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AlanMooresBeard
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31 May 2018, 2:22 pm

Biscuitman wrote:
I was actually thinking this earlier when I wrote above, I didn't know how to explain it. It's like we have a glitch in our weather system here, once it gets to a certain temperature the sky all goes to sh*t and the weather malfunctions. Someone needs to log a support ticket for the weather, it's playing up again.


Yes, this phenomenon is often referred to as "Three fine days and a thunderstorm". When you have high humidity and falling pressure mixing with a cold front, you then have perfect conditions for violent thunderstorms to develop. We had a spectacular storm in London on Saturday night which I was very nearly caught out in. We also had a fairly lively one on Tuesday with multiple lightning flashes. London has managed to avoid the storms today and it looks like the threat of more storms will be further north over the next few days. A great relief for people like me who hate thunderstorms and the sensory problems it causes.



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01 Jun 2018, 3:44 am

fluffysaurus wrote:
Temeraire wrote:
Yes, I agree with Mr T.

At least get some kind of advocacy agency involved so you know what your rights are Fluffly.

Perhaps they could help you find some counselling if you ever want it.

The place that diagnosed you should have offered some support to help you process your new diagnosis.
I feel this is what I really needed (I hadn't known I was Aspie and some of what she told me about how I came across was a big shock). I was told that I would get counseling for my obsessive behavour from someone who understood autism. My appointment was for two weeks after my assessment, I went, the lady said 'no you shouldn't have been sent to us, we don't do that and we don't have anyone trained in autism' (although she did mention her daughter was autistic). She got me to fill out the how depressed have you been during the last two weeks form (the two weeks following finding out there is a reason that everything goes wrong, and after I'd been told I was going to get help and things would be easier), and idiot that I am, I told the truth so I wasn't considered depressed enough and they told me they couldn't help.
Quote:
The basic counselling which is offered by a GP surgery is not normally proper counselling but rather a type of support. If yours is anything like mine you will be offered short courses. (mindfulness, relaxation, etc.)
I am currently unable to even make an appointment to see my doctor for a problem with my wrist because his calendar for July is not open yet.


I would ring up the service which diagnosed you and say that the you need further help or support and explain what happened when you tried to access counselling. They should have at the minimum signposted you to a service which could help you. Sometime people fall through the net because these diagnostic services do not know what happened to the people they have seen and assume they are ok.

It took me a while to see someone suitable. I had to push. It is hard to find anyone who is autism aware let alone trained.

You may be able to find some things which are compatible with your way of learning and processing such as written or visual etc. I have difficulty with hoarding and it has taken a long time to be able to work with this.

Arm yourself with knowledge on this subject and see what fits with you. I would also use this info loosely too as we can scare ourselves with googled info especially if the source is not so informed.

You can pm me anytime Fluffy if I can help I will my lovely.



kraftiekortie
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01 Jun 2018, 8:20 am

I believe it snowed on June 5, 2006, in some UK, even lowland, places.



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01 Jun 2018, 8:36 am

A county cricket match between Derbyshire and Lancashire had to be abandoned in June 1975 because the pitch was snowed under. We went on to have one of the hottest summers of the later 20th century.


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kraftiekortie
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01 Jun 2018, 9:09 am

It was June 5, 2009----and most of the snow was confined to the highlands.

The 1975 June snow event, as mentioned by DeepHour, was more notable.



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01 Jun 2018, 10:12 am

fluffysuarus wrote:
Thanks for the advice.

Where did you go to for the disability advocacy?

Is the assessment for needs all about physical things?

You're welcome. :D

To find the advocacy service, I started looking by researching on the internet. By searching for specific autism support, I found an organisation which does that - but they are strictly a "service provider" taking only cases with funding. However, they sign-posted me to a voluntary organisation who provided advocacy for people with disabilities, and they then passed me on to yet another similar organisation who more specifically helped people with psychological and learning disabilities.

