First seen by paed. neuro doctors at hope hospital in salford,as a toddler [and miscounted as having autism or anything else with a specific label due to not having visible brain damage].
Was mis diagnosed with another ASD [AS] by a mental health pyschologist x councilor,he said he had never worked with autism before and the gp had said he was the most experienced in autism/learning disabilities he knew of [says a lot about autism and asperger specialists in manchester],he diagnosed am after a few questions about interests and what am now know was ToM stuff,and didn't bother to ask family anything about dev. history and why speech was either not there or only in one word answers or echolilia which should have been a hint it was a lot more than AS,he also diagnosed ADHD combined type and multiple learning difficulties but couldn't be more specific as he doesn't work with developmental stuff.
Am was then assessed and given help over a year,by a social services speech therapist,who was also a specialist in autism.
He assessed every little or large detail,every difficulty,every interest etc,he didn't for one moment start stereotyping am,at the end of it he said am was definitely far on the autism side [around mf],as opposed to AS,but he is unable to officially diagnose because he is a council st,and doesn't have the authority,he has made the findings of the assessment into a book for family,staff,social services etc though so they can learn more about am to.
Have been told often to go and see another specialist for official label change,as it would get am the support and understanding am need,as at the moment,it's not happening because of being stereotyped from the first label by some untrained staff and it's causing quite severe 'regression',so much am now being forced to go to a gp appointment to get referral to a neuro yet again.
They think am might have brain damage from headbanging or epilepsy but am think it'll be a waste of time,and they only need to look at whats' happening to routine to see whats' going on.
Am need to find a autism specialist who can formally diagnose,it's unfair being that the speech therapist who diagnosed am is in manchester and is one of the best autism specialists out there but can't formally give labels.
Have gone on a bit with this post,but does anyone here know of any autism experienced pyschs in manchester,NHS or not?
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>severely autistic.
>>the residential autist;
http://theresidentialautist.blogspot.co.uk
blogging from the view of an ex institutionalised autism/ID activist now in community care.
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