"fake aspies" and self diagnosis. DISLIKE, sorry.

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The last quote hits home with me.[/quote]

So by this then you should also be upset by the AS diagnosed people that are lucky enough not to have any symptoms that they cant learn to hide then !?

I know a man a bit younger than me and he does not speak to anyone, but he has spoken to me a few times. He stutters quite alot and says inappropriate things in the middle of sentences but he is a very nice man who is very knowledgeable and passionate. Just remember to stay a nice person and you will meet people who want to spend time with you, some people out there choose people on the basis of qualities they see in others and not the shallow ways of NTs. Oh and my Mum says she wished she hadnt had children quite alot I ignore her !

I am in the UK, I did go as a disabled student and no NEVER AGAIN ! !! !! I think you must have been very lucky where you went !

StuartN: I think you're missing what DeaconBlues has been trying to say from the start. If one doesn't have the cash or benefits available to obtain a diagnosis in the first place, there will be no benefits to outweigh the costs if one can't come up with the initial payment to begin with.

I can sympathize. The only reason I'm able to seek a diagnosis is because I do have the money, though it is dwindling fast. Not so long ago, I didn't have the cash or the benefits necessary to seek a diagnosis, though at the time, I never suspected I even had AS. If I did suspect it only seven or more years ago, that suspicion would never have been able to be anything more than a self-diagnosis.

No cash + no insurance = no diagnosis (and no benefits to outweigh the cost).

Worse, if it really IS AS, the AS itself can, and usually does, interfere with the ability to find and/or keep a job long enough to obtain the necessary benefits and/or cash to GET the diagnosis in the first place.

If my mother hadn't died six years ago, and left a tidy sum of money behind, I would not even be able to seek a diagnosis myself. If one DOES have the money, and I do, if I manage to get the process going before it runs out, I agree with you. It is well worth spending that money to get the DX in light of the support I'll be able to get once the DX is obtained.

If my mother were still alive, she may have been willing to help out, but who knows? It is what it is, and we all have to deal with the circumstances we find ourselves in. AS, unfortunately, whether it has been DX'd or not, can interfere with our ability to get the help we need.

700: Not to challenge you. I really want to know. Why, "Never Again?"

Some elaboration would really help us all better understand why you would not do it again given the opportunity. As one who is considering getting the DX (though it is in the U.S.), I want to hear from everyone, pro or con, as to why they think it's a good or a bad idea. Something more than just, "I wouldn't do it again" would be far more informative.

Why wouldn't you? What happened that changed your mind as to the wisdom of applying for disabled benefits?

NO the college, I would never try education again !

I think a DX is a good idea if not I would not be going for it myself I was unsure until I read this

http://www.wrongplanet.net/postt127150.html

I personally decided to for many reasons.
I was brought up to work and I am therefore the black sheep of the family (not to say it is better to have AS than a mental health problem)
I have never achieved anything in the same way as the rest of my family, it is not that I am incapable I just need to understand my limitations and learn how to cope with certain things in order to thrive in the outside world.
I have always had a great need to understand, I need to understand why, how and a million and one other things to be able to move on.
I feel I need to understand myself so I can prevent the problems that I have had eg I took the various tests and I scored very low in understanding and expressing my emotions. At first I was very upset and didn't believe it but it actually makes alot of sense to the problems I have had ! I know I have got alot to learn as AS children are actually more capable in these areas than me
My Nanny had problems and it would mean alot to my family to give them the possibility that she was.
My cousin might be and my diagnosis could stop her from going through what I had to.
I was told I had to get DX in order to access the services

No hard feelings. I was just having a bad morning and I didnt understand why you had written that to my post.

In the UK a diagnosis is not essensial to get help. Disabled support for students based on their difficulties, not on their diagnosis. Having a diagnosis may help explain those difficulties but isn't the golden ticket. My nephew receives all the help and support my daughter does but is not diagnosed.

