Before Diagnosis and After Diagnosis: Why It's Great

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serenaserenaserena
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06 Oct 2013, 12:02 pm

Before I even discovered the existence of Asperger's Syndrome, I felt more confused and alone than I ever have until I found out about it. I used to get overwhelmed even more, because I just didn't know what could possibly make me feel so misunderstood. When I got upset before, it was maybe even double than now, because not only would I be upset about the problem, but I would also be upset about not knowing why the same type of misunderstanding continued to recur.
I used to type into Google things like, "Why do I seem to get confused extremely easily?" and "Why is it so hard for me to figure out certain things about people and their actions, and I have to think super hard about it?" and "Why do people always disagree with what obviously is making sense, making it difficult to work in groups?"
I couldn't find an answer. I felt so terrible feeling like I wasn't even supposed to be human. Later on, I met a friend who told me that she has something called Asperger's Syndrome. She thought that it just meant that she likes light and fuzzy things. Since she said that, I still didn't research it for a while, but when I did, I started to realize little by little that it was like me.
Over time, it was driving me crazy. I wanted to know if this could be an answer; if this could be what I'd been looking for to fill in the variable.
I had already talked to my mom about my difficulties before knowing about Asperger's Syndrome. It's always been very difficult to talk to anybody including my mom about problems that I'm having, because my parents' responses are always so irrelevant to what I'm talking about at all.
Soon enough, I really wanted to know. I discussed it with my mom. She hardly knew a thing about it, so that could be a reason why she never even suspected it. She said that she knew I was a little different, but that she always thought that I was just her daughter that way.
The story goes on, a counselor explained it more to my parents and how much it relates to me, and I went on to get tested.

After finding out that I am Asperger's diagnostic, it made me feel glad, because understanding things like this makes me feel not bad anymore. I understand that other people's brains are different than mine. I can't change peoples' brains, and I don't want to. I still feel alone at times, but I no longer get upset from wondering why on EARTH people find me so confusing.
It still doesn't make full sense, because being elaborate gives more details about what you mean, rather than forcing people to guess what you're talking about and making them read you mind.
I will still never understand that.

Getting officially diagnosed with Asperger's Syndrome is a wonderful feeling if you are suspecting, whether you are an adult, adolescent, or juvenile.
It's useful to understand this. People are still confusing, and it still makes me mad, but it's still a very wonderful thing to know about yourself.


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aspie score: 166 out of 200
officially diagnosed in 2013
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Pain is inevitable; suffering is optional.
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stardraigh
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06 Oct 2013, 5:25 pm

I agree.

I had several people tell me, not just with my mental health issues which include Aspergers among other things, and physical problems to not worry, and to ignore it. They had the attitude that if I couldn't do anything about it, then to not care or do anything about it. And it frustrated me because what if one problem that I actually catch is just the tip of the ice berg of a whole number of other problems. What if I ignore something and die, or seriously compromise myself and my ability to function and they didn't get it.

I got my Aspergers diagnosis and I learned more about it including many symptoms that I had that could be attributed to it. I had an answer. I still worry about somethings though. The worry is from the point of view of what do I need to do to lessen the pain these problems cause in my life, and not the view of confusion and questioning WTF is going on and what does it all mean, and why is this happening to me.


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