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bee33
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24 Jun 2010, 3:09 am

katzefrau wrote:
what a mess. it's terrible - i may be undiagnosable because i can carry on a conversation, and yet i have been unable to achieve any of the major milestones by which most people measure their successes in life. it is a trail of burned bridges and financial ruin and corpses of friendships .. i am just now figuring out what has happened.

i recently wrote to a local diagnostician who said most specialists have never seen a woman with ASD because they are outnumbered 15:1 by men. i tried to explain what was really going on and he had no interest in my response.

Yes. The statement I bolded applies so well to me as well (though I still haven't figured out what's happened....) and yet I appear to be perfectly ordinary.

When I first heard about the proposed changes in the DSM, I was hoping the new criteria would actually be more inclusive, recognisizing that autism is a spectrum. I hoped they would then include the whole spectrum, but no, it's just the opposite.

You may not be undiagnosable, though. I was able to get an assesment from an AS expert. (What good it will do me is another story, since I can't find a therapist I can afford who knows anything about AS.)



Salonfilosoof
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24 Jun 2010, 5:04 am

OneStepBeyond wrote:
Ferdinand wrote:
Guys date any girl who are at least half-pretty. ASD girls have it easy.

This isn't true at all and neither is the 'bad boy' thing. Maybe it's fair to say they have it easier than men but to say they have it easy is way way off. But I think it's a forgivable misconception for a teenager to have...


To someone who doesn't have a clue how to get a date at all, "easier" means "easy". A 0.5% chance of success still feels like a great chance if you don't get beyond 0% yourself.

OneStepBeyond wrote:
Pithlet wrote:
Nope. I look perfectly ok, and guys may approach me at times, but they sense my differentness almost imediately. It scares them. Besides, we have just as much trouble connecting with people as guy aspies do. So even if I did like a guy that was willing to put up with my strangeness (and even occasionally be accidentally imasculated by my tomboyishness) I'd probably still blow him off the same way I do to anyone that tries to get too close. I don't think I do it on purpose, I just don't know how to have a typical two-way relationship with anyone. Something gets in the way.


This is a spot-on response!


I find tomboyishness and weirdness quite attractive in a woman and I'm sure many other men out there do. I wouldn't care too much about that if I were you. Just avoid coming off as selfish or boring. For me, those are the biggest turn-offs when it comes to Aspie women.

Cuterebra wrote:
Um... Yeah, growing up as a socially naive but pretty girl with AS is a piece of cake. I mean, who wouldn't want to be a target for unscrupulous older guys or pedophiles as a preteen?


Almost all women are naturally drawn to so-called "bad boys" and will inevitably end up being physically or emotionally abused if they follow their instincts. Proper education can help reduce the naivity and make the girl more aware of the dangers all semi-decent to pretty women inevitably face... not just for girls with AS but girls in general. To make this an AS problem is to overlook a bigger more general problem that bothers both naieve women and decent guys (who - if they're lucky - end up with very insecure women who lost their confidence in men because of so-called "bad boys").



tomboy4good
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24 Jun 2010, 10:43 am

I have basically spent my life stumbling along. I can't say I'm successful as my preferred profession, is not what I'm doing to get by with a regular paycheck (customer service rep). Never really understanding social implications or what's expected of me. Also, people think just because I can carry on a conversation one on one, that I'm perfectly functional-this includes my husband. They haven't observed how things rapidly deteriorate when I am in a social group. I'm on my best behavior when I keep my mouth shut & just listen. I also do my best not to stim in front of others, though it's something I do when I'm tense. It's when I start talking that things go very wrong. It's not a new phenomenon, I've been like this forever. Unfortunately, shrinks & doctors don't observe me in social situations or at work, & don't know the anxieties & stress that I endure on a daily basis. Would that they'd follow subjects like some wildlife observers...then they'd get a really clear picture of the daily struggles.

I tend to take my camera everywhere. It's more than my security blanket, it;s also a way for me to stay functional. Besides I see photo ops pretty much every place I go. :-) It's also what my dream job would be.