It was definitely essential for me, in a university college setting doing an NHS funded degree. The disability department and the lecturers would not take my needs seriously until I got a diagnosis. They were saying that either I didn't have a real problem or else I should leave the course. It's been a real struggle to get my needs taken seriously, and a diagnosis was absolutely essential for it.

Once I got the diagnosis, then I got a needs assessment, and help is based on difficulties. But without the diagnosis, I would not have been able to have a needs assessment or DSA and the lecturers would not have made any accommodations for me. I would have had to quit the course - which I very nearly did.

I didn't get any advice or support about going about getting a diagnosis - I was simply told that adults don't get diagnosed with Aspergers. I had to go about all that myself, and wasn't even sure it would help. Maybe some universities are more disability friendly, and your daughter is clearly very fortunate, but sadly it is not universally the case.

NP. I didn't think there were hard feelings. But then, you really have to hit me over the head with a two-by-four to get me to see it sometimes.

It would cost me 1000 to get a cheap assessment done at the University of Calgary. But it's on my to do list.

[quote=
In the UK a diagnosis is not essensial to get help. Disabled support for students based on their difficulties, not on their diagnosis. Having a diagnosis may help explain those difficulties but isn't the golden ticket. My nephew receives all the help and support my daughter does but is not diagnosed.[/quote]capriwim

[quote=MotherKnowsBest wrote:

It was definitely essential for me, in a university college setting doing an NHS funded degree. The disability department and the lecturers would not take my needs seriously until I got a diagnosis. They were saying that either I didn't have a real problem or else I should leave the course. It's been a real struggle to get my needs taken seriously, and a diagnosis was absolutely essential for it.

Once I got the diagnosis, then I got a needs assessment, and help is based on difficulties. But without the diagnosis, I would not have been able to have a needs assessment or DSA and the lecturers would not have made any accommodations for me. I would have had to quit the course - which I very nearly did.

I didn't get any advice or support about going about getting a diagnosis - I was simply told that adults don't get diagnosed with Aspergers. I had to go about all that myself, and wasn't even sure it would help. Maybe some universities are more disability friendly, and your daughter is clearly very fortunate, but sadly it is not universally the case.[/quote]

When I started the degree I had already been ill for a number of years but they said I was depressed. I had a advocate from my home county and student services at the college and I still could not keep up with the effect of there actions. eg.There were alot of field trips they regularly canceled and changed them as well as the lessons even the NT students were complaining and this made it worse as it seemed to get their backs up. Recently I asked my advocate if a diagnosis would have made any difference to how I was treated in my last workplace or the college and he said he didnt think so ! Yes I got a computer and software but it just reminds me of what happened and I would rather not have been given any of it and had been able to do the course !

I was told by the National Autistic Society that you can not access their services unless you are diagnosed and it has to be at one of their recommended locations. Given that I could go through my medical records and highlight enough relevant parts to prove AS I am not to sure I would trust the local NHS, I mean I have been a burden on society and very bad health which is far from me for over ten years and they haven't bothered to do anything, no drugs, no counseling nothing !

I think you have both been very lucky with your experiences !

I am wondering if this thread should be locked, since the OP has separately posted a change in his opinions since the thread started. Thoughts?

We do have other posters arguing the same position and if you close this one they may just make a new thread on the subject to continue. Perhaps if possible adding a note to the OP that the OP changed their position and allowing the thread to die a natural death?

I only noticed yesterday that the original poster had started another thred dont know why they didnt put a link on the original thread to notify everyone !
I take its getting to UK for you then

He did post here saying he'd made another thread.

As for whether this thread should be closed, I don't see why it has to, as this seems to be a hot topic regardless of the OP's view change. If he feels strongly about it, he could edit his OP to announce that his view has changed. But there are plenty of threads that are resurrected from years ago, and the OP may not even be around any more, but the topic itself is still discussed because enough people are interested in it.