"fake aspies" and self diagnosis. DISLIKE, sorry.

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b9
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14 Jun 2010, 7:45 am

Apple_in_my_Eye wrote:
b9 wrote:
i just know blah"

Well, not everyone's parent's are doting worry-warts.

I had "failure to thrive" as an infant. Wouldn't nurse, apparently. I switched onto fruit juice, and that was considered the end of it. It was assumed to be due to allergies, though there apparently weren't any symptoms of that. (I'm guessing it was the skin contact.)

I hand flapped constantly a kid, bit my hands, had laughing fits, and a bunch of other things that I'm told other parents would see and say, "normal kids don't do that." My parents ignored those comments. They also had an intense hatred of psych* people and never consented for me to be questioned by one. In 1st or 2nd grade I was to be held back for some non-academic reason, but my mother would not allow it (she argues relentlessly, and people always give in to her). And my behavior was to shut down much more often than melt down. I was very quiet and got good grades, which I think was key to evading undue attention (the teachers were busy with the troublemakers).

I've always had trouble sitting up straight for more than 5 minutes at a time, so I'd imagine I was fairly floppy as an infant, but how does a mother know if it's her first baby? I can't recall in my entire life ever making eye contact without deliberately forcing it, so I'd imagine I didn't do it as an infant either, but again, how does a first time mother know that is unusual?

It just doesn't seem out of the realm of possibility that people slip notice. If anything it sounds to me like your case was very obvious, or your parents were unusually vigilant and knowledgeable.


well there you go. do not bother to talk to me as i am not interested and you may or may not be autistic.
i am too tired to be interested.

other people here can better correspond with you because i am closed for the night.
my shop is dark and silent and it is obviously shut.

i am not an authority about who is autistic or not and i just stated my opinion about things earlier.
whatever. i have other things to attend to now. i have to go to sleep and relinquish my attendance.
it is good to be asleep because no6thing prevails upon your consciousness.
nighty night .



nostromo
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14 Jun 2010, 8:04 am

700 wrote:
MechAnime wrote:
capriwim wrote:
Actually, come to think of it, on one website I was on, there was this chap who claimed to have Aspergers, and who behaved in a manipulative abusive way towards people and kept blaming it on his Aspergers. He really didn't seem to be like anyone I know with Aspergers. I can't say for certain that he didn't have Aspergers, but I'm sure that there were other factors at play that were nothing to do with Aspergers, and that he was using the Aspergers (real or otherwise) as an umbrella term to explain and excuse all inappropriate and abusive behaviour. That annoyed me, because it gives people with Aspergers a bad name, and creates incorrect impressions of what Aspergers is.


Asperger's Syndrome Jack

[youtube]http://www.youtube.com/watch?v=nhxuV1qBlfo[/youtube]

I think autistics (or any neurological persuasion) are capable of being jerks as much as the next person.


Well AS or not my parents would NEVER have stood for this behavior and I think that it is probably the same for alot of the older people on this site. And by having strict parents you withdraw inside yourself which if you are a female is not questioned that much especially in a area that is still not AS aware ! !!

See when the first 'don't you be f*cing cheeky mum' sentence comes out, theres ample opportunity to slap him in the face with the back of her hand even though she's driving, women can multitask.



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14 Jun 2010, 9:57 am

To the person who wrote a long rant several pages back about people on here trying to conform to a stereotype and how this proved they're not autistic:

Threads like this one and attitudes like yours are part of what cause people to behave like that. It's not like as a group autistic people are as immune to social pressure as some like to claim. I have read autobiographies of (diagnosed) autistic people over the years from 1985 to present and you could see the evolution of ideas about what autism is, by the way autistic people wrote about themselves. Even the same person writing in 1986 and 2004, for instance, wrote very differently in response to very different ideas of autism.

