What are the benefits and cons of being diagnosed?

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Meliev
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05 Sep 2010, 2:54 am

well, i was reading somewhere in WP about getting diagnosed, but while i was surfing along someone mentioned that being diagnosed had its benefits when it comes to being a "grown up" but also it "blocks many doors". I would love to know its benefits, (other than learning the truth about yourself) but i would also like to know its cons, so can anybody please tell me? I would like to know which "Doors" it blocks out for me in the future.

additional info: i know pretty well im an aspie (pretty obvious) school is okay, im not a total reject, i have a couple of friends like 15 or so in a school of 3,000 and something, my worry is homework since i cannot concentrate no matter what i do :( (i almost failed last year) speaking of last year i got so depressed that i was suicidal (still a secret) that i stayed at home from school for many days (got in huge trouble) my posture is weird, i walk like a penguin, i cannot look at someone in the eye at all, my voice is low, im shy and etc. etc. and pretty much anything else in the symptoms categories of aspergers, With this in mind, should i even consider a diagnosis?

Well overall, i would like this question be answered to the rest of the aspies out there that are also considering getting a diagnosis



JayL
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05 Sep 2010, 4:14 am

I'm considering a diagnosis. but I'm also considering doing something big with my life and for that the diagnosis might affect.
I'm still quite 50/50 about it. I got my army delayed due to it, but havent actually gone to psychiatrist yet.

I can easily imagine that being leaked and used against me to make me sound less convincing no matter what issue.



MicroChip
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05 Sep 2010, 4:43 am

JayL wrote:
I'm considering a diagnosis. but I'm also considering doing something big with my life and for that the diagnosis might affect.
I'm still quite 50/50 about it. I got my army delayed due to it, but havent actually gone to psychiatrist yet.

I can easily imagine that being leaked and used against me to make me sound less convincing no matter what issue.


People with Asperger's are disqualified from joining the US Military as of April 2010.

But other than the military, nobody else can look through your medical files unless you let them by giving signed permission (HIPAA Privacy Rule protects you there).



JayL
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05 Sep 2010, 5:43 am

thats what I meant by leaking, someone will leak the file to publicity for money.



n4mwd
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05 Sep 2010, 7:43 am

You can get a private diagnosis by paying cash. If you use any kind of insurance, the law requires the doctor to tell them. When that happens, its pretty much common knowledge and everyone will know in spite of hippa privacy laws. With a private diagnosis, you pay cash and don't give your SS#, ID or real name. Nobody will know but you and the doctor.

Pros:
You'll know better how to deal with it.
If you are bad off enough, you can qualify for public assistance.

Cons:
If your insurance finds out, its considered a pre-existing condition and is grounds for denial of coverage.
In some countries like the UK, its grounds for taking your children away if you have them.
People incorrectly associate aspergers with mental illness. Its not, its just a social learning disability.



Last edited by n4mwd on 05 Sep 2010, 7:53 am, edited 1 time in total.

iniudan
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05 Sep 2010, 7:48 am

Really depend on what available around where you live, but for me it actually helped me land a job, cause had access to work program (state pay a part of the salary, so employer is more accepting of my difficulty). (But I didn't seek the diagnosis, got it while I am seeing a psychiatrist for other reason)

And on wage part it is far from been a bad, even if part time (24,5 hours a week), it is enough to pay the rent for a 2 1/2 apartment, pay for living stuff and have some luxury (which mostly end up been computer related stuff in my case =p). All while paying back for study dept.

And gave me access to social resource specialized in autism. Which is quite helpful, for one they helped me find this apartment I am living in currently, even if I disliked my previous apartment, the anxiety of finding a new one was just too much for me. I actually can see myself living in this location for many years, if plan to return to study doesn't has me requiring to move, which is I go in informatics will not for I live like 15min walk distance from school with the program. =p


But I live in Quebec, Canada, so I admit the social security tend to be a bit more heavy then what available in the US.



n4mwd
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05 Sep 2010, 7:57 am

iniudan wrote:
Really depend on what available around where you live, but for me it actually helped me land a job, cause had access to work program (state pay a part of the salary, ...


