Got brutally mocked for discussing my undiagnosed autism

Page 1 of 2 [ 22 posts ]  Go to page 1, 2  Next

john2002
Butterfly
Butterfly

Joined: 28 Jul 2016
Age: 32
Gender: Male
Posts: 11

26 Sep 2016, 11:49 am

I am now diagnosed, but I was undiagnosed because my parents wouldn't give me a diagnosis, even though I had significant trouble with executive function.

This post was a while ago but I hate it when people think they could claim that I might have not been autistic, because other people that I never even met claimed to be autistic and weren't, so somehow, that reflects on me.

At least the person that said engineering isn't a community of "nerds online" should realize that the media stereotypes engineers like that, and that my parents and teachers put pressure on me because I "fit the stereotype."

https://www.reddit.com/r/EngineeringStu ... te/ctp693x

This person was being judgemental of my behavior

https://www.reddit.com/r/EngineeringStu ... te/ctpbj5o



Private Idaho
Toucan
Toucan

User avatar

Joined: 31 Jul 2016
Age: 62
Gender: Male
Posts: 271
Location: USA

26 Sep 2016, 2:08 pm

The lesson here is don't pay attention to Reddit commentators. Lots of ignorant people who nonetheless dispense advice, not to mention all the trolls.



Ven_
Tufted Titmouse
Tufted Titmouse

Joined: 20 Sep 2016
Age: 36
Gender: Male
Posts: 27

27 Sep 2016, 3:44 pm

I despise egotistical neurotypicals who look down on us like that. I'd say he's the one making assumptions. Does he know what it is like to have ASD? It's like trying to describe only having 2 arms to an octopus. How could we possibly explain it? It's the lack of a sensation we've never known. So how can he have the audacity to claim that "some folks who have autism are absolutely capable of learning and retaining a broad spectrum of information". Does he have it? Does he have someone in his family who does? DID HE EVEN MEET SOMEONE ON THE STREET LIKE US?!

I didn't think so. He really needs to shut his warp rift and don't comment on things that he doesn't understand.



YippySkippy
Veteran
Veteran

User avatar

Joined: 26 Feb 2011
Age: 44
Gender: Female
Posts: 3,986

27 Sep 2016, 3:57 pm

Yes, well, unfortunately there are people who mock self-diagnosis everywhere, including WP.



BirdInFlight
Veteran
Veteran

User avatar

Joined: 8 Jun 2013
Age: 63
Gender: Female
Posts: 4,501
Location: If not here, then where?

27 Sep 2016, 4:06 pm

I was just about to post the same thing as YippySkippy -- unfortunately that mocking occurs right here on WP also.

There is a small but vocal core of members here who manage to attack people's self diagnosis or self-identifying without getting banned, manage to mock them and be sarcastic about their motives for even suspecting themselves to be on the spectrum.

It's brutal here and the subject comes up on a regular basis in heated discussions.

And the sad thing is, these specific people NEVER seem to drop it, never learn more about where self-diagnosers are actually coming from, never stop with the cynicism and sarcasm. All on WP.



AspieUtah
Veteran
Veteran

User avatar

Joined: 20 Jun 2014
Age: 62
Gender: Male
Posts: 6,118
Location: Brigham City, Utah

27 Sep 2016, 4:10 pm

BirdInFlight wrote:
I was just about to post the same thing as YippySkippy -- unfortunately that mocking occurs right here on WP also.

There is a small but vocal core of members here who manage to attack people's self diagnosis or self-identifying without getting banned, manage to mock them and be sarcastic about their motives for even suspecting themselves to be on the spectrum.

It's brutal here and the subject comes up on a regular basis in heated discussions.

And the sad thing is, these specific people NEVER seem to drop it, never learn more about where self-diagnosers are actually coming from, never stop with the cynicism and sarcasm. All on WP.

The trick is to stand up to the mockers, or ignore as if they don't matter. After all, paid government trolls and useful-idiot tools abound in social media. Recognize that fact and you will realize who you are dealing with. In other words, haters hate and trolls troll.


_________________
Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)


BirdInFlight
Veteran
Veteran

User avatar

Joined: 8 Jun 2013
Age: 63
Gender: Female
Posts: 4,501
Location: If not here, then where?

27 Sep 2016, 4:14 pm

AspieUtah, you're right; those are wise words.

I get easily upset and I wish I wouldn't. But I know you're right.



AspieUtah
Veteran
Veteran

User avatar

Joined: 20 Jun 2014
Age: 62
Gender: Male
Posts: 6,118
Location: Brigham City, Utah

27 Sep 2016, 5:10 pm

BirdInFlight wrote:
AspieUtah, you're right; those are wise words.

I get easily upset and I wish I wouldn't. But I know you're right.

I frequently get upset, too. For the past few years (since my self-identification and subsequent diagnosis), I have recognized that I need to calm down a lot more. Sure, recognize those who thrive on anger, but don't play along.