If your own searching doesn't turn anything up, I would contact either your local CAB, who generally have someone who specialises in advising disabled clients, or a local branch of one of the mental health charities. It may also be worth posting on one of the UK forums, such as at the National Autistic Society, as you may find someone who lives near to you who can point you at something.

As for the assessment etc., I hope you don't mind if I write about that a little later, maybe in a thread of its own. It's been a busy week in that regard, and there has been both good and bad news regarding my support. I do want to post about, but I'm still feeling very overwhelmed by it all and need a bit of time to let it all sink in before I can write about it without getting too emotional or just ranting about the negative points.


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02 Jun 2018, 8:00 am

Trogluddite wrote:
fluffysuarus wrote:
Thanks for the advice.

Where did you go to for the disability advocacy?

Is the assessment for needs all about physical things?

You're welcome. :D

To find the advocacy service, I started looking by researching on the internet. By searching for specific autism support, I found an organisation which does that - but they are strictly a "service provider" taking only cases with funding. However, they sign-posted me to a voluntary organisation who provided advocacy for people with disabilities, and they then passed me on to yet another similar organisation who more specifically helped people with psychological and learning disabilities.

If your own searching doesn't turn anything up, I would contact either your local CAB, who generally have someone who specialises in advising disabled clients, or a local branch of one of the mental health charities. It may also be worth posting on one of the UK forums, such as at the National Autistic Society, as you may find someone who lives near to you who can point you at something.

As for the assessment etc., I hope you don't mind if I write about that a little later, maybe in a thread of its own. It's been a busy week in that regard, and there has been both good and bad news regarding my support. I do want to post about, but I'm still feeling very overwhelmed by it all and need a bit of time to let it all sink in before I can write about it without getting too emotional or just ranting about the negative points.
Yes, take your time,I always need plenty of time to process things before I am able to talk about them.

I will try the CAB, my efforts on the internet have not worked out partly because I am not good at communicating non face to face (Obviously there are probs there too but less so). This is my first forum and after the disasters of facebook and texting I am amazed how well I am doing on here, I assume this is because there's no reading between the lines.

I will try the NAS again (I tried them first) but I could not find anything on there for people who were autistic, everything was for parents, careers, teachers, ect. When I started my research (after my diagnosis) for the first few weeks all I could find was websites that were to support parents and groups supporting exes of Aspies (hating) I got so upset reading the comments (very similar to things people have said about me) that I don't know what I would have done if I hadn't come across WP. I've pretty much stayed here ever since.



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02 Jun 2018, 8:29 am

Temeraire wrote:
fluffysaurus wrote:
Temeraire wrote:
Yes, I agree with Mr T.

At least get some kind of advocacy agency involved so you know what your rights are Fluffly.

Perhaps they could help you find some counselling if you ever want it.

The place that diagnosed you should have offered some support to help you process your new diagnosis.
I feel this is what I really needed (I hadn't known I was Aspie and some of what she told me about how I came across was a big shock). I was told that I would get counseling for my obsessive behavour from someone who understood autism. My appointment was for two weeks after my assessment, I went, the lady said 'no you shouldn't have been sent to us, we don't do that and we don't have anyone trained in autism' (although she did mention her daughter was autistic). She got me to fill out the how depressed have you been during the last two weeks form (the two weeks following finding out there is a reason that everything goes wrong, and after I'd been told I was going to get help and things would be easier), and idiot that I am, I told the truth so I wasn't considered depressed enough and they told me they couldn't help.
Quote:
The basic counselling which is offered by a GP surgery is not normally proper counselling but rather a type of support. If yours is anything like mine you will be offered short courses. (mindfulness, relaxation, etc.)
I am currently unable to even make an appointment to see my doctor for a problem with my wrist because his calendar for July is not open yet.


I would ring up the service which diagnosed you and say that the you need further help or support and explain what happened when you tried to access counselling. They should have at the minimum signposted you to a service which could help you. Sometime people fall through the net because these diagnostic services do not know what happened to the people they have seen and assume they are ok.

It took me a while to see someone suitable. I had to push. It is hard to find anyone who is autism aware let alone trained.

