Am i the only one who thinks living with autism is Hell?

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Joe90
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06 May 2018, 5:47 pm

I've always hated my ASD too. It's never done me any favours, all it's done is caused grief for me and my family.

ASD has made me feel victimized. The kids at school hated me because I had AS. No other reason. All they saw was the label and it gave them an excuse to shun me. This is why it's better to be diagnosed in adulthood. As soon as I got diagnosed, word got all around the class about it, and I noticed a drastic change in the other kid's behaviour towards me after I got my diagnosis, as though they were afraid of the diagnosis. It made me hate myself for having such a disorder. I just wanted to be normal.

I try to not let my AS get the better of me any more, but I still hate my diagnosis. I've been diagnosed with it for 20 years and I've always hated it. As a kid I would lash out if any adult said the 2 dreaded words 'Asperger's Syndrome'. Even now it makes me cringe when people say it, although as an adult I do openly talk about it to my mum and my aunties, but I still don't hate it any less.

I have learnt to live with it, but I'll never be proud of it or even accept it as part of me. In fact, I'd rather look at it as something I've got, not who I am. Who I am is Joe90. I am not Asperger's.


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goldfish21
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06 May 2018, 6:22 pm

EzraS wrote:
goldfish21 wrote:
EzraS wrote:
goldfish21 wrote:
And in what way did you try probiotics?

My guess is that you didn't go through a several months long digestive tract cleansing diet & protocol in order to get rid of anything that shouldn't be there & will likely kill off any probiotics you consume, first. My guess is that you also only took them orally vs. rectally.

I'm far from the only human that's experienced relief of ASD symptoms via probiotics. There was an episode of "The Nature of Things," iirc, that was about this & some mother telling the world how overdosing on probiotics was the only thing that helped her Autistic son function higher and that they had pinpointed one particular strain of bacteria that they felt was the culprit in increasing symptoms.

Here it is:

The Autism Enigma is the name of the documentary:

http://www.cbc.ca/natureofthings/episodes/autism-enigma

IMO, the reason they have to OD as much as they do on probiotics is because of whatever intestinal growths are there killing them off as fast as they're consumed. But ingesting tons of probiotics is certainly better than not doing so at all.


I didn't try probiotics, I had them administered to me by my parents, who have done many more years of research than you.


Time spent does not equate to results. Somehow I doubt they’ve researched and learned what I have about probiotics and how to administer them. They’re welcome to read anything I’ve written and I’d be more than happy to discuss it with them.


I don't have any doubts regarding how thorough my mom is in performing research.


So then you’d have no objection to her comparing notes with me then?

Great. Telephone is fine, alternatively, take the I-5 North & I’m 10 miles North of the border.


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EzraS
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06 May 2018, 6:55 pm

goldfish21 wrote:
So then you’d have no objection to her comparing notes with me then?

Great. Telephone is fine, alternatively, take the I-5 North & I’m 10 miles North of the border.



She can do whatever she wants. But why should she confer with you before Jason Lu or Danny Raede?

What do you think of Jason Lu's eikoniabridge method of treatment, and why is your method to be preferred over his?

What do you think of Danny Raede's getting out of defence mode method of treatment, and why is your method to be preferred over his?

What about all the other methods out there including those, that have published testimonials from diagnosed autistics saying how successful those methods of treatment are?



goldfish21
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06 May 2018, 7:50 pm

EzraS wrote:
goldfish21 wrote:
So then you’d have no objection to her comparing notes with me then?

Great. Telephone is fine, alternatively, take the I-5 North & I’m 10 miles North of the border.



She can do whatever she wants. But why should she confer with you before Jason Lu or Danny Raede?

What do you think of Jason Lu's eikoniabridge method of treatment, and why is your method to be preferred over his?

What do you think of Danny Raede's getting out of defence mode method of treatment, and why is your method to be preferred over his?

What about all the other methods out there including those, that have published testimonials from diagnosed autistics saying how successful those methods of treatment are?


I’ve never heard of these people so have no idea who they are or what their treatment methods are. I’ve never researched ASD treatment methods. I connected the dots one by one and learned how to treat myself and have been doing it ever since.