In most cases, it works against you when seeking a job. Its definitely not something you want to put on your resume. Employers get stacks of them and its too easy to misplace the ones that say they have a disability.



iniudan
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05 Sep 2010, 8:04 am

n4mwd wrote:
iniudan wrote:
Really depend on what available around where you live, but for me it actually helped me land a job, cause had access to work program (state pay a part of the salary, ...


In most cases, it works against you when seeking a job. Its definitely not something you want to put on your resume. Employers get stacks of them and its too easy to misplace the ones that say they have a disability.


True if I was seeking a job normally I would never do so, but like I said I had access to work program, and person taking care of me contacted employers even before I show up in an interview, which help keep confidentiality of who I am from those who are not serious.



sickforapathyx
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05 Sep 2010, 11:33 am

If you have awkward posture and walk like a penguin, then fix it. You need to try sitting and standing more socially polished. Its not that hard to adapt to, you just have to watch how other people are sitting.

Sit up straight with your chair scooched in, put your hands in your pockets, cross your arms, etc.



Kitty70
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05 Sep 2010, 11:58 am

I would think the biggest thing about getting a diagnosis is knowing for sure that AS is what your dealing with. It might not be that at all. It could be something else and you'd be missing it and not getting treatment you could be getting.

You mentioned depression. What if it turns out you are clinically depressed or something and there is a treatment for it but you aren't getting the proper treatment because you didn't get diagnosed. Also feelings of suicide should not be ignored. Please talk to someone about it. Have you ever seen a therapist? So I guess I'm also saying rule out other things too.

BTW you said you have 15 friends. I probably had that many ( maybe less) and I'm NT. You must be doing something right and obviously there are things about you that people like. So keep up the good work :)



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05 Sep 2010, 12:44 pm

Being diagnosed hasn't hurt me at school. I don't think you should be keeping it a secret anyway because when you're visibly odd, people want to know that you have a quirky brain and can't help walking funny or having an odd cadence to your speech, rather than being some kind of axe-murderer who's going to come after them in their sleep. But that's your choice.

In many cases, not knowing is a bigger problem because it means you can't get help. If you need help, you have no choice but to ask for a diagnosis--because you'll need those accommodations to do whatever it is you have planned.

If you did end up doing "something great" (let's say you became a famous musician, for the sake of argument), I highly doubt that being "outed" as autistic would hurt you any. People might be mildly surprised, or they might just say, "Ha! I always knew he was a bit quirky." Many parents would probably say, "Look at this guy over here. He's a famous musician and he has Asperger's just like my kid. Those people who say my kid's life is useless and hopeless must be wrong."

So, yeah: If you need help, go get it. And if you're scared you won't be able to advocate for yourself, I highly recommend going to a disabilities support group to learn from the other people who've been doing it in some cases for their whole lives. Autism support groups tend to be less focused on that sort of thing in general, but if you can find one, that's great too.


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05 Sep 2010, 4:53 pm

n4mwd wrote:
In some countries like the UK, its grounds for taking your children away if you have them.
People incorrectly associate aspergers with mental illness. Its not, its just a social learning disability.


This is simply not true.



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05 Sep 2010, 4:57 pm

StuartN wrote:
n4mwd wrote:
In some countries like the UK, its grounds for taking your children away if you have them.
People incorrectly associate aspergers with mental illness. Its not, its just a social learning disability.


This is simply not true.


Actually there was a well documented case that made national news in the county of essex were a mother diagnosed with AS upon her diagnosis was threatened by social services that she would have her autistic children taken into care on the grounds of her being an unfit mother from aspergers syndrome. She ended up completly mistrusting any form of professional and ignored the early signs of renal failure, which she eventually died from leaving a husband and two children.