You may be able to find some things which are compatible with your way of learning and processing such as written or visual etc. I have difficulty with hoarding and it has taken a long time to be able to work with this.

Arm yourself with knowledge on this subject and see what fits with you. I would also use this info loosely too as we can scare ourselves with googled info especially if the source is not so informed.

You can pm me anytime Fluffy if I can help I will my lovely.
Thank you Temeraire.

I will see if I can find the email address for the lady who did my assessment, the lady at the other place said she would tell her that they were not able to help me, but she also said she would let me know what was happening and didn't. Hopefully it's on my copy of my assessment. I feel a bit sick at the thought of bothering her but I think I have to change things somehow.

I also think I am going to change doctor's surgeries. On Monday I will psych myself up to phone for an appointment to see the nurse and if I manage, I will wait until I've seen the doctor about my wrist to change surgeries (because he already knows about it) but if it goes wrong and I don't get to see a nurse then I will change straight away as at the new surgery they allow people to make appointments to see the nurses (rather than insist they phone on the day). I feel a bit better for having come to a decision about it.



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11 Jun 2018, 4:03 pm

My dad asked me yesterday if I have Alzheimer's, I think it was better when he said I had asthma, and if he goes back to saying I'm artistic I think I'll just agree. He's had over ten months to learn one word :|



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11 Jun 2018, 4:14 pm

Don't parents say the funniest of things. :lol:



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11 Jun 2018, 4:51 pm

If anyone knows of any articles or studies that say autism is caused by the fathers, can they let me know.



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11 Jun 2018, 5:36 pm

Your dad is an absolute trip, Fluffy.

I thought "autistic" meant "artistic" at first when I first heard about it at age 9.

(Yes, in case anybody's wondering, I was actually diagnosed at around age 3---but I didn't find out about the diagnosis until adulthood).



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12 Jun 2018, 1:16 pm

^What had you been thinking about why you went to non-typical school, If you don't mind my asking? Or was the school just private.



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12 Jun 2018, 1:30 pm

My first instance of "going to school" was at a "brain-injured nursery school" (which was actually a Kindergarten). I started going there the autumn after I said my first phrase (my first "word" was the phrase "I see a ball.").

I didn't go to any school before then. I just stayed home with my mother.

I remember picking things up pretty easily there---like the days of the week, the months of the year, reading a clock, etc. There was no real "academics" in Kindergarten back then. But my behavior was pretty atrocious. I always wanted to go "first," and if I didn't go first, I'd throw a temper tantrum.

In essence, it's almost as if, once I started to speak, that my "classical" autistic symptoms disappeared, replaced by more Aspergian-type symptoms.

This sort of thing, loosely, is part and parcel of a book called "Elijah's Cup," about a kid who was classically autistic until he started to speak----then he became more Aspergian afterwards.



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12 Jun 2018, 1:36 pm

^When you found out you were autistic did that make sense or did you doubt it?

What kind of senior school did you go to?



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12 Jun 2018, 1:44 pm

When I found out, it made perfect sense.....especially when combined with my later Asperger's-type symptoms. Autism was a different animal in the 1960s. Only the severely affected were said to "truly" have autism. I was diagnosed after I spoke with "brain-damage."

There are times when I still exhibit discernible "classic autism" symptoms. I have to struggle, sometimes, to make eye contact; my default reaction to a face is to avert my eyes from it. I sometimes like to bump into walls, punch things, things like that. And I sometimes do that in public, thereby evincing strange looks. And, a few times, some attention from the police. And I still have many "Asperger's" type things going on. I felt like "info-dumping" at my job today, in fact. I had to restrain myself from doing so. It had something to do with some sort of history.

I went to a "regular" junior high where I passed academically, but was almost expelled for getting kicked out of class for calling out the answers all the time. Then I went to a high school for "gifted underachievers," where I did moderately well, with some behavior problems, especially early on. I had no friends; as a result, I started singing opera in the subways. I got a little better in my senior year. I made a few friends. I acquired a bit of a reputation as a "poet."