Pressure to escape being labeled a "fake aspie" only increases some people's insecurity and many will express that insecurity by frantic attempts to sound like some kind of stereotype. This is especially common among those who have created NT-like personas --they just add on a new stereotypical aspie persona. But it doesn't mean there's not a real autistic person under that persona. I don't think this phenomenon will fully stop until all pressure such as the pressure created by threads like this one stops, as well as other various pressure outside of communities like this.

I also never really believe people who claim they can "just tell". The fact is maybe you know about the experiences of you and the usually few autistic people you know. But other people are different. Just because someone isn't like you it doesn't mean they're not autistic. I've known a lot more autistic people than usual and because of the extreme variation I have seen I would never presume to judge by someone's writing (or drive to conformity) whether they are autistic or not. There's just too much variation.


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capriwim
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14 Jun 2010, 10:04 am

b9 wrote:
i do not judge people for not having a diagnosis. i do think it is strange that they do not have a wealth of stories they can tell about how they were not allowed to participate in the main stream when they were young.

i was not allowed to participate in the main stream because i was like a "spanner in the works", and i caused all sorts of problems in the lives of people who were in the main stream that i was therefore removed from.

i am saying that if you lived and operated in the main stream without other people wishing to re-place you, then maybe you are not affected to any serious degree with anything. and that includes autism.


So you think that anyone who is in mainstream is not affected by anything? That everyone with a problem will be externalising it and causing such severe disruptions that they are not allowed to participate? That autistic people can't be subdued into silence, can't internalise difficulties and retreat into a world of their own, can't be in the mainstream but not really understanding it or being part of it? I'm thinking you're probably assuming everyone must be the same as you, and that autism can only manifest in one particualar way.

Equally someone could say of you that you can't really be affected by anything seriously because you are able to access the internet, to type, to interact with other people. They could say that all the people they know who are seriously affected by autism would be completely unable to do this. And that could be true of their experience, and so, using your logic, they would completely disbelieve you had any form of serious problem.

There clearly is a danger is using your own experiences as the benchmark in judging everyone else's.


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14 Jun 2010, 10:09 am

In my opinion, one should not claim to have Asperger's syndrome if one have not been officially diagnosed. Why? Specialists have experience in finding traits and symptoms in people which may lead to a diagnosis. People who believe they have a diagnosis is just as often wrong as right. I do believe there are many “fake Aspies” (self-diagnosed who wouldn't recieve a diagnosis by a specialist) on this forum. The reason I believe so is because we all do find traits in nearly all different diagnosises available. This means, if I were to diagnose myself, I'd be antisocial, schizoid, narcisstic, etc., merely because I believe most of those symptoms could describe me. But I'm certain I wouldn't apply for any of those diagnosises (except schizoid, maybe) if I were to be questioned by a specialist. “Seek and you shall find”. This statement applies for everyone and all diagnosises.

When I was told I might have Asperger's, I almost laughed because I had read about it and I believed none of those symptoms applied to me. Well, I was wrong. I could never have guessed myself. In my opinion, people should not claim to have Asperger's unless they have an official diagnosis. I guess many of you (especially those who don't have an official diagnosis) will disagree. However, keep in mind, of course there are people who are self-diagnosed who would recieve an official diagnosis. But I believe there are, as mentioned, many “fake Aspies”. Maybe they want to feel special. Maybe they want to be associated with geniuses in the past who appearently had Asperger's. I don't know. But, as I mentioned, there are true Aspies among those having a self-diagnosis. Don't get me wrong.


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Last edited by Hidden on 14 Jun 2010, 10:18 am, edited 3 times in total.

DeaconBlues
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14 Jun 2010, 10:15 am

b9, I haven't been spinning tales of how I was pushed out of life as a child because after 46 years, even I'm tired of hearing me whine about how much life sucks.

And to extend one of your metaphors, if someone sees you go by in a car but has no idea what a car even is, they're unlikely to identify you as being borne in a self-powered conveyance with an internal-combustion engine. They're at least as likely to conclude that you've been eaten by some metallic monster, or can control strange otherworldly demons...

