm

Stinkypuppy wrote:
If you don't believe it, then really what do you think your other options are?



I don't know what my other options are, or what will happen if i don't do what my doc wants. I have asked him what my options are, he says there are no options, just bad things will happen if I don't do it. Then I ask him what bad things, I ask him to be clear, but he never says spefically what when I ask him to tell me. I think he can't say excatly due to insurence issues or something.



Janissy
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22 Sep 2009, 4:15 pm

Quote:
KenM wrote:
Janissy wrote:
Option 1) is better quality of life. In option 2), blindness and gangrene followed by foot/leg amputation frequently precede death. Those things would be a lot more miserable than a healthy diet.


So eating stuff I totally hate and being miserable and taking it out on everyone around me beacuse I was forced into it is a much better way of life?

Where do I sign up? :roll:


It's a better way of life than blindness, a wheelchair and dialysis. You sign up at the produce section of the grocery store.

Quote:
So I loose a foot, after that it won't matter aboyut my diet it will be too late. Then maybe my doc and them will lay off with preaching to me and trying to control every aspect of my life and judging me. if loosing a foot what I have to do to get my doc and NP to SHUT UP AND STOP PREACHING TO ME then so be it.

I have not stoped taking my shot, I just take my shot and still eat what I want, I am on my feet at work all day. I'm not going to exercise when I'm not at work. My doc and NP are trying to get me to totally change my life. I will not. I don't tell them how to run there life, they need to respect me the same way.


Your doctor will stop preaching to you when you stop going to him. It is his job to do this. If he doesn't do this, he is a bad doctor. He can't fix you. You have to fix yourself. This is the Haven but this is actually support. Nobody here wants you to be blind and footless.



KenM
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22 Sep 2009, 4:48 pm

When I keep telling my doc to stop telling me to do these things, I will not do them, he is wasting his time, but he keeps telling me to do these things, it shows he does not respect me as a person. I'm 40 not a kid.



KenM
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23 Sep 2009, 4:55 am

I am going to see if I can talk to my doc and NP at the same time and ask them for my options. There are some things i will not do and they have to understand that and not keep telling me I have to.



tota
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23 Sep 2009, 12:29 pm

Why is Rorschach you're avatar?
Did you seriously give them 5 year old blood to run tests on?

Okay what WILL you do? you won't take medication, eat right, or exercise. So what WOULD you do?

Also you know you can edit you're posts right? you could just combine those three posts into one there to close together to be bumps.

The girl who did you're bloodwork sounds a bit bitchy, But she may not have been able to just pull the needle out and stick it somewhere else. But probably just didn't care that much.



KenM
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23 Sep 2009, 4:03 pm

Why is he my avatar? Because he is the character I most relate to in one of my favorite stories. I won't get into it here becaue it will hijack the thread. But its not because he is a bad ass.

I don't know how to edit my threads together or quote multiple threads in the same message.

I did say in a post that I am taking my shot. But I will not change my diet or exercise more then I have to at work. My doc and NP always want me to do more, anything I do is never good enough for them. They will not accept I have limits to what i will do and are trying to force them to change my life.

No, I don't give them 5 YO tests to go by. But every time I go in to them they are always asking for more bloodwork. Why the heck can't they go by my llast set? They are the all powerful medical people with god complex's, they can do anything.

I have gotten shots/ bloodwork done enough to know that when the person gives the shot and they see me in pain that they pull the needle out and try a different spot. This women did'nt.



Janissy
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23 Sep 2009, 4:13 pm

KenM wrote:

No, I don't give them 5 YO tests to go by. But every time I go in to them they are always asking for more bloodwork. Why the heck can't they go by my llast set? They are the all powerful medical people with god complex's, they can do anything.

.


They can't go by your last set because what they are actually looking for is changes that happen in your body from one appointment to the next. What they are doing is comparing the most recent bloodwork results to the results they got the last time and the times before that and seeing if the results are changing over time. Differences in blood work results from one appointment to the next are critical medical information.