Page 1 of 2 [ 20 posts ]  Go to page 1, 2  Next

infinite9
Hummingbird
Hummingbird

User avatar

Joined: 7 Jul 2008
Gender: Male
Posts: 21
Location: Chicagoland

24 Apr 2009, 1:45 pm

I read in my research somewhere that something like 30% of people with AS also have psoriasis vs about 5% in the general population. If you have it, have you figured out what makes it better or worse?

brian



Biogeek
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

User avatar

Joined: 28 Aug 2008
Gender: Female
Posts: 60

24 Apr 2009, 2:19 pm

Over the counter hydrocortisone creams work for me. They don't totally get rid of the psoriasis, but control it well enough. Of course, you can't use these for long periods of time because they thin the skin. I have inverse psoriasis (in skin folds), and I find that keeping it clean and dry minimizes outbreaks. Isn't sunshine good for plaque psoriasis?



millie
Veteran
Veteran

User avatar

Joined: 25 Oct 2008
Age: 62
Gender: Female
Posts: 3,154

24 Apr 2009, 3:59 pm

I get psoriasis and have had very bad bouts of it. Interestingly, if I stick to a diet that is low in dairy and low in wheat and cassein - as is suggested for some people with ASD's - it also helps with my psoriasis.

I do not touch hydrcortisone creams as they only supress external manifestation of the psoraisis and do little to actually help with the underlying issues - which are often related to auto-immune stuff, high anxiety and a poor diet that exacerbates it.

So, low dairy and low wheat diet. have an exercise program. stay away from too many fizzy. acidy drinks, no alcohol, and drink lots of water. drink herb tea. stay away from excessive nightshade group foods. some is ok, but not too excessively.
Also, eat lots of greens and veges and stay away from processed foods. and get some sun if you can - if you are sun sensitive - wear hat and sunnies and just catch a bit when you can.

My psoriasis was head to foot at one stage - i get what is called Guttate type - and have had debilitating flare-ups which meant i could not even move easily. (seen the series THE SINGING DETECTIVE? that was me...homebound and bedridden usually for two months at a time with guttate type.)

I now implement all the strategies i mention above in this post and the improvement is very great.
I have not had a severe bout like the ones mentioned here, for many years.
good luck.



kaitlyn_loves_music
Velociraptor
Velociraptor

User avatar

Joined: 17 Mar 2009
Age: 33
Gender: Female
Posts: 421
Location: Illinois

24 Apr 2009, 7:41 pm

my mom has that!! !
she doesent have asperger's tho.
and its genetic i hope i dont get it she got it in her 20's.
im guessing my sister will get it shes getting really flaky skin lately :(



Biogeek
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

User avatar

Joined: 28 Aug 2008
Gender: Female
Posts: 60

24 Apr 2009, 8:39 pm

Diet doesn't do it for me except that losing weight decreases the area of skin susceptible to my kind of psoriasis. But my type is rare.

Weight reduction may help those of us who have psoriatic arthritis, especially in weight bearing structures such as the spine, hips and knees. But as for specific foods directly helping or hindering psoriasis, I personally don't see an affect. Others may however. We may all be different.

I don't understand the comment about hydrocortisone creams and autoimmunity. Oral corticosteroids are used to treat many autoimmune diseases, lupus being one. They are the best anti-inflammatory agents around. I'm not advocating the use of prednisone (or any other oral corticosteroid) for psoriasis, and am not even sure it's efficacious. Oral corticosteroids certainly have many more serious side effects than the cream. That said, the cream should also be used with caution and at the direction of a physician.



LostInSpace
Veteran
Veteran

User avatar

Joined: 16 Apr 2007
Age: 39
Gender: Female
Posts: 2,617
Location: Dixie

25 Apr 2009, 4:16 pm

I have psoriasis on my scalp and ears. Honestly I haven't found much that helps it aside from prescription steroidal creams. I have yet to find any other kind of lotion or salve that does any good. It definitely waxes and wanes in severity, but I haven't been able to figure out a pattern, except that I do think that very stressful periods with little sleep make it worse.


_________________
Not all those who wander are lost... but I generally am.


richardbenson
Xfractor Card #351
Xfractor Card #351

User avatar

Joined: 30 Oct 2006
Gender: Male
Posts: 13,553
Location: Leave only a footprint behind

25 Apr 2009, 4:24 pm

i have something funky going on on my scalp aswell. but i havent been able to see a doctor about it, at fist i thought it was a zit on my scalp but it never goes away. and hurts, maybe its like the great red spot of jupiter. lasting for hundreds of years :lol:
i also have these wierd white patches on my skin, and there so distrsessing because i hate skin discoloration :(



Gambit
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 26 Mar 2008
Age: 43
Gender: Male
Posts: 39

25 Apr 2009, 4:27 pm

infinite9 wrote:
I read in my research somewhere that something like 30% of people with AS also have psoriasis vs about 5% in the general population. If you have it, have you figured out what makes it better or worse?

brian



30%??? Stop right there with that statistic! - I want to see the research paper! I find that figure hard to believe so could you provide credible source?



