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babybird
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14 Nov 2011, 1:51 pm

I'm nearly 40 and up until the last couple of years I really didn't see the importance of anything, not money, not a job or education. At this moment in time though I do have a job and I am in college but it's a struggle. however I would never considered myself to be severe up until I started trying to attain things.



Sweetleaf
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14 Nov 2011, 9:47 pm

Another_Alien wrote:
I know this is controversial, but I don't think most people on WP have 'typical' Aspergers; just a mild version of it. For most people on WP, Aspergers is more of a quirky personality thing, rather than something profoundly disabling. The most disabled Aspies are too disabled (or too disconnected from reality) to fully understand the concept of their condition, and therefore come on WP to talk about it. Besides, anyone who's glad they have Aspergers (as many people on WP are) can't have too many serious Aspergers related issues (unless they're masochists). I also base all this on my own observations: I have personally made the journey from severe Aspergers to mild (practically non-existent) Aspergers, and I'm certain the vast majority of people on WP aren't as severly affected as I was.

Mild/Moderate/Severe Aspergers, as I see it:

Mild

You have some quirks/eccentricities, but you've basically got your **** together, and have most of the following:

- A reasonably good job, or you're on course for a reasonably good job, e.g. university
- Friends, and significant sexual experiences
- A car
- Your own place

Moderate ('typical' Aspergers)

You don't have most of the things listed above, but at least you understand the importance of having these things, and you're trying (albeit awkwardly) to work towards them. Or you want these things, but they're very difficult for you to obtain, and you've lost your motivation, and you may be depressed/anxious.

Severe (heading towards classic Autism)

Not only do you not have the things listed above, but you don't even understand why they're important. You're disconnected from reality (at least partially), and living in a fantasy world to some degree; completely unable to become a fully functioning adult.

To be blunt, I don't think anyone on WP falls into this category. If you were this bad you wouldn't have sufficient awareness of your predicament to be able to analyze it. I know this, as I was this bad myself!

And, yes, I understand these categories are loose, and there will always be atypical cases.

Please feel free to challenge my arguments here. And I'd love some answers to the following:

1 - Which category do you think you're in and why?
2 - If you're only 'Mild', and you've got your **** together, why are you on WP? I don't mean this nastily; just curious.
3 - Has anybody moved categories during their lifetime, e.g. Moderate to Mild, or Severe to Moderate. In particular, has anyone improved from Severe to Mild?

Thanks


Well according to that I am severe because other than the fact that I do have some friends and like the idea of having an intimate relationship with someone I can really connect with I do not see why having a nice house, car or other things society defines as what peoples goals should be are so important. And I doubt I am a fully functioning adult, yes I can take care of my basic needs more or less.......though that can be a bit of struggle since my depression tends to kil lmy motivation to even do things like take showers when nessisary.....and I cannot function very well in any job environments I've been exposed to.



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14 Nov 2011, 10:51 pm

I'll tell you what drives me nuts. People saying that I'm a lower functioning Aspie after reading my post content and making that judgement based on the amount of times a day that I post about my special interests and than trying to train me not to post about them, anymore. That really ticks me off. I'm living on my own, without any assistance.


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15 Nov 2011, 2:17 am

Every so often this topic appears in a new thread.

To quote a good friend - who now rarely visits WP

"There is nothing mild about Asperger's"

When I first learned about my Asperger's, a few years ago, I initially thought that I was 'mild'.

I stopped drinking alcohol about 3 months ago - which is approximately the time it takes for residual effects of alcohol to leave the body.

I am enjoying greater clarity of thought and much better health BUT, without the anesthetic of alcohol, (which was more or less daily) the underlying Asperger's and my anxiety are much more noticeable.

I seem to appear quite normal to most people - with the exception of being a bit aloof and a little too analytical/serious.
- My IQ falls in the gifted category and I have my own business, which seems to have the effect providing camouflage/misdirection to casual observers

But I can assure you that my personal experiences of Autism are very severe and impairing.

There is NOTHING mild about the effect Asperger's has on me, absolutely nothing.

