ingorence rant
He eveone please don’t be mad at me for talking about my diagnosis again but this thing is a major problem for me and is not only making my highly insulted but has almost ruined and embarrassed my all ready hard enough for me relationship with other people and is destroying my life. Where do I begin? Well my family has always been strangely in denial all my life. I try to point out my evaluations but my grandmother calls bs on trained special education experts and not just for one or a few evaluations eatither. Now ill admit my family is not the nicest people in the world or even one of them. My family- my mom and I argues over petty bs all the time insults each other on nearly a daily basis don’t even show the slightest bit of compassion or respect minus the rare time they acctuy are nice and sweet, blame everything on everyone but themselves and never - once in a lifetime apologize. In fact my family - my mom and I act the same or worse then futtersy did to rarity and pinke pie in putting your hoof down or what babs done to the cmc if it was verbal instead of physical.. But I never thought they would stoop this low and even justify it in their own minds. Here it goes... now i have trouble describing things that make me very upset like bullying so bear with me.
Now practically all my life ive been going to a camp for children with disabilities and ive been in special education all my life. Now there’s a friend of mine who I would describe as the mid/high severely autistic. He was non verbal till 4 and until some amount of years ago always carried a piece of string with him and waved it in front of his face. We waited for the school/camp bus pactity everyday for a few years. His family knew very well I am in special eduducation classes ( from only disabled kids in varying amount of kids to inclusion to resource) and go to a special education camp that at the time was the cerebral palsy of Westchester camp and now is north east special recreation. Anyway one day my aunt took me to our complexes pool and my aunt was talking to my friends family about my camp and then flat out went out of her way to tell them that I was mainstream and my camp was for both in the most offensive humiliating way possible. Like she she was embarrassed to have an autistic/ special needs child and that having one was a burden. and it’s not like I haven’t ever said anything to them about my disability before. Understandably shocked and upset I correct her and apologize for her behavior and luckily his family actually was really happy I self advocate and stood up for their son.
This is not the only time something like this has happened. It also happened in fount of my social worker. Luckily it hasn’t happened in front of my counselors yet but I do believe it happened at my iep meeting in a restaurant when I was explaining my autism awareness bear as well as other places like their trying to hurt my feelings and make me ashamed and have to clean up after their mess. And its not like they have my best interests at heart, in fact they may me even more uncaring ignorant and just plain mean the the people who made the I am autism video. They constantly do what some aspies do when comparing themselves to low functioning autistics. They constantly downgrade and prejudge the kids in my camp to the point where it hurts so much that I told them they don’t deserve to be apart of any special needs program and thinking to myself that if there was ant other way I could get to camp I would d do it in a heart beat. Now my family has called me names and pretty much bullied me for years this is worse then any of the bullying ived gone though my entire life and ive been bullied a lot.
I am going try to write a specific example but it really is to upsetting for me to describe in detail.
My uncle had just picked me up from camp we are walking to the car when I see one or my friends and decide to say goodbye to her and her mom said she was going horse back( ( my friends parents are pretty wealthy) riding. We approach the car and I make the huge mistake of saying that I wish I had enough money to do that and stuff like that. Now keep in mind we have been arguing about this stuff for 2 months now not to mention all the last years camp session I have corrected hi and told him not to downgrade judge or insult the kids in my camp more times that I can count and he said that I have something that these kids don’t and I stupidly gave him a chance and asked what. My uncle then said that im not like them and that my friend’s mother would do any thing to make her "healthy". Calling her suffering, diseased end severely autistic (witch she is most defantliny not) and basically said im superior to her and that kids like her are a burden. If they ever do this in fount of my counselors or their director I will never be able to be in any of their programs ever again. I don’t know how to make them stop tormenting and making me feel hurt and (insert feeling that I don’t know the name of). Well that really all I could communicate right now.
_________________
Your Aspie score: 192 of 200 Your neurotypical (non-autistic) score: 9 of 200 You are very likely an Aspie PDD assessment score= 172 (severe PDD)
Autism= Awesome, unique ,Special, talented, Intelligent, Smart and Mysterious
I'm afraid I can one-up your IEP meeting story. I may have nothing but mild AS by comparison but this one's pretty far off the deep end. Mine was very similar, except it took place in a windowless conference room, complete with counselors, vice principals, special ed staff and both my (long divorced) parents. It degraded to the point where I essentially had to tell my folks to grow up in front of half of everybody who ran the school, a high school of more than a thousand students. What's even worse is that I drove to school every single day, including the ones with these "disability" meetings, and that the best thing I ever got from my IEP was being allowed to bring a laptop, not really worth it for all the classes my mandatory study halls took the places of. I never really experienced any therapy-minded camps, instead I've always been pretty obsessive about getting outdoors, but part of me wishes I had!
edit: I couldn't agree with you more strongly about seeing more severely affected autistics as equals. Personally I feel alienated whenever I can tell others look down on them, as much or more than I do when people insist I'm too smart to explain anything simply.
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"Standing on a well-chilled cinder, we see the fading of the suns, and try to recall the vanished brilliance of the origin of the worlds."
-Georges Lemaitre
"I fly through hyperspace, in my green computer interface"
-Gem Tos
edit: I couldn't agree with you more strongly about seeing more severely affected autistics as equals. Personally I feel alienated whenever I can tell others look down on them, as much or more than I do when people insist I'm too smart to explain anything simply.
Well trhere is this program that i wnt to be in called kids in training or ecspades and this swimming program. kids in traing is sports and training for the special olympics minus swimming, i think escepades is a program like camp and swimming is special olympics. Almost all the kids from camp go to at least one of theese programes. My unclce say school comes first like tese kids are deathly sick in hospitsal or dont go to school or the school that they do is meanninless and that i go to harverd. And then my uncle has the nevrve to say that "The kids are trully autistic"/ "Turelly disabled" and "have real problems" ( boy i wish that being in dinal didnt exist. ( some of these kids are in regular or even ap classes wich im not in ) like autism is the equivent of bieng in hell or having canser or that they will never amount to anything. I told him tom stop and it even go the the point where i was crying and i couldent take it anymore. I would fill out the fourm and mial my self i i was able to write, fill out a fourm or mail a letter. I told hoim that my friends fore camp are more commpassionate smark understanding an mature then he or the rest of my family will ever be.
here is a link a video about my camp and other programes ir your currious or intrested
http://www.northeastspecialrec.org/ then click on were it says videos on the sidebar.
_________________
Your Aspie score: 192 of 200 Your neurotypical (non-autistic) score: 9 of 200 You are very likely an Aspie PDD assessment score= 172 (severe PDD)
Autism= Awesome, unique ,Special, talented, Intelligent, Smart and Mysterious
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