StuartN, I would like you to explain, if you would be so kind, what is "self-contradictory" about noting that some of us cannot afford competent psychiatric assessments. I don't know of any psychiatrist who volunteers his/her time; we have a tendency to "fall through the cracks" when it comes to government programs, as we are often able-bodied, and our problems with earning money aren't obvious at a glance; and I can't speak for anyone else, obviously, but my family can't pay for me to be assessed either (remember once again that by the time the diagnosis even came into existence, I was 30 years old; since it was new, and regarded as a "disorder of childhood", I would not have received the diagnosis even then).


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AphexSam
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14 Jun 2010, 10:30 am

Hey guys I made an apology topic for this topic which you should check out. It should hopefully explain alot :).



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14 Jun 2010, 10:32 am

[youtube]http://www.youtube.com/watch?v=1w7bDVZwf2E&feature=related[/youtube]


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14 Jun 2010, 10:42 am

This attitude by a few who have been professionally diagnosed with Aspergers is akin to "holier than thou." I applaud those who have been able to get a clear DX. I have not. However, since my daughter was DX'd a few years ago, it makes perfect sense that I have it too. She is very much like me, only I am nearly 50, & at my age it's damn near impossible to get anyone to see what I see in myself. I've taken the online tests...I test very high on the spectrum. I've also done scads of research on the subject. I know I am not the only in this predicament...there are plenty of people who happen to be in the very same boat. Just because there are some who don't like the fact that there are self-diagnosed individuals here, doesn't mean we shouldn't be allowed. This is NOT a private little club. And I seriously doubt that anyone who has self-diagnosed would rather jump on the autism spectrum bandwagon than be normal. It's insulting!


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14 Jun 2010, 11:10 am

Hidden wrote:
In my opinion, one should not claim to have Asperger's syndrome if one have not been officially diagnosed. Why? Specialists have experience in finding traits and symptoms in people which may lead to a diagnosis. People who believe they have a diagnosis is just as often wrong as right. I do believe there are many “fake Aspies” (self-diagnosed who wouldn't recieve a diagnosis by a specialist) on this forum. The reason I believe so is because we all do find traits in nearly all different diagnosises available. This means, if I were to diagnose myself, I'd be antisocial, schizoid, narcisstic, etc., merely because I believe most of those symptoms could describe me. But I'm certain I wouldn't apply for any of those diagnosises (except schizoid, maybe) if I were to be questioned by a specialist. “Seek and you shall find”. This statement applies for everyone and all diagnosises.

When I was told I might have Asperger's, I almost laughed because I had read about it and I believed none of those symptoms applied to me. Well, I was wrong. I could never have guessed myself. In my opinion, people should not claim to have Asperger's unless they have an official diagnosis. I guess many of you (especially those who don't have an official diagnosis) will disagree. However, keep in mind, of course there are people who are self-diagnosed who would recieve an official diagnosis. But I believe there are, as mentioned, many “fake Aspies”. Maybe they want to feel special. Maybe they want to be associated with geniuses in the past who appearently had Asperger's. I don't know. But, as I mentioned, there are true Aspies among those having a self-diagnosis. Don't get me wrong.


I'm curious. Do you, then, disagree with the people who say it's a difference, not a disorder?

If not, what label do you suggest for those for whom the difference isn't a disorder?


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14 Jun 2010, 12:49 pm

Mysty wrote:
I'm curious. Do you, then, disagree with the people who say it's a difference, not a disorder?

If not, what label do you suggest for those for whom the difference isn't a disorder?
Valid point. Although I'd label it as a disorder in some particular occasions, I'd more often refer it to as a difference. In other words, it's both a difference and disorder, which depends on the situation. Even though it may be seen as a contradiction, my point still stands, which I explained in my previous post.


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14 Jun 2010, 2:42 pm

I don't get why people don't understand how varied autistic people can be.

