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Chronos
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11 Jul 2010, 1:04 am

It's been called to my attention that most tests for AS are only applicable up to between 18 and 22 years of age....and quite expensive.



Danielismyname
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11 Jul 2010, 1:09 am

I've only ever seen interviews for ASD diagnoses. I know some people go through a whole battery of tests, and some take something like the AQ test in the presence of a psychic/psycho, but they're still in addition to the interview/s.

The actual interview is really the main diagnostic tool, as they can see if you have this or that by just looking at you as you do [or don't] talk.



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11 Jul 2010, 1:27 am

Yes. Ironically, the better you can communicate your experiences, the more likely it is that you will get a good evaluation--but if communication is impaired, then this can be difficult. Consider bringing family, especially if said family member knows you and your problems very well.

There are no rating scales that are independently capable of diagnosing someone as autistic. The only such scales are used by psychologists, psychiatrists, and neurologists as tools--and they don't have to take the results as gospel; they are only there to point the doctor in the right direction.

Diagnosing something that can't be detected by physical testing is really a judgment call (but so is diagnosing something that CAN be detected by physical testing, though to a smaller degree). That's why the doctors doing the diagnosing need to be well-trained, not just in autism, but in all the things that could look like autism--otherwise they will misdiagnose someone as autistic because they spend so much time thinking about autism that they see it everywhere.


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11 Jul 2010, 2:00 am

There are questionnaires as well as interviews. And most AS tests are done on children not adults from all that I've read.

Us adults are pretty much ignored unless we have kids suspected to be on the spectrum. Then they want to know and they ask questions about your childhood to decide if you are AS or not.



chessimprov
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11 Jul 2010, 2:16 am

It's possible to have tests done on yourself, but it's very expensive and may be hard to find good people to do it.



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11 Jul 2010, 2:21 am

Im 39 yrs old and only recently a offically diagnosed female Aspie (first person in my family to be diagnosed thou my daughter and father also have this). I have heard that it is often very hard for females to get diagnosed but i found it easy when i saw the experts in it.

The Autism experts at the Autism Society did my diagnoses, i refered myself to them (didnt need a doctor.. all doctors had diagnosed me with something else! which now cause of the AS may be wrong). It WAS very expensive and not covered by health insurance or medicard and also the waiting list was very long (and costs actually went up a lot while i was on the waiting list! which i think was unfair).

Assessment took place by many pages of forms with questions to be answered. (i was glad they werent multiple choices as i always overanalyse with those and have trouble with them). There was also forms to which those who knew me had to fill out too...
My mother filled out one (I'd thought my mother didnt know me and hadnt been aware of stimming behaviour i had as child and thought i hid well, so i was surprised when i found out she knew all these things about me i wasnt aware she did.. and other AS stuff which i wasnt aware i even do). My boyfriend of nearly a couple of years, filled out a form on me too.

The forms where then sent back to the Autism society and they looked at them (if it didnt look like i had possible Asperger's from the forms, they would of told me at this point and i wouldnt have had a one of one assessment and had to pay for an assessment). I think the info on the forms alone, clearly showed i had Asperger's. From there i had a 2 hr assessment with 2 Austim/Asperger's experts and got my official diagnoses immediately at end of that.

I got told they need two experts to agree on it before they will diagnose. (i dont know how it works in other places but that is how it works where i live).

For anyone here who is Adult knows they are a Aspie but cant get a diagnoses... I can tell you right now it's basically useless seeing anyone for a diagnoses unless they are used to seeing Adults with Asperger's esp if you are female. (I'd seen so so many different specialists and been in hospital so many times for my severe behavioural issues.. but no one picked it up.. none of them knew about Asperger's).

contact your autism societies.. and go throu them.



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11 Jul 2010, 2:34 am

Point is, we're not stupid, and we learn from experience just like normals. The experience is different, that's all. So as we get older the diversity of individual behaviour grows harder to formalise.



Chronos
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11 Jul 2010, 4:22 am

violetchild wrote:
For anyone here who is Adult knows they are a Aspie but cant get a diagnoses... I can tell you right now it's basically useless seeing anyone for a diagnoses unless they are used to seeing Adults with Asperger's esp if you are female.


Well put. I wasn't actually looking for a diagnosis as I never really flew under the radar, but it still bothers me that AS is thought of as something specific to male children.



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11 Jul 2010, 4:23 am

peterd wrote:
Point is, we're not stupid, and we learn from experience just like normals.


And I think perhaps we learn better!



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11 Jul 2010, 8:17 am

I was diagnsoed at age 21, and the only interviews/questionnaires/etc. they administered directly to me were the AQ-test and the DSM interview. The extensive interview was done with my parents. I thought this was normal since it is important to know that one's development was abnormal, as to distinguish AS from such things as schizoid personality disorder, etc.



