PCOS udate...

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so i've been back to the doctor to see about their latest theory for my feminine-related pains...

ive been dealing with this crap since puberty and the only reason i even went back to these stupid doctors that really have no clue what's going on... is cause they suggested a new theory, which i felt deserved further investigation

they suspected i had PCOS and thought my thyroid might be out of whack.... well it's not....

boo taking all my blood and making me sit through all this BS... when at the end of the day all they had to tell me was to try and eat healthy... (cause their fallback null hypothesis is ALWAYS IBS)

i'm so tired of this crap...

i eat well and excercise... and still have these daily pains... and it pisses me the F*** off when they have no suggestions other than changing my diet or birthcontrol pills (ive been on many kinds with no improvement)

waste of time and money on my part

Are you sure your cramps are "feminine" or can it be in your digestive tract or elsewhere?

I read in a medical journal that IBS is kind of a catchall diagnosis used when they can't find anything else. I supposedly have IBS, though who knows.. I gave up trying to figure it out quite a while ago as I received no help and no answers..

I'm ever increasingly wary of the medical establishment, as I tend to get very alike answers for just about any complaint: it's probably stress, eat better, excercise more, get plenty of sleep, blah, blah, blah

Yes, you're healthier doing these things, but they're never answers to the questions you are seeking. When your twisted up in hideous pain, drinking an extra glass of water and eating a zuchinni IS NOT GOING TO HELP!! !

I would rather they would just say they don't know than give generic answers and catchall diagnoses...

You are right: very, very frustrating indeed!! !

I recommend checking out the Autism Research Centre's website:
http://www.autismresearchcentre.com/res ... urrent.asp

Dr. Baron-Cohen is researching women with autism/AS and polycystic ovary syndrome. Perhaps you can contact him for assistance.

Good luck.

Hey, I went through the same exact thing when doctors were trying to figure out what was wrong with me. They don't seem to know about PCOS much.

ive had sonagrams to show my ovarian cysts which they say explains my sharp random daily pains...

but they can never explain why my exams are always so painful or why i have bad periods...

i've varied my diet and the only thing ive found helps is to eat less but more often, which i do... but it's still not much of an improvement.

my family does have endo runnin in women... my mom's mom and her sister oth had histos...

who knows... im tired

time to self medicate i guess : /

delete

Last edited by Sedaka on 03 May 2007, 2:25 pm, edited 1 time in total.

i'm self dx so doubt i'd count... but interesting... ill look into it... though, isnt he the "male" brian theory guy? think he's be interested in PCOS cause your thyroid is outta whack and producing manly amounts of hormones...

Sedaka, hi

Your symptoms sound more like you might have endo, not PCOS. Especially since there's a family history of endo.

I'm not sure what the recommendations are these days for endo. But read up on it, regardless of what those docs have said.

Also, here's another thought that might explain some, if not all, of your issues. Find an allergist and rule out food allergies, as well as the more pervasive gluten intolerance, known as celiac disease. Food allergies and celiac can cause various abdomenal issues, which might be compounding any reproductive-system issues you might have going on.

DD

thanks DD ill look into that gluten stuff more

and for the endo.... every year at my exam, they test for scar tissue in that area but patting all around... (that's what that "hand-pressing" is after the actual examine... they're testing to see whether things arent "squishy" ehough... endo causes scar tissue buildup and hence pain/rigidity in those areas)

while i've read there's no correlation between severity of endo (ammount of scar tissue) and pain.... they keep telling me they cant feel anything abnormally stiff or enlarged or anything, really... so maybe i'm lucky enough to have not a bad case of endo... just the pain.


whoopie. they keep threatening exploratory surgery as an option