As far as the "How could people possibly be autistic and be mainstreamed" thing, which also totally ignores the extreme variation in school situations through different locations, times, etc. (So it can vary according to the exact school, if school existed, as much as it can vary according to the person's personal traits.)

There's also the problem that this is one possible trait. Autistic people vary a heck of a lot more than to all have the exact same troubles in the exact same situations.

If I were going to pull that sort of thing, which I'm not, I could say "Anyone who doesn't have to work like heck to understand words (far beyond auditory processing difficulties) and doesn't have long stretches of time when they don't even know what words are for, well they don't seem very autistic to me."

Which would be equally ridiculous. It's one trait. Some of us have it. Some of us don't. And not everyone who has it is going to talk about it all the time. And it's so completely wrong to judge someone's autisticness by whether they fit one possible autistic trait, even worse when you judge whether they fit it by whether they talk about it. It just shows a total lack of understanding of the fact there is no single trait (at least not at that level of detail) that all autistic people have been shown to have (researchers have been searching for such a trait for decades now and not found one).


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14 Jun 2010, 3:27 pm

I don't think it's true that every person who can legally offer a professional diagnosis is aware of how Asperger's can express itself in an adult. If someone knows nothing more than the basics of the criteria and not the myriad ways that criteria can manifest, particularly in an adult, then they are not qualified IMO. We've all read posts here by people who were dismissed because of eye contact, or because they were married or had a real job. Maybe diagnosticians should require certification.



700
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14 Jun 2010, 3:37 pm

Aimless wrote:
I don't think it's true that every person who can legally offer a professional diagnosis is aware of how Asperger's can express itself in an adult. If someone knows nothing more than the basics of the criteria and not the myriad ways that criteria can manifest, particularly in an adult, then they are not qualified IMO. We've all read posts here by people who were dismissed because of eye contact, or because they were married or had a real job. Maybe diagnosticians should require certification.


:cheers: I am not being told that I do not have it but they are trying to get me to go to have my assessment with people who according to the National Autistic Society have not done the relevant courses and do not have the experience. I quite clearly will not get as much from this as someone who does fit the criteria which is sad, hope they change there minds.



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14 Jun 2010, 3:59 pm

DeaconBlues wrote:
StuartN, I would like you to explain, if you would be so kind, what is "self-contradictory" about noting that some of us cannot afford competent psychiatric assessments. I don't know of any psychiatrist who volunteers his/her time; we have a tendency to "fall through the cracks" when it comes to government programs, as we are often able-bodied, and our problems with earning money aren't obvious at a glance


I think you provide an example in your own question.

If someone claims to have a disability that is impairing their ability to find full employment, or impairing social opportunity, or impairing psychological well-being, then it is surely worth having that disability correctly diagnosed and treated. That applies equally (maybe more so, in this case) if their informal self-diagnosis is wrong.



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14 Jun 2010, 5:26 pm

StuartN wrote:
DeaconBlues wrote:
StuartN, I would like you to explain, if you would be so kind, what is "self-contradictory" about noting that some of us cannot afford competent psychiatric assessments. I don't know of any psychiatrist who volunteers his/her time; we have a tendency to "fall through the cracks" when it comes to government programs, as we are often able-bodied, and our problems with earning money aren't obvious at a glance


I think you provide an example in your own question.

If someone claims to have a disability that is impairing their ability to find full employment, or impairing social opportunity, or impairing psychological well-being, then it is surely worth having that disability correctly diagnosed and treated. That applies equally (maybe more so, in this case) if their informal self-diagnosis is wrong.


It may be worth it. But that doesn't mean that:

Money is available to do so.

There's someone who can diagnose them.

There's treatment available that they need a diagnosis for.

There really is a lot of help available just from a self assessment. Probably, at least for us adults, more so than what's available only with a diagnosis. There's this place, and the information. There's books about autism, where we can learn more about autism, which gives us insight. There's various self-help skill learning aids, not always even for autistics in particular.


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