I may be in the minority or perhaps just an exception


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Chenjiringu
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27 Jan 2012, 1:45 pm

I am diagnosed with autistic syndrome and not AS.
My IQ is a bit above normal so that makes it to what ppl call highfunctioning autism.
I do have a boyfriend and a few friends but I really don't know what to do with friends actually.
But I do really love my boyfriend and know what I want to do with him and so.
I don't have a job and have never had one and don't know if I will get one.
I have what is called "daily activity" 3 h/day (mon-fri).
There I paint/sketch, cooking, ADL-training and health & balance-group.
I don't have my own place yet, but will get a trainingapartment within 6 months.
That's an apartment own by the municipalty that I rent from them and I get personal aid there so I can learn how to handle a life of my own.
I don't have a car or a drivers licence, I'm not allowed to take one and I would probably not be able to handle it either.
I'm often in my own world and being in the world is very tiredsome.
I usually don't see the meaning with stuff others seem to think are important, or I see it in a nother way.
I have big difficulties with understanding time and how thing belong together.
So according to your criterias I'm somewhere between moderate and severe.
According to my doc I've got mild-moderate autistic disorder but if I should have AS I'm seen as a severe aspie.
But my cognitive delayes and my echolalia put me in the group of autistic disorder.



ISeeYou_
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12 Jun 2013, 8:12 pm

This is a great topic to talk about. Because there doesn't seem to be a clear cookie cutter diagnosis for psychiatric disorders, it can be difficult to gauge the severity. My shrink keeps trying to convince me that I don't have Aspergers but I always come back to the same conclusion. Of course he knows more about psychology than me but I've done a lot of research. I'm starting to differentiate the AS from the ADD in me which I think is a co-morbid issue and I know they're definitely both prevalent. As for the severity of Aspergers, I am typical in accordance with the original post. Why? I don't have friends (at least that I feel like I can connect with). I have been awkwardly drifting through school since freshman year of high school. I had a sexual fiasco during the first two semesters of college. I'm physically clumsy, tripping, hand clumsy, knocking shoulders while walking through doorways, etc. I've been fighting depression for a long time. When I watch The Big Bang Theory and The Rain Man, I know that I am far from their neurological state. I really wish I was mild. I give Another_Alien a lot of credit. Good job man.



daydreamer84
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12 Jun 2013, 8:27 pm

Moderate according to the definitions you listed. Mild to moderate -between level 1 and 2 according to DSM criteria.



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12 Jun 2013, 9:03 pm

Callista wrote:
Wow. Uhmmm... Have you considered that many of us are unable to drive because we have autism? And that people with prosthetic legs usually CAN drive? If anything, wouldn't it make more sense to give bus passes to people who couldn't drive at all, rather than simply people with physical disabilities?

But this is all rhetorical: Most bus systems can easily afford to have discounted bus passes for all disabled people, regardless of whether or not they could theoretically drive; and in many of these cases, it's not whether or not they can drive that's the issue--it's whether or not they could afford a car on the limited income that often comes with disability.

It's kind of sad that some people refuse to think to the point that they still believe the old myth that disability's not real unless it's visible. Some of the most disabling conditions in the world (as far as GAF goes, so that we have a consistent measure) are actually completely invisible.


I am on disability because of being autistic and I cannot drive a car, because of sensory issuses and driving a car means being able to predict what other people are going to do and I do not have this ability and I zone out too much and cannot focus on traffic no way, but I got a free bus pass as well, because in the disability-report was stated that I am unable to drive.
Fact is, I do not use the bus, sensory issuses and do not know where to go to with the bus.
A free train pass would be better, as I go to autism center weekly by train, but it is not included.


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13 Jun 2013, 5:33 am

By your categories, I would be moderate-severe. I am working towards a job, with modifications/support. By DSM, I have ASD (moderate to severe).


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13 Jun 2013, 6:53 am

Eloa wrote:
I am on disability because of being autistic and I cannot drive a car, because of sensory issuses and driving a car means being able to predict what other people are going to do and I do not have this ability and I zone out too much and cannot focus on traffic no way, but I got a free bus pass as well, because in the disability-report was stated that I am unable to drive.
Fact is, I do not use the bus, sensory issuses and do not know where to go to with the bus.
A free train pass would be better, as I go to autism center weekly by train, but it is not included.


My reduced fare pass is all of public transit in the state, so it works for both buses and trains. I pay half price on all of them that I go on (commuter rail, subway, and buses)

In order to qualify for reduced fare passes here you need a disability that makes it more difficult to take public transportation. Then your doctors fill out the paperwork, and you apply, and they give you your pass with your picture on it that is good for 5 years.

Autism is one of the things named, not needing to check off the "other" box.