I wasn't describing you, BirdInFlight. Just the hurtful ones in general. In fact, I can't remember you getting angry here.


_________________
Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)


BirdInFlight
Veteran
Veteran

User avatar

Joined: 8 Jun 2013
Age: 63
Gender: Female
Posts: 4,501
Location: If not here, then where?

27 Sep 2016, 6:25 pm

Oh I get angry here, unfortunately! :oops: I've gotten very upset just earlier in fact, with someone I feel is one of those people who never let go of their unkind outlook on other people's self diagnosis and even those who have in fact been diagnosed.

This place has actually become very stressful for me, as those people make it feel like an unsafe place to be, when it ought to be the very opposite. There are good people here -- I have always felt that you are one of those, I like your posts and your good sense and good heart.

But the people with a very mean spirited view of certain other kinds of people -- the self diagnosed, the diagnosed who "don't seem aspie enough...", the logical ones bash the emotional ones, the LF ones don't believe the HF ones are even autistic -- the list goes on --- and it really make me feel like I'm in the playground with the mean kids again, which is a shock considering what we are all supposed to be here for.



racheypie666
Veteran
Veteran

User avatar

Joined: 25 Aug 2016
Age: 30
Gender: Female
Posts: 3,508
Location: UK

27 Sep 2016, 6:32 pm

My doctor mocked me when I asked for a diagnosis, ignorant bastard :evil: .



AspieUtah
Veteran
Veteran

User avatar

Joined: 20 Jun 2014
Age: 62
Gender: Male
Posts: 6,118
Location: Brigham City, Utah

27 Sep 2016, 6:33 pm

BirdInFlight wrote:
Oh I get angry here, unfortunately! :oops: I've gotten very upset just earlier in fact, with someone I feel is one of those people who never let go of their unkind outlook on other people's self diagnosis and even those who have in fact been diagnosed.

This place has actually become very stressful for me, as those people make it feel like an unsafe place to be, when it ought to be the very opposite. There are good people here -- I have always felt that you are one of those, I like your posts and your good sense and good heart.

But the people with a very mean spirited view of certain other kinds of people -- the self diagnosed, the diagnosed who "don't seem aspie enough...", the logical ones bash the emotional ones, the LF ones don't believe the HF ones are even autistic -- the list goes on --- and it really make me feel like I'm in the playground with the mean kids again, which is a shock considering what we are all supposed to be here for.

Thanks! During the first several months I was visiting WrongPlanet.net, I got angry with the same kinds of people you described; those who not only dismiss the self-identified, but castigate them for the attempt. I understood that most autists have obsessive compulsions, and that maybe self-identified individuals trigger them. :roll:

It was a looong time before I trusted more than one other Wrong Planetian (kraftiekortie). Now, I have several friends including you.


_________________
Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)


smudge
Veteran
Veteran

User avatar

Joined: 6 Sep 2006
Age: 37
Gender: Female
Posts: 7,716
Location: Moved on

27 Sep 2016, 7:03 pm

AspieUtah wrote:
BirdInFlight wrote:
Oh I get angry here, unfortunately! :oops: I've gotten very upset just earlier in fact, with someone I feel is one of those people who never let go of their unkind outlook on other people's self diagnosis and even those who have in fact been diagnosed.

This place has actually become very stressful for me, as those people make it feel like an unsafe place to be, when it ought to be the very opposite. There are good people here -- I have always felt that you are one of those, I like your posts and your good sense and good heart.

But the people with a very mean spirited view of certain other kinds of people -- the self diagnosed, the diagnosed who "don't seem aspie enough...", the logical ones bash the emotional ones, the LF ones don't believe the HF ones are even autistic -- the list goes on --- and it really make me feel like I'm in the playground with the mean kids again, which is a shock considering what we are all supposed to be here for.

Thanks! During the first several months I was visiting WrongPlanet.net, I got angry with the same kinds of people you described; those who not only dismiss the self-identified, but castigate them for the attempt. I understood that most autists have obsessive compulsions, and that maybe self-identified individuals trigger them. :roll:

It was a looong time before I trusted more than one other Wrong Planetian (kraftiekortie). Now, I have several friends including you.


Awwww.


_________________
I've left WP.


BirdInFlight
Veteran
Veteran

User avatar

Joined: 8 Jun 2013
Age: 63
Gender: Female
Posts: 4,501
Location: If not here, then where?

