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anthropic_principle
Deinonychus
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Joined: 23 Jul 2014
Age: 29
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07 May 2015, 8:18 am

Its been a while since Ive been here.. the site hasnt been working for me for some reason..
Anyway..
I am still in chronic pain in and around my testicles, for literally years now and it only spreads and worsens.
The pain literally never ends and is quite immense.
At least one of them has shrunk to around the size of a peanut.
This pain spreads to my legs and absolutely has wrecked my legs nerves, essentially crippling me and meaning I can barely move.
I have been isolated for over 4 years now.. almost no communication or contact with anyone at all besides my mother, and even that is minimal.
I have no ambitions, and nothing to look forward to.
I feel all that lies down the road is more suffering and misery and loneliness.
I have missed out on most of my youth and only foresee whats left of the rest being wasted as well.
I have never experienced a relationship or sex simply due to being autistic (and of course never leaving the house, but still having not experienced anything on this front at 16 is sad), it has ruined my chances of ever being happy in life.
I get no enjoyment out of anything at all anymore.. not only due to this pain but simply because I don't find anything interesting anymore.
Even if I could work, why would I become a wageslave simply to sustain a miserable and meaningless existence? I would be working for nothing.. I have no will to survive.
I have accepted I will never experience anything good because of my autism, and see absolutely no reason to go on.
Being unable to communicate properly destroys your chances of living a bearable life in modern society.



envirozentinel
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07 May 2015, 8:28 am

(moved to The Haven)


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envirozentinel
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07 May 2015, 8:39 am

Do you have a support system such as a trusted therapist or medical professional and are you on any suitable medication for the pain? In other words are they aware of the condition so you can receive the needed treatment? It's very important to let them know how you feel. If you're unable to communicate verbally you can write about your feelings.

I only wish there was a way we could make you feel better but we are not health professionals; we can only offer encouragement and support.

Please seek medical assistance for this pain because surely there is something they can do before it's too late?


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C2V
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07 May 2015, 10:18 am

I have been in a situation very similar to yours.
The first step I believe is to find yourself a combination of doctors who are willing to help you. For me, that was a savvy GP, a chronic pain specialist, two surgeons and a therapist. Medications may be needed on a short term basis, but once the source of the pain has been eliminated, you can wean off all the drugs. You can't get your life back while in pain, it dominates your whole focus, blocking out everything else. So that had to be first. Has anyone considered castrating you completely? If the leg pain remains after the testicles have been removed, deep nerve shunts are possible to make the nerves incapable of communicating pain to the brain. It may however be referred - if the testicles are removed, the leg pain may dissipate on its own.
You'd be surprised how different things can appear when you're not in constant agony. If your situation is anything like mine was, then you are likely not sleeping, eating, exercising or doing anything that supports life because of the pain. When you do start to be able to eat and sleep again, that changes the way your mind and body work, which changes your emotions. That itself can come to change everything about your life, and may solve some of your other problems of helplessness and despair. All your problems may not be pain related, but I can say from experience that the pain can make you wish you were dead. Without it, you don't feel that way anymore. Once you start to feel better, your perspective can dramatically change to follow. You can then start to work on finding a job and a lifestyle that suits you, you can start to experience things to look forward to and enjoy with a clear head.
As for autism, there are a lot of autistics in the world, not all of them miserable or unable to carry on any kind of life due to communication problems. You are obviously very capable of communicating here in written form. You might just need some more help and support if this is a barrier for you. You CAN find that help. As for relationships and sex - its overrated. There is plenty in life more worthwhile. Just because our culture has this fixation on this facet doesn't make it all of life. Speaking to a therapist could also help reorient your perspective.
Feel better.


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