The End Of the Line:

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There is a long road before you get here. It begins when you are "plugged in" and have health insurance, you are married, and you have a job.

THen you lose your marriage. You lose your job. You lose health care.

At that time I had to go onto welfare....I was able to keep my private health insurance and often did not eat and did not have heat in my house for 5 years to be able to pay for the private health care. I literally almost forze one year.

Well, they forced me to go onto my father's Social Security as a survivor. Now, although I get a larger check than the SSI I was on before, I lose all other benefits.

I will have to pay for an advantage plan or go back onto Medicaid.

For those on Medicare and Medicaid, you are tracking with me here.

Now, once I am on Medicare, I have to go to Medicare Dr's. But No one is taking new Medicare patients. Plus, I have to drop my private plan to pay for the benefits I lost.

ALSO, this is the end of the line. Once you are on Medicare, you are no longer eligible for private insurance ever again. I can never marry on Medicare. I can't save more than a few sheckels, I cannot do anything and the eveil thing is that you cannot get off it. YOU ARE STUCK ON IT BECAUSe of PREEXISTING CONDITIONS.

So, how do you cope, those of you on Dis with the disrespect, the knowing you can't do anything natural and human to improve your life, that you can't save money, marry or do anything? What keeps you going?

Wait, you can't marry on Medicare? That sounds ridiculous. Do you mean something else, like that you can marry but you'll lose the medicare if they find out you're married and will try and make you use your spouse's insurance? I'm sure you CAN marry on Medicare.

No, you cannot marry and keep Medicare. THat is the law.

If you marry, you lose it.

Yet, if you have pre-existing conditons, you will not quailtfy for your spouse's insurance. I tried.

Once on medicare for disability you have no choices. You cannot marry and you cannot work. If you do work, you can only make a certain amount. It is not like old folks medicare.

Wow, more of a reason to avoid the social security system.

If you can. But if it costs 1500 a month for a high risk policy, you can't avoid it.

Its a messed up system

Have you sought legal advice? There are some medical doctors that practice law out there that might be able to assist you.

If you are a US citizen you could also try to secure a federal / gov. job. Those have excellent benefits and not so bad pay.

I was on Medicare SSI SSD for almost 10 years,
before that I jumped from job to job unable to keep a job for longer then a month,
and before that I lived on the streets for nearly 10 years,
I gave it all up and went to work, made more money to spend and
found more things to do with my life and time, also found pride.
believe me, it was not easy, I had to overcome many issues.
many times I miss being able to take it easy,
being able to hide from the world when I couldn't handle it anymore,
but over time it gets easier, you adapt, you just have to find your niche,
I just wish I did not have to do it and go at it all alone, its been so hard,
and in many ways still is, I am starting on year 5 of working and making it on my own.

That is incredible.

And yes, I have heard gov jobs do not have pre-existing condition clauses.

<Sigh>

Maybe I should move to the country in which I also have citizenship. Giving up is not an option.

You're talking about MEDICAID, not Medicare. They are two different things. Medicare is for old people. Medicaid is for poor people. Medicaid has all the nasty requirements, in my state you can't have more than $2000 in assets, can't have property, can own ONE car as long as it's worth under a certain amount, can't be married, etc. I was on Medicaid due to my SSI, but once my mom filed for Social Security they cut off my SSI and switched me to SS survivors income which meant I was also off medicaid. So I'm having to reapply for Medicaid all over again. I need it right now because my psych meds are expensive and I can't afford to be subject to the "donut hole" in Medicare drug coverage where any meds over a cost of $2500 per year you have to pay for it yourself. Once my business gets going I will be able to pay for my pills myself and can dump Medicaid. But for now I need it. If you're not a US citizen you might go back to your home country if it's in Europe, they're far more generous than the US.

Ya, I get the two confused my self.

I am sending you this link. It is a way for people to remain on Medicaid who had to go from SSI to SSDI. It may be very helpful to both of us.....It helped the member on here wh o showed it to me!

There may be hope........

http://www.workworld.org/wwwebhelp/grou ... rposes.htm

PS: Marriage on Disability Medicare is not allowed - I just called them and asked again. For old people it is OK, but not for disabled. THat's so idiotic. With Medicare going bankrupt, you think they would help us get OFF it!! !! !! !! !