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Sophist
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17 Jan 2008, 3:29 pm

WinterRose wrote:
I'm not sure if i've had seizures or not... I had two episodes where there was a buzzing and i couldn't move, each lasted only a few seconds. The doctor said they couldn't be seizures because i didn't loose consciousness (um.... i thought there was a kind where you didn't lose consciousness but what ever, I'm just a laymen :roll: ) But if they were seizures, they were when i was 22 and I am a female.


No, there are two types of seizures in that sense: "complex" where there is a reduction in (or total loss of) consciousness and then "simple" where consciousness is not dampened at all.

I'm guessing your doctor is a GP and not a neurologist, am I right? Sounds like he needs to go back to medical school for a little epilepsy refresher course. ;)

If they happen again, and/or start happening more frequently, I'd recommend you demand a referral from this doctor to a neurologist who specializes in epilepsies, because seizures can become worse and you would likely not want to risk that. In the meantime, try to work on stress reduction methods (if you don't already) and watch your diet. There are certain foods which may help reduce stress which in turn can reduce seizure activity.


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aspiegirl2
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17 Jan 2008, 4:02 pm

I haven't been diagnosed with epilepsy, but I do remember having some bouts of derealization, and I usually have these jerks almost everyday (what some call myoclonic jerks). I also remember having dreams of myself having several myoclonic jerks in a row, which could have meant that I was having them in real life and not just the dream world. I also remember once my brother told me that I was shaking a little bit when I was taking a nap after school, yet that time I wasn't dreaming of having any seizures which was a little odd. Anyways, I just turned 19 years old and I'm a female diagnosed with Asperger's Syndrome.


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WinterRose
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17 Jan 2008, 4:26 pm

Sophist wrote:
WinterRose wrote:
I'm not sure if i've had seizures or not... I had two episodes where there was a buzzing and i couldn't move, each lasted only a few seconds. The doctor said they couldn't be seizures because i didn't loose consciousness (um.... i thought there was a kind where you didn't lose consciousness but what ever, I'm just a laymen :roll: ) But if they were seizures, they were when i was 22 and I am a female.


No, there are two types of seizures in that sense: "complex" where there is a reduction in (or total loss of) consciousness and then "simple" where consciousness is not dampened at all.


Thank you!

They only seem to happen when I'm sleep deprived, so I'm careful to get plenty of sleep


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Sophist
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17 Jan 2008, 5:48 pm

WinterRose wrote:
Sophist wrote:
WinterRose wrote:
I'm not sure if i've had seizures or not... I had two episodes where there was a buzzing and i couldn't move, each lasted only a few seconds. The doctor said they couldn't be seizures because i didn't loose consciousness (um.... i thought there was a kind where you didn't lose consciousness but what ever, I'm just a laymen :roll: ) But if they were seizures, they were when i was 22 and I am a female.


No, there are two types of seizures in that sense: "complex" where there is a reduction in (or total loss of) consciousness and then "simple" where consciousness is not dampened at all.


Thank you!

They only seem to happen when I'm sleep deprived, so I'm careful to get plenty of sleep


Yeah, mine happen when I'm tired.


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ClosetAspy
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17 Jan 2008, 8:08 pm

I am female, in my early fifties. I started having temporal lobe seizures when I was in my mid-20's. I kept it hid for about 6 months because I was too scared to tell anyone about it, then I had a grand mal seizure and the truth came out. They ran all kinds of tests, could not find out why. I was put on Dilantin (which I still take), and continued to have partial complex seizures about 4 times a year, meaning I would not lose consciousness but was like a walking dream for about 4-5 seconds (I could still interact with people, and most of the time they did not even know anything was happening). About 10 years ago I stopped having these spells, and again no one knows why. I am seeing a wonderful nurse-practitioner who is familiar with Aspergers and she said these things are often hormone-related (something the neurologists NEVER told me) and go away with age. Please don't even get me started on our health care system. As a child I displayed numerous Aspergers and Autistic traits, yet neither word was ever spoken in my presence. Instead I was told I had perceptual difficulties and placed in an intensive Skinnerian behavior modification program and at one point given a medication (phenobarbital) which made me psychotic. This was in a fairly large Midwestern city with three hospitals (one pyschiatric) and several colleges and a state university, not some place out in the sticks where you might expect this kind of ignorance.

Anyway, I have long suspected a link between my seizure disorder and my perceptual problem (God, why won't these doctors call a spade a spade?) and coming across this forum has helped answer some questions. I hope that I have in turn helped. We have to help each other, God knows the medical profession won't.