27 Sep 2016, 7:46 pm

AspieUtah, thank you! :D



Uncle
Veteran
Veteran

User avatar

Joined: 7 Apr 2015
Posts: 1,124

28 Sep 2016, 2:54 am

Yes, have experienced the same descrimination myself here, I am not self diagnosed, nor am i yet officially ( after 2 years!) It was actually pointed out to me with my first councillor/behaviour therapist, i wasn't looking for a diagnosis of anything at the time, i just wanted it to 'STOP'.. but when i did read on it i took a very subjective view, but after reading i could no way deny it. After been shunted round the system i took matters into my own hands rather than trust the system anymore and today someone from Autism Nz came out, had a good 2 your chat, found out not only is she experienced in this are but has a direct family member that is on the spectrum and after a short while she soon acknowledged that what i was expressing to her about myself and the treatment within the system thus far is also correct. It was finally a feeling of some relief that the person i was speaking to actually 'got me'... Ironically a number of things i brought up excited her in some ways as she mentioned her immediate family member experiences the same things in different areas, listened to my interests over life that a previous 'professional' ( with no experience with those on the spectrum) dismissed before i could even explain and mentioned on a number of occasions that what i just said was done in a very 'aspie way', So now we are setting up a meeting with those that refused to help as she mentioned it was actually illegal for them to do what they did at the beginning of this journey and has asked if it was ok to sit in on the meeting for some support...
With that said i have realised after first coming here that peoples thoughts are all very varied and its not really that much different from different personalities and individual ideologies of people that are not on the spectrum... However there are times when getting called out because i don't have an 'official' diagnosis where my point of view should be seen as invalid due to not having a piece of paper with ink saying so, has upset me a few times but am trying to learn that some peoples minds have a set rigidity ( including myself in certain areas) that no matter what you say they will not listen until i tick the 'diagnosed' box in my forum profile, i am however aware there will still be some that will still question and view me as someone that is misdiagnosed, and there's not much i can do about that no matter what proof i could show them.. People have to realise that what is written here is only a minute portion of peoples lives and to base a personal opinion on someones brain functioning based on a few posts that they often have misinterpreted is not only wrong but highly illogical ( for an apparently a logical bunch there's a hell of a lot of illogic here at times! lol) , So can still make people like myself now feeling a little bit like im stuck in the void between not being understood by NT's and not being understood by those on the spectrum, stuck in no mans land! I didnt have the luxury of being diagnoses 30+years ago, i didnt go to schools that even understood autism let alone screen/cater for it, i spent most of my young life at boarding schools 7 days a week for me growing up realising i was different but not knowing why and the bullying was a torture i had to experience all day everyday and have no escape, nor could i run off into the woods and hide in a bush just to get away from people and be in nature, i wasn't able to talk to anyone about anything, i had not additional anything, i just had to try and get through each day at a time. I am sure there are a number of aspies here with a late DX that can relate to this in someway that the younger crews of today are lucky to not have to experienced.... It can actually create more confusion for those with late DX's for a variety of reasons... Im sure not saying at all this is better than that etc as all i am emphasising is that we ALL experience life, autism, anxiety etc etc in our own unique ways and have our own unique ways of expressing them and im glad that it is a very broad spectrum with individual view points because i have learnt from other peoples posts and hope that despite getting some grief sometimes that if at least one person got some help out of a post i made or saw things from a view point they have not thought of before then all the other crap that i might get makes it worth the while that that one persons life benefited from it...I often hear the phrase that 'we are not robots' or alike but yet if some of our view points don't align with theirs 100% expect forum hell to break loose! lol... little bit of an irony there! lol... So i am glad EVERYBODY here is unique , has different view points and differents views of their experiences of life.. Would be a little bit boring if we were all the same, wouldn't it? :heart:

As for the reddit posts, well that's what needs to change. With time and correct knowledge over time peoples minds will flex to understand the new correct knowledge, as at the moment peoples beliefs are created on what they hear and what they see on tv, media friends etc... Someone even said to me the other day that he thought autism was just a 'buzz' word, i really had to bite my lip on that but realised as he has never experienced my internal workings he will never understand and would be pointless at that moment in time trying to explain something that he cannot in anyway comprehend... My life, my experience my understanding. One does not simply 'Just get over it!' :heart:



Last edited by Uncle on 28 Sep 2016, 3:14 am, edited 1 time in total.

B19
Veteran
Veteran

User avatar

Joined: 11 Jan 2013
Gender: Female
Posts: 9,993
Location: New Zealand

28 Sep 2016, 3:02 am

Why would Reddit delete a username there? Is that a response to users who troll there or break other rules?



League_Girl
Veteran
Veteran

User avatar

Joined: 4 Feb 2010
Gender: Female
Posts: 27,280
Location: Pacific Northwest

28 Sep 2016, 3:12 am

B19 wrote:
Why would Reddit delete a username there? Is that a response to users who troll there or break other rules?



People always delete their accounts there. I see it all the time and people even delete their OPs and their accounts too sometimes with it. I don't know if Reddit ever deletes them or not. The thing about it is you can create as many accounts as you like so you can delete and start over. I have even seen people delete their accounts over not liking the responses they were given.


_________________
Son: Diagnosed w/anxiety and ADHD. Also academic delayed and ASD lv 1.

Daughter: NT, no diagnoses. Possibly OCD. Is very private about herself.