Anyone else with AS feel this way about medical people?

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Awhile ago I posted about how I feel I can't trust my doc or any other medical person. I feel my doc and my nurse practionner do not respect me. I feel when I go there all they do is preach and judge me. They know I have AS but i feel they don't care. I also have diabetes and all they do is look at the numbers from my blood work to see what other drugs they can put me on next. I HATE taking my shot because it hurts and I feel like a drug addict. Sticking yourself with a needle is not a natural act. But they say I have to do it, and I have to check my sugars. So I only take my shot every few days. I never check my sugars, hurts more then my shot.

I tell them how I feel but all they do is tell me how I have to take my shot and eat better and all that. I was told when I take my shot I would have more energy, feel better, ect.. But I still feel the same, no difference in energy. So I feel my doc lied to me about that. All they want to do is tell me how to live my life and put me on more drugs.


Sorry for the rant. But does anyone else with AS feel the same way about medical people? That they want to interfere with your life and preach and see what other drugs they can put you on?

The logical solution is to not go to them or get a different doctor but I bet they are all going to say the same thing.

I have seen doctors who ultimately could not be trusted by me, and my AS/HFA has definitely played into the problem there. But as to "preach and judge", most doctors and nurses I have seen have simply presented with the usual drill about diet, exercise and lifestyle.



I have morbid hypertension (deadly-high blood pressure), and yes, I also have trouble with doctors who seem to always want to be changing my medication or dosage. The problem there, however, is their desire to achieve a result that is unattainable.



Like me, you would probably be dead without it, yes?



Learn all you possibly can about your condition, then do whatever you must to remain alive. Also, I plan to soon begin taking an advocate along to help me communicate with medical folks. I can tolerate hearing the usual drill, but I need help talking with doctors about medications.

Hello KenM,

I don't have diabete but I have to have a shot every day at the moment.
Luckily for me, it's only for a few weeks. I can't imagine what it would be like to have to live on those shots for the rest of my life. It's true that it can be painful to do it day after day after day - and mine only have very little needles.

And for the disrespectful people in the medical field, it's also true.
Some are wonderful people but others... ah others, they love so much the power they have upon their patients and the patients families, it's awful.

I don't think it's related to AS, it's just them. Being as they are.
AS can only make it easier for them (or more difficult sometimes).

I also heard some doctors saying that they only realised how they were acting was so bad the day they were themselves ill or broken or anything, lying on a hospital bed. Before that, they just couldn't understand what their patients were talking about, thinking they were exagerating, whining and so on.
The day they were lying themselves, they understood so much more... and changed their way afterwards - for the ones who could go back to work.

I at one time needed a counsellor so I went to a doctor and he at the time put me in touch with people who specialised in group therapy a big no no for AS people. These people I was put in touch with were worse than useless, everything that they knew abou AS you could write on the back of a postage stamp. They specialised in psychoanalytical techniques which is one area which should not be done to autistic people and in the end it put me off of neurotypicals.

I have not really had much trouble with GPs. But I have wasted some time in some services I should have not been using because of where I have been referred to. They handled my epilepsy medication pretty well as I also have epilepsy and had it since 1974 but it was diagnosed in 1987 a bit late isn't it. My experience with doctors is a bit mixed overall.

If you won't follow their instructions on testing and medication, then calling their treatments a failure really isn't fair as you haven't really tried them. Yes, I get frustrated with doctors, especially when their egos get in the way of their ears. Remember that a doctor works for you, not you for them - if they aren't doing their job, then fire them and find someone who can and will help you - but if you have serious health issues, then please take care of yourself.


M.

I got judged and scolded by mental hospital staff when I went in for the second time... they don't like revolving door cases too much. The second time I went to another hospital as an inpatient for the second time at that institution I was also judged the second time, and unfairly too! They seemed to think my baby should have been and would be taken away from me and my bf. When I told my doctor there about how I felt like that, she said that wasn't a disorder, that was good judgment on my part, so she wouldn't treat my anxiety. What I had meant to tell her was not that I didn't want to know, but that I didn't want to mind them judging me anymore or be judged by them any more, if possible.

I know I need help with my diabetes, but at this point I feel I will get the same kind of treatment no matter who i go to. People that will preach and tell me how to live and totally ignore my feelings.

I should have been a little more clear. When I first started to have to check my sugars and use the needle, I was checking everyday, and with the shots and TOTALLY changing my diet to eat stuff I hate, all the time, I did get my sugars down. But I was miserable because all the stuff I now had to eat cost me 3X as much as the stuff I am used to and tastes like crap to me. It has no appeal to me whatsoever. When I had my sugars down to those levels, my doc said that I would have alot more energy and want to do more active things. Well my energy level did not change. So after I really did not notice a change when I was doing what the doc said i should do, I decided that stabbing my finger every day to check my sugars and sticking a needle in my skin like a drug addict was really not for me. So every few days or so I take my shot, thats it. I eat what I want and don't feel like a person trapped by taking drugs and hurting myself on purpose.