Dussel
Veteran
Veteran

User avatar

Joined: 19 Jan 2009
Age: 60
Gender: Male
Posts: 1,788
Location: London (UK)

25 Apr 2009, 11:05 pm

millie wrote:
I do not touch hydrcortisone creams as they only supress external manifestation of the psoraisis and do little to actually help with the underlying issues - which are often related to auto-immune stuff, high anxiety and a poor diet that exacerbates it.


I would not use cortisone without very good reasons and without the supervision of physician.

millie wrote:
So, low dairy and low wheat diet. have an exercise program. stay away from too many fizzy. acidy drinks, no alcohol, and drink lots of water. drink herb tea. stay away from excessive nightshade group foods. some is ok, but not too excessively.
Also, eat lots of greens and veges and stay away from processed foods. and get some sun if you can - if you are sun sensitive - wear hat and sunnies and just catch a bit when you can.


I had this problem for years and I got prescribed a sulphur/selenium cream, which worked quite well.



glider18
Supporting Member
Supporting Member

User avatar

Joined: 8 Nov 2008
Gender: Male
Posts: 8,062
Location: USA

27 Aug 2009, 9:51 am

Hello everyone, well...I'm going to the doctor this coming Monday because of my ongoing problem with a rash that I've had for years and years---but now it is getting worse. It sounds like psoriasis for me. That's interesting that 30% of us (I too would like to see the research to back this up) with AS have it versus the 5% of the general population. I am very concerned, but yet relieved that it isn't some life-threatening thing. And I don't know for sure that this is what it is, but it sure sounds like it. It started years ago on my index finger where I stim a lot. And with my finger flapping stim, I thought the rash was caused by that---the constant irritation. But now, I have it starting just below my right knee. So...I may need to stay in touch with the rest of you with this. I have also noticed my anxiety has increased this year. I'm just anxious to get to the doctor and get something figured out.


_________________
"My journey has just begun."


anxiety25
Veteran
Veteran

User avatar

Joined: 4 Aug 2009
Age: 44
Gender: Female
Posts: 820

27 Aug 2009, 10:23 am

I have it on my scalp, knees, and elbows. It's really obnoxious on my scalp though, because it's not really flaky, just very red all of the time and goes down my neck... so you can imagine the looks I get when I go to get a haircut or anything.


_________________
Sorry about the incredibly long post...

"I enjoyed the meetings, too. It was like having friends." -Luna Lovegood


SabbraCadabra
Veteran
Veteran

User avatar

Joined: 21 Apr 2008
Age: 40
Gender: Male
Posts: 7,765
Location: Michigan

27 Aug 2009, 1:14 pm

I looked it up, and I'm pretty sure I don't have it, though I do have pretty bad dandruff.


_________________
I'll brave the storm to come, for it surely looks like rain...


sartresue
Veteran
Veteran

User avatar

Joined: 18 Dec 2007
Age: 70
Gender: Female
Posts: 6,313
Location: The Castle of Shock and Awe-tism

27 Aug 2009, 1:55 pm

LostInSpace wrote:
I have psoriasis on my scalp and ears. Honestly I haven't found much that helps it aside from prescription steroidal creams. I have yet to find any other kind of lotion or salve that does any good. It definitely waxes and wanes in severity, but I haven't been able to figure out a pattern, except that I do think that very stressful periods with little sleep make it worse.


rASh topic

I have had this since I was a baby. It covered about 80% of my body, and my mother used to put a lot of baby oil on it. I must have loathed the sensation of the grease, and I do to this day. No HS cram, though. I only wash my hair once a week because my scalp gets brutally dry. :x


_________________
Radiant Aspergian
Awe-Tistic Whirlwind

Phuture Phounder of the Philosophy Phactory

NOT a believer of Mystic Woo-Woo


wigglyspider
Veteran
Veteran

User avatar

Joined: 23 Apr 2009
Age: 38
Gender: Female
Posts: 1,306
Location: WA, USA

27 Aug 2009, 3:16 pm

I don't know if it's psoriasis, but I do get a rash in one spot that comes and goes... I have this lotion stuff called Body Butter that works awesome.. lots better than any other lotion I've tried. It's kind of thick and creamy and doesn't soak in for a while so it moisturizes more and immediately makes the area feel more soft and normal, and it heals faster. The smell is strong but pleasant. It comes in different smells. Here's what the container looks like: http://www.viewpoints.com/images/review ... 9_full.jpg


_________________
"You gotta keep making decisions, even if they're wrong decisions, you know. If you don't make decisions, you're stuffed."
- Joe Simpson


Seahorse
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 7 Jun 2013
Age: 58
Gender: Female
Posts: 32
Location: London

07 Oct 2013, 3:57 pm

I have palmar plantar pustulosis. This is quite a rare form of psoriasis that affects only the palms and soles. Had it about 10 years. It comes and goes, I find that none of the treatments work for very long. It is quite debilitating and people are always asking if I moisturise. Have I tried E45? I wish it would go away.
I am curious about that statistic too.



TommyGun991
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

User avatar

Joined: 2 Dec 2012
Gender: Male
Posts: 65

07 Oct 2013, 5:37 pm

I don't have psoriasis but I have atopic dermatitis on my back, under my chin, around the eyes, around the nose, sides of my head and ears. I've tried several prescription creams but they only help me for a short time. One dermatologist said it was allergy related, the other said it wasn't, I don't think they have any idea.