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24 Jun 2010, 11:11 pm

Hi Tomboy..

That's exactly why I started this petition.. so many of us can appear normal in some situations and fall apart in others. I don't think the professionals will do the work to see through the guise of competence unless they are prodded towards more awareness for the plight of girls with ASD.


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katzefrau
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24 Jun 2010, 11:41 pm

bee33 wrote:
You may not be undiagnosable, though. I was able to get an assesment from an AS expert. (What good it will do me is another story, since I can't find a therapist I can afford who knows anything about AS.)


i was (thankfully) in therapy when i self-diagnosed, and my therapist had already suspected it. although she hadn't treated anyone with AS before (let alone a woman) she was comfortable with me being very direct saying things like "this doesn't work," "that's an unanswerable question," and "what you just said is dismissive and not helpful" etc. i had meltdowns in her office and she said it was like walking around in a field of landmines. i was frustrated beyond belief and thought maybe i couldn't tolerate talk therapy at all but didn't know how else to get help. she adapted to my different style of communication and we are starting to work well together. also without even getting a diagnosis i am effectively getting treatment that addresses management of sensory issues, miscommunications and other related topics. (i don't know what else someone who is trained to work with Asperger patients would do?)

this is at a sliding scale clinic and my sessions are very cheap. i did not have to educate her about AS but we did have to figure out together how to communicate, and we are still figuring it out. the one thing that still frustrates me is she refuses the concept of "normal" so i can't just ask what a neurotypical would expect in a situation. she tries too hard to relate and sometimes misses the magnitude of what i am experiencing, which makes me angry. for example she'll say something like "everyone might get butterflies in their stomach before having to ask a question of someone they don't know" when i discuss anxieties about talking to other people. that's not even the same planet. it makes me angry.

but mostly it is a good thing and it's all i can afford. i'm lucky to have any help dealing with this at all.


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TheDoctor82
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25 Jun 2010, 1:14 am

yeah, people told me similar s**t when I was growing up; of course none of it ever worked....and I honestly believe they knew it wouldn't.

Call me cynical but...well, I am :lol:



electric_sheep
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25 Jun 2010, 1:34 am

I actually did a paper for a Women and Gender Studies course (I just graduated with a minor in such things) on how the current ASD diagnostic processes (how the criteria is evaluated and differentiated from other disorders) are inherently androcentric (male-oriented). I admittedly wish I had this thread when writing my relatively dry report. I only had 10 pages to work with when explaining ASDs to a NT that wanted to see more feminist rhetoric than a rant about the pseudo-scientific processes...but, all the same, this would have been fun stuff to share as part of a presentation.

On the personal experience dimensions...as a male, I won't pretend to know what it is like for females by using a female-vs-male comparison. To presume what I cannot experience or accurately observe is...dumb. Epically dumb.

However, I offer forth my sympathies all the same.



Woodpeace
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25 Jun 2010, 2:57 am

I have signed the petition.



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25 Jun 2010, 3:07 am

Cuterebra wrote:
Ferdinand wrote:
Guys date any girl who are at least half-pretty. ASD girls have it easy.


Um... Yeah, growing up as a socially naive but pretty girl with AS is a piece of cake. I mean, who wouldn't want to be a target for unscrupulous older guys or pedophiles as a preteen?

Seriously, there is way more to life than getting dates. Girls with AS have issues boys never have to deal with and vice versa--it seems pointless to argue that one gender has it worse than the other overall. And being pretty, while usually an asset, can just add to the misery of high school. The social awkwardness of AS is enough to make a girl a target of the mean and popular girls, but when you add pretty to the mix they can be especially vicious.


Yes, it's a long time ago but that's exactly it. Only it doesn't stop at high school or ever, that I can see. Only by avoiding relationships entirely (maybe).