If she’s interested in learning about methods to treat ASD, then what reason would she have not to want to learn from someone on the spectrum who’s learned how to treat his own symptoms?


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EzraS
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06 May 2018, 8:07 pm

goldfish21 wrote:
EzraS wrote:
goldfish21 wrote:
So then you’d have no objection to her comparing notes with me then?

Great. Telephone is fine, alternatively, take the I-5 North & I’m 10 miles North of the border.



She can do whatever she wants. But why should she confer with you before Jason Lu or Danny Raede?

What do you think of Jason Lu's eikoniabridge method of treatment, and why is your method to be preferred over his?

What do you think of Danny Raede's getting out of defence mode method of treatment, and why is your method to be preferred over his?

What about all the other methods out there including those, that have published testimonials from diagnosed autistics saying how successful those methods of treatment are?


I’ve never heard of these people so have no idea who they are or what their treatment methods are. I’ve never researched ASD treatment methods. I connected the dots one by one and learned how to treat myself and have been doing it ever since.

If she’s interested in learning about methods to treat ASD, then what reason would she have not to want to learn from someone on the spectrum who’s learned how to treat his own symptoms?



Well lets see, she can choose several officially diagnosed autistics with actual names who have published material and dedicated websites who have learned how to treat their own symptoms and have testimonials from other diagnosed autistics or their parents testifying how successful their methods of treatment are.

Or she can choose an anonymous undiagnosed person with zero outside testimonials.

Mom's a busy woman, so why choose you?



goldfish21
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06 May 2018, 8:16 pm

EzraS wrote:
goldfish21 wrote:
EzraS wrote:
goldfish21 wrote:
So then you’d have no objection to her comparing notes with me then?

Great. Telephone is fine, alternatively, take the I-5 North & I’m 10 miles North of the border.



She can do whatever she wants. But why should she confer with you before Jason Lu or Danny Raede?

What do you think of Jason Lu's eikoniabridge method of treatment, and why is your method to be preferred over his?

What do you think of Danny Raede's getting out of defence mode method of treatment, and why is your method to be preferred over his?

What about all the other methods out there including those, that have published testimonials from diagnosed autistics saying how successful those methods of treatment are?


I’ve never heard of these people so have no idea who they are or what their treatment methods are. I’ve never researched ASD treatment methods. I connected the dots one by one and learned how to treat myself and have been doing it ever since.

If she’s interested in learning about methods to treat ASD, then what reason would she have not to want to learn from someone on the spectrum who’s learned how to treat his own symptoms?



Well lets see, she can choose several officially diagnosed autistics with actual names who have published material and dedicated websites who have learned how to treat their own symptoms and have testimonials from other diagnosed autistics or their parents testifying how successful their methods of treatment are.

Or she can choose an anonymous undiagnosed person with zero outside testimonials.

Mom's a busy woman, so why choose you?


So we’re back to you both believing me.

How about because I’ve lived and done this and been sharing on these forums for 5+ years, you are fully aware of all of that, and because I’m not opting to remain an anonymous person on the internet - I’m a half day’s drive away and willing to discuss any of these things live in person.


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EzraS
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06 May 2018, 9:18 pm

goldfish21 wrote:
So we’re back to you both believing me.

How about because I’ve lived and done this and been sharing on these forums for 5+ years, you are fully aware of all of that, and because I’m not opting to remain an anonymous person on the internet - I’m a half day’s drive away and willing to discuss any of these things live in person.


But there are so many other better candidates to choose from as stated above.



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06 May 2018, 10:15 pm

No idea who they are or what their stories of so can’t say whether they’ve had better success than I have or not.


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EzraS
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06 May 2018, 11:23 pm

goldfish21 wrote:
No idea who they are or what their stories of so can’t say whether they’ve had better success than I have or not.


I and especially my parents know a considerable amount about the filed of who's who and what's what of autism treatments, whereas you say you know absolutely nothing about it whatsoever. This is just one more thing that makes you one of the least qualified people to turn to.



goldfish21
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07 May 2018, 12:46 am

EzraS wrote:
goldfish21 wrote:
No idea who they are or what their stories of so can’t say whether they’ve had better success than I have or not.