AOwpr
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18 Jan 2008, 6:05 am

I've never had a seizure, so I'll just talk about sex--let's call it gender. :roll: I'm male, but have extreme difficulty talking to females... I make eye contact even less, usually speak more choppily, and I get very nervous. I really can't do it... I'm either annoyed by them and talk as little as possible,--thus scaring them away--or am not annoyed, but scare them away because of my nervousness and overall "weirdness". I'm not interested in dating, but it doesn't feel right to not be able to even look the opposite gender in the face for more than a couple of seconds (maybe up to ten for people I've known for a long time). Anyone have the same anxiety buildup when talking to the opposite gender?



Sophist
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18 Jan 2008, 12:54 pm

ClosetAspy wrote:
About 10 years ago I stopped having these spells, and again no one knows why.


Was about to suggest menopausal hormone shift when you said:

Quote:
I am seeing a wonderful nurse-practitioner who is familiar with Aspergers and she said these things are often hormone-related (something the neurologists NEVER told me) and go away with age.


Quote:
Instead I was told I had perceptual difficulties and placed in an intensive Skinnerian behavior modification program


Image Gah! Behaviorists!

Quote:
and at one point given a medication (phenobarbital) which made me psychotic.


Geeze...

Quote:
Anyway, I have long suspected a link between my seizure disorder and my perceptual problem (God, why won't these doctors call a spade a spade?) and coming across this forum has helped answer some questions. I hope that I have in turn helped. We have to help each other, God knows the medical profession won't.


They're wandering in the dark most times. And everybody's got a different professional opinion. But seizures are definitely more common in ASCs.


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18 Jan 2008, 12:55 pm

I have generalized epilepsy, began my seizures beginning of this year at age 16, and I am male.


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earthmonkey
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18 Jan 2008, 4:10 pm

I haven't had seizures for awhile, maybe a month ago, though ages 13-16 I had them quite frequently.

I find it very near to impossible to describe what it is like. I have had some with loss of consciousness, some where it's just distorted kind of, sometimes I shake and stuff, sometimes I don't.

One time I was sitting in statistics class and my graphing calculator jerked and my arm flew across the room. I have no idea what others thought of that.

EDIT: I mean, my arm jerked and the calculator flew. ALso I am female.


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18 Jan 2008, 4:15 pm

earthmonkey wrote:
I haven't had seizures for awhile, maybe a month ago, though ages 13-16 I had them quite frequently.

I find it very near to impossible to describe what it is like. I have had some with loss of consciousness, some where it's just distorted kind of, sometimes I shake and stuff, sometimes I don't.

One time I was sitting in statistics class and my graphing calculator jerked and my arm flew across the room. I have no idea what others thought of that.

EDIT: I mean, my arm jerked and the calculator flew. ALso I am female.


OMG!! ! YOUR ARM POPPED OFF AND FLEW!! ! :cyclopsani:


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18 Jan 2008, 4:26 pm

I am 17. I am male.

My seizures began when I was 8 and was put on medication, which proved to be temporary when they began to make a comeback two years later, when I was 10. I was placed on a much stronger medication then. I have had sporadic seizures since, although the last "big" one was back in August of 2007. I was rushed to the hospital because my mom was freaking out to the degree where my older sister had to call the paramedics. The operator told my sister to tell my mom to stop screaming since my mom wasn't helping much. It was a bit embarrasing since it was in the morning and I was still in my pajamas.

Once, I tried fighting it off by exercising.


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18 Jan 2008, 10:06 pm

AnonymousAnonymous wrote:
I am 17. I am male.

My seizures began when I was 8 and was put on medication, which proved to be temporary when they began to make a comeback two years later, when I was 10. I was placed on a much stronger medication then. I have had sporadic seizures since, although the last "big" one was back in August of 2007. I was rushed to the hospital because my mom was freaking out to the degree where my older sister had to call the paramedics. The operator told my sister to tell my mom to stop screaming since my mom wasn't helping much. It was a bit embarrasing since it was in the morning and I was still in my pajamas.

Once, I tried fighting it off by exercising.


Do you have generalized seizures?


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18 Jan 2008, 11:11 pm

No, they are very sporadic.


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JoeNapo
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19 Jan 2008, 5:58 am

the last time I was fish flopping seizuring was after I took a hit of some hash out of a 4 foot glass water pipe.



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19 Jan 2008, 9:57 am

AnonymousAnonymous wrote:
No, they are very sporadic.


No, I meant like tonic-clonic... unconscious and spasming. That sort of thing.

JoeNapo wrote:
the last time I was fish flopping seizuring was after I took a hit of some hash out of a 4 foot glass water pipe.


Did you have them before not related to drugs?


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Strapples
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19 Jan 2008, 9:58 am

Sophist wrote:
AnonymousAnonymous wrote:
No, they are very sporadic.


No, I meant like tonic-clonic... unconscious and spasming. That sort of thing.

JoeNapo wrote:
the last time I was fish flopping seizuring was after I took a hit of some hash out of a 4 foot glass water pipe.


Did you have them before not related to drugs?


i have tonic clonics, i do not have drug related seizures


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