Also, I did talk to a concillor who I trusted and knew about my AS and my issues with me feeling like a drug addict. he asked if he could talk to my NP about how I was feeling, maybe she would get through to her where I could not. So I signed the relase fourm so they could talk. A couple of weeks went by and then the consillor siad he talked to her and she had no idea I was feeling that way and she would be more mindful of that in the future. I thought this was good. But the next time I saw her the first thing she said to me was "Ken, I talked with your concillor and I know you have issues with this, but we are going to do things my way or not at all." So I walked out. I am not about to take abuse from anyone.

So those are a couple of the big reasons I will not go to a doctor anymore.

Hello KenM,

I just read about the death of your cousin who was a drug addict when living (if I understood well).
I'm sorry about it.

And I was wondering if the way that you feel about your "shots" (of insulin, to keep you in good health) could have something to do with it?

I mean: I understand what you said about the diet you're supposed to follow but doesn't taste good (to your own taste), costs much more money and doesn't feel like bringing more energy to your body as your doctor said it would. But I wonder if there isn't something else underlying there.
Some kind of depression - at least some strong questionning about life and health and death.

Do you have someone to talk to about it?
Your diabete doctor is maybe not the right person to talk to about it: her job is to keep you in good health, no matter what. And she probably doesn't have too much time to give to each of her patients to discuss. And also she maybe doesn't know what she could tell you more or otherwise to convince you to do it if you don't want to.
You're not a child, she cannot force you if you don't want to.

Besides your concillor, do you have someone else to talk to?
Maybe not a psysomething, but someone who knows about philosophy for instance.

Because clearly the question is: why all those efforts to stay alive when life is not pleasant to live?


PS: Please, forgive my engrish.

PPS: How long have you been diagnosed with the diabete?

I've had the diabetes for about 2.5 years. I have stoped going to my concilor, I felt he did all he could. I told him what my NP did and I could tell he got very upset, and he seemd to be a very laid back, mellow person.

The other thing about my diabetes is I feel my doctor purposly brought it on in me. A few months before I came down with it, I had elective surgery done. I was borderline diabedic all my life, but after i had the surgery done, I came down with it. When I talked with my doc about having the surgery, he never told me the risk of coming down with diabetes due to the surgery. I found out from a friend that is a nurse that if you are borderline diabetic and there is trama on your body it can go to full on diabeties. I was never told of this risk by my doc.

I do feel like a drug addict taking my shot, and like I said, it hurts when I take my shot.

I do feel depressed alot. But my doc is the one with the medical degree, he seems to be all powerful and all knowing about me when he looks at a sheet of paper with my bloodwork numbers on it. Not asking me how I feel. So when he tells me I will have more energy when I get my numbers down, he is always right.

After all he spends a total of about 8 minutes with me a year, so he knows all about me.

I am never going to a doc again you can't trust them.

It's difficult to trust people when you've had more bad experiences with them than good ones.

And, unless it was a matter of life or death, it's a great mistake the first doctor, the one who advised you to do the surgery, didn't warn you about the risk. You could have saved many years out of the disease.

I don't know what to say to you, I'm sorry.

... Ah, still, one more little thing. I know that for children, there's a thing to put on the skin before a sting so as they don't suffer from it. Maybe you could ask for that? So you suffer less and maybe not at all - at least physically?

Well, yes, I actually had a good doctor once, as a very young child.

Then she died.

Well he did not say one way or the other if i should have had the surgery. But He did not inform me of the risk of going to full blown diabetes because of it. I know that would have effected my decsion.

Do you have any proof the surgery caused the diabetes?

Its probably because you've eaten badly all your life and haven't excersised, that combined with genes from your parents that put you at prone to developing it. You say it ahpened after your surgery? Well, maybe it was going to happen anyway regardless of whether you got the surgery.

Sorry, I just really don't buy it. Take some responsibility instead of blaming other people all the time. Even if it did give you diabetes, which I highly doubt, it was YOU who chose to go ahead with it, nobdy told you to at gunpoint. Elective surgery isn't surgery you NEED.

You say the doctor didn't warn you? Perhaps you should have done some of your own re-search.

I'm not here to convince you to go to the doctor.

Don't go. Ruin your life even more and get really sick. The only person you're f*****g over is yourself. The doctors still get their yearly salary regarldless of whether you choose to be childish about your illness. It doesn't affect them.

Sound harsh? Maybe it is. But there is a lot of truth in there. The only person who can help him is HIMSELF.

Exactly. That's all I have to say since this basic message has been repeated to you millions of times and you still don't get it.