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11 Jul 2010, 9:01 am

RE: adults learning to compensate and such,

I've found that adults with an ASD are actually easier to detect than children. Whilst the behaviour isn't as pronounced in adults, it's far different than the behaviour of normal individuals of the same age. With kids, normal kids often do funny things that you just say is to do with being a child, so a child with a verbal ASD can be just seen as funny and quirky, to a greater extent than their adult brethren.



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11 Jul 2010, 2:12 pm

peterd wrote:
we learn from experience just like normals.


I have found this not to be the case with either me, or my three kids on the spectrum. Learning from experience, for us, is a major obstacle, because it takes us far longer than NT's to detect patterns of cause and effect. In addition, we all seem to have an extremely difficult time learning from others mistakes. Seems to me to be an odd sort of trust issue. If we don't experience it ourselves, we can't seem to accept someone else's word for it. How often do Aspies, as kids, get frustrated because they keep getting the same negative results from the same actions over and over? How often is that seen in adult Aspies?

I don't think we learn from our mistakes the same as NT's at all. I'm not saying we never learn from them, but only that it takes us far longer than NT's. From what I've seen, this is one of the most obvious characteristics of Autism. Though it doesn't necessarily mean we're all like that, I think it's very common.


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chessimprov
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28 Jul 2010, 10:25 pm

It is possible in the US to get an official diagnosis from just one person if they have the right qualifications.



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29 Jul 2010, 7:46 am

chessimprov wrote:
It is possible in the US to get an official diagnosis from just one person if they have the right qualifications.

The lady that diagnosed me was a neuropsychiatrist and before I went to her I researched her and it showed a impressive body of work in the field so if anyone would know I guess she would.


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29 Jul 2010, 8:25 am

violetchild wrote:
Im 39 yrs old and only recently a offically diagnosed female Aspie (first person in my family to be diagnosed thou my daughter and father also have this). I have heard that it is often very hard for females to get diagnosed but i found it easy when i saw the experts in it.

The Autism experts at the Autism Society did my diagnoses, i refered myself to them (didnt need a doctor.. all doctors had diagnosed me with something else! which now cause of the AS may be wrong). It WAS very expensive and not covered by health insurance or medicard and also the waiting list was very long (and costs actually went up a lot while i was on the waiting list! which i think was unfair).

Assessment took place by many pages of forms with questions to be answered. (i was glad they werent multiple choices as i always overanalyse with those and have trouble with them). There was also forms to which those who knew me had to fill out too...
My mother filled out one (I'd thought my mother didnt know me and hadnt been aware of stimming behaviour i had as child and thought i hid well, so i was surprised when i found out she knew all these things about me i wasnt aware she did.. and other AS stuff which i wasnt aware i even do). My boyfriend of nearly a couple of years, filled out a form on me too.

The forms where then sent back to the Autism society and they looked at them (if it didnt look like i had possible Asperger's from the forms, they would of told me at this point and i wouldnt have had a one of one assessment and had to pay for an assessment). I think the info on the forms alone, clearly showed i had Asperger's. From there i had a 2 hr assessment with 2 Austim/Asperger's experts and got my official diagnoses immediately at end of that.

I got told they need two experts to agree on it before they will diagnose. (i dont know how it works in other places but that is how it works where i live).

For anyone here who is Adult knows they are a Aspie but cant get a diagnoses... I can tell you right now it's basically useless seeing anyone for a diagnoses unless they are used to seeing Adults with Asperger's esp if you are female. (I'd seen so so many different specialists and been in hospital so many times for my severe behavioural issues.. but no one picked it up.. none of them knew about Asperger's).

contact your autism societies.. and go throu them.

That was more or less my experience as well. I was Dx at 46 and I am female. I went to see an AS specialist who only sees patients with AS. She had me fill out tests ahead of time (mostly the same ones that are in the thread about AS quizzes). One of them had to be filled out by someone who knows me and I had it filled out by my bf, whose answers indicated I was normal. :) I talked to her for two hours. That was the extent of it, but I felt her verbal assessment was very thorough. It cost $600 with no written evaluation, which would have cost another $600.

She said that my social difficulties are extreme, but that I don't have some of the other traits characteristic of AS, but she also said that females rarely fit the criteria exactly. She said that my social difficulties are bad enough to be considered a significant impairment, in spite of other traits being absent (for instance I don't stim), I do have sensory issues, which I had not realized were different fro other people's until I talked to her. I was diagnosed as "on the spectrum" but not fully AS.