I and especially my parents know a considerable amount about the filed of who's who and what's what of autism treatments, whereas you say you know absolutely nothing about it whatsoever. This is just one more thing that makes you one of the least qualified people to turn to.


I never said that. I’ve told you many times that I know exactly what I’ve done to treat myself and what the changes/results have been. I’ve been saying the same thing here for more than 5 years. I said I’ve never researched what other people are doing now and thus have no idea who these people are.

I offered my story and knowledge for free here to the people it can help most. Yourself and others call me a snake oil salesman, despite the fact that I’ve never offered anything for sale. Now you’re stating my credibility is questionable because I didn’t create a website and write a book etc in order to attempt to monetize what I’ve learned and done. Lol ridiculous.


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EzraS
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07 May 2018, 1:01 am

goldfish21 wrote:
EzraS wrote:
goldfish21 wrote:
No idea who they are or what their stories of so can’t say whether they’ve had better success than I have or not.


I and especially my parents know a considerable amount about the filed of who's who and what's what of autism treatments, whereas you say you know absolutely nothing about it whatsoever. This is just one more thing that makes you one of the least qualified people to turn to.


I never said that. I’ve told you many times that I know exactly what I’ve done to treat myself and what the changes/results have been. I’ve been saying the same thing here for more than 5 years. I said I’ve never researched what other people are doing now and thus have no idea who these people are.

I offered my story and knowledge for free here to the people it can help most. Yourself and others call me a snake oil salesman, despite the fact that I’ve never offered anything for sale. Now you’re stating my credibility is questionable because I didn’t create a website and write a book etc in order to attempt to monetize what I’ve learned and done. Lol ridiculous.


You're the one who is ridiculous. And that's why what seems about 95% of the people on this forum have rejected what you have to say regarding autism treatment.

People here have numerous other treatment options to try, that I know of and you don't, which are considerably better backed up.

Sorry, but that's just how it is and another umpteen repetitive posts from you isn't going to change that.



Last edited by EzraS on 07 May 2018, 2:19 am, edited 2 times in total.

Raleigh
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07 May 2018, 1:44 am

Living with autism is hell indeed.


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EzraS
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07 May 2018, 2:16 am

Even though this is a necro-bumped thread, back to the topic, my moderate to severe autism hasn't exactly been a stroll in the park.



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07 May 2018, 2:30 am

^ What particular aspect of your autism do you think causes you most distress, Ezra?


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Raleigh
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07 May 2018, 2:48 am

You don't have to answer that.
I often think if I had no emotions at all it would be more tolerable.


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07 May 2018, 4:20 am

EzraS wrote:
goldfish21 wrote:
EzraS wrote:
goldfish21 wrote:
No idea who they are or what their stories of so can’t say whether they’ve had better success than I have or not.


I and especially my parents know a considerable amount about the filed of who's who and what's what of autism treatments, whereas you say you know absolutely nothing about it whatsoever. This is just one more thing that makes you one of the least qualified people to turn to.


I never said that. I’ve told you many times that I know exactly what I’ve done to treat myself and what the changes/results have been. I’ve been saying the same thing here for more than 5 years. I said I’ve never researched what other people are doing now and thus have no idea who these people are.

I offered my story and knowledge for free here to the people it can help most. Yourself and others call me a snake oil salesman, despite the fact that I’ve never offered anything for sale. Now you’re stating my credibility is questionable because I didn’t create a website and write a book etc in order to attempt to monetize what I’ve learned and done. Lol ridiculous.


You're the one who is ridiculous. And that's why what seems about 95% of the people on this forum have rejected what you have to say regarding autism treatment.

People here have numerous other treatment options to try, that I know of and you don't, which are considerably better backed up.

Sorry, but that's just how it is and another umpteen repetitive posts from you isn't going to change that.


So you choose not to believe me because what I do involves some gross science. Doesn't make it any less true. Trust me, this isn't where I WANTED what I learned to lead. I'd much prefer if there were a pressure point on the back of my hand I could squeeze and achieve the same result. But there isn't & this is where everything I learned led to, and since I'm willing to do whatever it takes not to have ASD control/ruin my life, I'm okay with it. Sometimes the truth is inconvenient.


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