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25 Jun 2010, 1:54 pm

MathGirl wrote:
buryuntime wrote:
I think this is bullshet, the criteria is fine as it is proposed. I mostly say this as someone who can relate to very little of the points on the blog.
I concur with the second point. I think the bigger issue among the Asperger's community is the merging of AS and autism. I don't see a problem in the criteria itself for the new autistic disorder. "Lack of social reciprocity" was mentioned in my diagnostic report, and I don't consider myself as being badly socially adapted. I just socialize differently, that's all.


The problem with the new criteria is:

1. They require a person to have every social criterion instead of just some.

2. The communication criteria are gone. This means that people who qualify for a diagnosis now because of primarily communication issues, is going to lose out.

3. The diagnosis is moving even further away from the perceptual abd cognitive (rather than social) roots of autism than it already is. And is exalting the furthest outward signs over the reality underneath them (that can exist without every criterion being met).

4. In order to determine severity they use things like how often a person stims or how social they are. Things that can vary as much based on environment as on innate traits. Meanwhile they are totally ignoring things like how it affects life skills, understanding surroundings, movement difficulties (by which I mean apraxia-like ones rather than clumsiness or poor coordination although those things can be affected too).

5. It discounts people who can mask themselves socially but still have all the cognitive and perceptual and movement differences that lead many people to qualify by those criteria. And the social criteria have been based on misunderstandings since the time if Kanner.

I don't understand why some people are going "the criteria fit me so I don't see a problem". The criteria fit me too but they don't fit every autistic person and that is a problem.


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katzefrau
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25 Jun 2010, 10:53 pm

anbuend wrote:
3. The diagnosis is moving even further away from the perceptual abd cognitive (rather than social) roots of autism than it already is.


i have never understood the focus on such specific social manifestations.
isn't autism at root a perceptual and cognitive difference?

whenever i read the social impairments section of DMV diagnostic criteria (old or new) i always think of Carly Fleischmann going to the mall and picking out lip gloss, or giggling when she types out to an interviewer (re: his son) "is he cute?"

are doctors unaware that people with autism are human beings?

anbuend wrote:
I don't understand why some people are going "the criteria fit me so I don't see a problem". The criteria fit me too but they don't fit every autistic person and that is a problem.


right. exactly.


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katzefrau
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25 Jun 2010, 10:56 pm

also electric_sheep:

if you have any interest in sharing the paper you mentioned, i would like to read it.


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OddDuckNash99
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26 Jun 2010, 8:23 am

Pithlet wrote:
Ferdinand wrote:
Guys date any girl who are at least half-pretty. ASD girls have it easy.

Nope. I look perfectly ok, and guys may approach me at times, but they sense my differentness almost imediately. It scares them. .

Same. I've never been on a date. And I'm almost 23. I don't have horrible social deficits, but I am naturally quirky/eccentric, and this doesn't make most guys want to romance you.

And I'm all for petitioning the DSM-V for this reason. And for many other reasons. The new DSM-V criteria is terrible, if you ask me. Girl Aspies like myself who fell through the cracks their whole life are just going to keep falling through the cracks...
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26 Jun 2010, 3:24 pm

Thanks everyone for your support with this petition. It's up to 70 now! :)

Hopefully, this will help us fall through the cracks less.

My BF listened to a radio show last night on the DSM and autism, and the speaker basically said that the taskforce is still very open to amending the criteria, which surpised me and gave me hope.


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27 Jun 2010, 4:23 pm

I try to cover up my social awkwardness by being funny and laughing at myself. I often appear goofy/quirky and I notice this seems to attract guys at first because they say I am "fun". I also try to cover it by being super nice, that way people won't be so mad at me for being so weird.

However, when these guys (and other people) get to know me better and begin to see I'm not such a "fun" person and I have problems, they leave and forget all about me.



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27 Jun 2010, 4:33 pm

Hello wrote:
I try to cover up my social awkwardness by being funny and laughing at myself. I often appear goofy/quirky and I notice this seems to attract guys at first because they say I am "fun". I also try to cover it by being super nice, that way people won't be so mad at me for being so weird.

However, when these guys (and other people) get to know me better and begin to see I'm not such a "fun" person and I have problems, they leave and forget all about me.


naw :heart: