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KingdomOfRats
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Joined: 31 Oct 2005
Age: 40
Gender: Female
Posts: 4,833
Location: f'ton,manchester UK

07 Mar 2008, 11:53 am

The meltdowns am have have been getting worse [have just bought a new laptop after last one was wrecked in a meltdown a few weeks ago and have now managed to get back online from today],and this week the staff and managers had an ambulance out on tuesday and wednesday expecting hospital to take am off them until the MDs could be brought under control as they say they [as the learning disability service] cannot cope with am anymore and this is from a service that has Auties who have much more extreme challenging behavior than am?
They think brain is getting progressively worse,but they dont seem to realise despite showing them,that the sensory input/attacks are getting worse [due to better weather] and the amount of changes and routine disruptions that have been going on-despite them being told to do the opposite by two autism specialists and now a CPN have all had a profound effect.

After the last major meltdown on wednesday,the managers and staff were told by the paramedics the only way they're going to get am out of here forced is through sectioning,and am was recovered enough to type to them-no,over and over again and no section,they know am have a hatred?phobia? of hospitals and ambulances and they wanted easier way.
The manager got the gp out as she knew am was not going to agree to be dragged out by staff without a fight,he spoke to CPN and they got am a emergency appointment today at hope hospitals neuro department-he said they are going to keep am in hospital for two days to have the horrible sticky pads and wires stuck in long hair test [can never remember its name but never forget what it feels like].
He said am going to be in a side room [for obvious reasons] but if am do not have a meltdown in the test time,they are going to force am into one,anywhere else this would be called torture,not looking forward to it as when am aware of meltdowns they are the most torturing inner agony.
Will have own day and night staff from home as well as access to the nurses,but it making am feel sick just thinking about it now.

Has anyone here ever had this done,and can say what it's like coping with all that time?
Also,do hospitals allow to take own games console and tv in,and use own laptops? do they have wifi internet?
Only ever go to day surgery in hospital and most of the time it's quick and less painful due to having GAs.

Any tips on surviving the place?


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richardbenson
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Joined: 30 Oct 2006
Gender: Male
Posts: 13,553
Location: Leave only a footprint behind

07 Mar 2008, 12:41 pm

oh dude that sounds terrible, i had a little bit of a hard time understanding exactly what happend, but is there anyways you can live independently or semi independently?


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Winds of clarity. a universal understanding come and go, I've seen though the Darkness to understand the bounty of Light