I believe her name was Debbie Storey, I had limited contact with her at the time of her appeal against social services in her county. I would have hoped the situation has vastly improved since that debarckle as I think in all fairness those professionals involved in that case were lucky to not be prosecuted for corporate manslaughter



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05 Sep 2010, 5:34 pm

I will speak for myself on getting diagnosed. I went to get professionally diagnosed because I wanted an expert in the field to determine if I had AS. I was diagnosed using two criteria (DSM-IV and the Gilliberg). After receiving my diagnosis of AS I underwent some therapy in late 2008 and early 2009. That was a benefit. But most of all, realizing that I have AS allowed me to understand the eccentricities of my life. And I adopted the motto, "My journey has just begun." Since that time, my grade-school age son was diagnosed with AS, and our school's evaluative team tested him and gave him an IEP in autism. That has helped him tremendously with smaller classes and adaptations. He also takes speech therapy. He also joined the Challenger League baseball team for children with disabilities. He enjoys it and does well. I feel regular little league would have been frustrating for him. He chose the challenger league over the regular little league---we (his parents) gave him the choice.


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05 Sep 2010, 5:44 pm

StuartN wrote:
n4mwd wrote:
In some countries like the UK, its grounds for taking your children away if you have them.
People incorrectly associate aspergers with mental illness. Its not, its just a social learning disability.


This is simply not true.


Here is a thread by someone that that happened to:

http://www.wrongplanet.net/postt134777.html

mustard123 wrote:
hi i'm a 25 year old guy and i was diagnosed with aspergers a year ago. i was a single dad with two sons aged 2 and 4. after i was diagnosed i was given a social worker to help me with my problems. she suggested having the boys took into care temporarily as i was having a depression and she suggested i have a break, i was reluctant to do this but agreed. well my boys never came home, the social services made an application to have them adopted and i had to go family court. the judge decided to have them adopted, i couldn't believe it when he told me, i think i went into shock, i tried to appeal the decision but it was blocked, the adoption has now been officially processed and i've lost my boys for good, i may get them back when they are adults if they want to know me but i've had the right to bring them up n see them grow up taken away from me. wat did i do to deserve this punishment, i was a good dad n loved them. just cos i'm an aspie i get punished, i am trying to get my head round this but everywhere i go i see boys their age with their dads and its so hard to know i had that and it was taken away.


lotusblossom wrote:
I dont know what can be done about it though, even Tony Attwood says in his 'complete guide to aspergers' that the asperger parent should not get custurdy. I feel too hopeless about it to think of good ways to solve it.


lotusblossom wrote:
yes I read everything i could find on asperger parents to try and support my case, but found most books were actually very negative about asperger parents so could not support me at all. In the 'complete guide to aspergers', he talks about parents with aspergers from p311-313, and its all quite negative. He meant custody in a divorce though not from social services. He says aspies cant meet childrens emotional needs and wont have good judgement about what they need.


mustard123 wrote:
it was done with my knowledge and i did get a hearing i had a day in family court. the social workers gave their case for adoption and i gave mine for why i should keep my boys, i was aided by a solicitor. i was advised to stay calm and polite at all times and address the judge as sir which i did. when the judge made his decision i sat calmly and listened to what he was saying, it didn't really sink in at the time, i was in shock i think. the judge told me he could see i loved the boys but that he felt the boys would be better off with a mum and a dad and that my aspergers could cause problems for them growing up.he offered for me to see a consellor if i wanted to to help me come to terms with the decision and i said yes i did. my solicitor told me to thank the judge for the counselling and i calmly said 'thank u sir' and smiled. now i've been sent to group therapy for men with 'issues'. its run by a woman who treats us all like we're kids, some of the men are in their 50's and 60's i'm sure they don't appreciate it.



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06 Sep 2010, 5:24 am

I am sure anyone can find individual anecdotes that link a specific condition with having children removed and taken into care. However, these are anecdotes, they are not representative of all cases of the condition. In addition, there are compound factors in every one of these ASD anecdotes, where other conditions more relevant to child welfare were also present. Only a copy of the court records would adequately show which conditions were relevant to the decision to take children into care, or award custody to another party.

It is not true that having a diagnosis of Asperger's or autism is grounds for having children taken into care.