My most miserable day (autism-thing) help

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Sora
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04 Jun 2009, 12:20 am

Okay so I called in sick yesterday for insomnia and I just noticed I'll have to call in sick for today too for it and for being uncharacteristically freaked out.

I've just realised that I'm totally freaked out about today's meeting about my special ASD therapy.

I'm actually 'too old' for it and today we'll discuss whether I have any chance to continue it nevertheless because I need it!

And I can't call my mom because she didn't leave a bloody number to call her by!!

I mean, I'm not usually one for these things but she'd say stuff like 'oh it'll be fine' and maybe that makes me feel better?

I can't talk to anyone right now!

Gosh this is when I can't help crying.

I'm like, okay, Sora, you're a positive person so why don't you just think positive!?

And why's the world so unfair and treats autistic people without general MR so bad? (Not that they treat them with it any better, but at least they could apply for ASD therapy in my country)

And now I'll call in sick today after I stopped freaking out for the moment, kay? So ahhh stop crying already Sora.


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KaliMa
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04 Jun 2009, 1:42 am

I'm so sorry you're having such a hard time :cry:

I hope you get to continue your therapy if it helps you.


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outlier
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04 Jun 2009, 3:39 am

I strongly relate to your current state, Sora. I too am sick with insomnia and am also worrying, left in limbo, waiting to hear whether I'll receive any autism services. Even if they are granted, the waiting list will be about a year and the services short-term.

The trouble is that the disability is invisible; we look fine on most occasions, if a little unusual/eccentric. It is also very heterogeneous and complex. People can grasp conditions such as MR more easily. I understand your pain/upset because I am experiencing it too. It has been occurring on and off for the last couple of years. I am severely socially isolated and need these services; others, even here, dismiss such needs as not trying hard enough; that's how misunderstood the condition is.

The authorities are trying their best to deny funding and ignore my case; it feels a very vulnerable position and isolating. I have only my doctor supporting my case, who is a GP, yet they are still ignoring us.

I hope you receive a favourable outcome at your meeting today.



edel
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04 Jun 2009, 7:13 am

Hi all,
What is MR?
I am in new zealand and maybe don't know your terminology.
I too suffer from insomnia, or an inablity to go to sleep at an appropriate time and a tendency to want to go to sleep at an inappropriate time.
I suspect the only answer is to try and be gentle with ourselves.



Sora
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04 Jun 2009, 7:46 am

edel wrote:
What is MR?

It's an abbreviation for mental retardation.

Thank you KaliMa, outlier, edel. I'm nervous right now.

Good luck also to you outlier! I hope you will get services and that authorities just admit them already.


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lelia
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04 Jun 2009, 9:24 am

(((((((((Sora)))))))))))



outlier
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04 Jun 2009, 10:11 am

Sora wrote:
Good luck also to you outlier! I hope you will get services and that authorities just admit them already.


Thank you. The response will come through the mail.

Good luck at your meeting!



Sora
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04 Jun 2009, 11:44 am

Thank you lelia.

Keeping my finger's crossed (metaphorically) for you outlier!


Now, I just came home and it's out of my hands for now.

I have to wait for their decision.


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Sora
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05 Jun 2009, 10:48 am

I got it!

I GOT IT!

Another six months!


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outlier
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05 Jun 2009, 11:08 am

Congratulations! Good news.



UndercoverAlien
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05 Jun 2009, 1:38 pm

congrats mister sky