(I also can't drive, and have enough issues on the bus that I'm applying for paratransit as well)



chris5000
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13 Jun 2013, 2:32 pm

I guess im moderate because I can drive



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13 Jun 2013, 2:49 pm

Mild
- University (well, in theory, but my freshman year doesn't officially start until August, and it is already apparent that I am going to have some issues (I had a near-meltdown at the scholarship office when I was told, by the third person that day, that there was no record of me getting the scholarship I had proof that I received. This is supposedly straightened out now, thanks to the amazing coordinator of that program).)
- Friends (a few, albeit at a distance), and significant sexual experiences (no, but this is due to personal choice)
- A car (Well, it's not my car, as I did not pay for it but I do have a car that is in my name and that I do drive)
- Your own place (no, but I am not yet of the age where this is a necessity)

Moderate
You may be depressed/anxious (somewhat and very much so, respectively).

Severe
You're disconnected from reality (at least partially), and living in a fantasy world to some degree (yep!);
completely unable to become a fully functioning adult (I do not yet know where I stand on this, but I have my trepidations...).

Quote:
If you were this bad you wouldn't have sufficient awareness of your predicament to be able to analyze it.

Fear not; other people will eventually become very, very blunt about these issues and will make you very aware of it.

Altogether, factoring in my other strengths and weaknesses, I would have to say that I am fairly mild with a few moderate and severe traits; though I do not have the diagnosis, I often feel that I am precisely what the psychologists meant when they created the label of "atypical autism" (PDD-NOS).


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13 Jun 2013, 3:14 pm

I would say I'm on the mild-moderate spectrum. I have a decent job and friends that I trust, but there are still other issues that I have to work on, like trying to be more independent and handling my stress.


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aeonon
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28 Sep 2014, 5:37 pm

I would have to say that I would fall into the severe autism area but add to it a high IQ so I can appear to be in the mild to moderate range to others in public. When I am stressed/burned out, it becomes more difficult to keep up the act and I come off as more severe. However, I have become aware through video modelling that I appear pretty autistic. I have college degrees, but have not connected it to a job. I have many friends, though many of them are also on the autism spectrum and have somewhat similar issues to myself. I have some NT friends, though the relationships are not that well developed. I do not drive due to become too distracted and exhausted when trying to drive. I have my own place, though its often not been possible to have my own place due to not having employment.

When I was younger I was less clued in about my abilities and would have answered the question as going from severe to mild as at the time I thought I was on a trajectory to have a good job after college, would live on my own, and had many friends (at the time my friends on the spectrum mostly weren't aware of it either; they interpreted their time in special education as the school systems being rather difficult, rather than attributing the difficulties to having autism as later was the case). To the lay person on the street I would probably appear about the same today as when I thought I was higher functioning.



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28 Sep 2014, 6:05 pm

I actually have a mild form of autism, but I have other disabilities that make holding down a job or doing most daily living skills a challenge for me. I don't deal with a lot when it comes to my autism, but I do have very severe meltdowns/angry outbursts. It really depends on my mood too. Sometimes, I have good days where I can act almost NT-like, but I have bad days where you can really tell something isn't right about me.

Eloa wrote:
Callista wrote:
Wow. Uhmmm... Have you considered that many of us are unable to drive because we have autism? And that people with prosthetic legs usually CAN drive? If anything, wouldn't it make more sense to give bus passes to people who couldn't drive at all, rather than simply people with physical disabilities?

But this is all rhetorical: Most bus systems can easily afford to have discounted bus passes for all disabled people, regardless of whether or not they could theoretically drive; and in many of these cases, it's not whether or not they can drive that's the issue--it's whether or not they could afford a car on the limited income that often comes with disability.

It's kind of sad that some people refuse to think to the point that they still believe the old myth that disability's not real unless it's visible. Some of the most disabling conditions in the world (as far as GAF goes, so that we have a consistent measure) are actually completely invisible.


I am on disability because of being autistic and I cannot drive a car, because of sensory issuses and driving a car means being able to predict what other people are going to do and I do not have this ability and I zone out too much and cannot focus on traffic no way, but I got a free bus pass as well, because in the disability-report was stated that I am unable to drive.

Fact is, I do not use the bus, sensory issuses and do not know where to go to with the bus.
A free train pass would be better, as I go to autism center weekly by train, but it is not included.


This is one reason why I can't drive. Not because of sensory issues, but because of what else you just said. There's too much I have to process and focus on that driving can be rather challenging for me. I'm also receiving benefits under my dad through Social Security Income because I can't hold down a job. It's actually due to my autism as well. I also can't ride a bus or train because it's hard on my anxiety. I panic over everything, and I also can't comprehend what I'm supposed to be doing or where I'm going on a bus by myself. I have to be with someone like my mom or dad in order to keep me calm.


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loner1984
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28 Sep 2014, 6:39 pm

Well i got my own place. but none of the other things.