On self diagnosis
I keep encountering this. I was the one who had to point out to the pediatrician that my son was autistic. All the red flags went completely over her head and I don't think his early intervention therapists really "get it" either.
Based on the research I have done, I am completely convinced that I have Asperger's Syndrome. However, I am one of the lucky ones in that I can function (more or less) like a normal healthy human being. I have no close firends, but I have plenty of not-so-close friends and go to several group get-togethers throughout the week without too many problems. I prefer to be by myself most of the time, but not all the time. I can hold down a job, keep what passes for a social life, and take care of any chores that need taking care of. But the job has to be without stress to speak of, and the chores that aren't completely necessary don't usually get done very often. My bathroom could sure use a cleaning, for example, but I have no desire to do the job despite the fact that my bathroom looks disgusting. I can ... well, you get the picture.
What would be gained by going to a Ph.D. and getting an official diagnosis? If I obviously needed help because of my condition, it might be worth the hundreds of dollars I would need to pay for testing. But I'm getting by on my own, and I can figure out how to treat myself for the problems I have that are treatable. What would be the point?
Not long ago, I was diagnosed with diabetes. I knew what symptoms to look for, and when I had them, I tested my own blood glucose levels on three successive days and found I was on the verge of ketosis. I needed treatment, and I knew it. But I couldn't provide the treatment I needed without a prescription or three, and for that I had to have a qualified M.D. tell me what I already knew. So I went in for testing, and a week later the doctor called me and said I should come in for an appointment. "I have bad news for you," he said to me. "You have diabetes." My nearly instant tactless reply was, "I knew that before I came in to get tested. (Idiot, I thought.) The question I have for you is, what do we do about it?" I got the treatment I needed, and I'm living a relatively healthy and productive life.
The question I would have for you is, do you need help with your condition? If you think you might benefit from a Ph.D.'s ministrations, then you should go in for an official diagnosis. If not, then don't. If you do go in for a diagnosis, though, make sure you find someone who is an expert in autism spectrum disorders. A clinical psychologist friend and I were talking, and I found I knew more about my condition than she did. What was really enlightening was the fact that she couldn't tell I had an ASD, even though we have known each other for years. But not long ago I was chatting with another friend (not a Ph.D. at all) who has two boys with autism. She was able to tell almost immediately that I had Asperger's, and I found out she knew more about symptoms, diagnosis and treatment than I did after all the research I have done. She was far more helpful than my Ph.D. friend. Go figure.
If you want a cheap way to deal with your condition, try finding an organized group of people with AS and ASDs near you. You may find people in such a group are far more helpful than a room full of clinicians. - LJS
Very well written.
I keep encountering this. I was the one who had to point out to the pediatrician that my son was autistic. All the red flags went completely over her head and I don't think his early intervention therapists really "get it" either.
My pediatrician thought I was autistic. But he also thought I was ret*d, so much so that he didn't bother to have me leave the room when he asked my mother. Consequently I got to stay in the room for her reply to him. That was entertaining.
I bet it was .... I hope she taught him a thing or two.
I fully support self diagnosis. There could be reasons why a diagnosis is bad. Assuming that you're functioning well enough in life that you have nothing to gain, it obviously costs money. It also could hurt your insurance rates to check the box stating that you've been diagnosed with a mental disorder.
But what really scares me the most is that in many governments (both national and state / provincial) there are laws that impact people who have been officially diagnosed with mental issues. At least in America and all 50 states I don't think Asperger's would be strong enough to qualify for things like loss of voting rights, loss of firearms rights, etc. But it might be stricter in other nations. And laws could change in the future even if a diagnosis is no legal problem today. I'll admit that it's unlikely, but if a diagnosis won't do anything useful for you then why take even a small risk?
I saw a video of Temple Grandin saying that she discourages people form being diagnosed if it's not causing problems in life for similar reasons. She said some of the above happened to her, sounded like she half regretted getting an official diagnosis.
On the other hand, if it is causing problems in your life then you might be unable to obtain access to the proper help without such a diagnosis. So in those cases it makes sense.
I'm 53 and so far my AS has been an unknown nusense. Since self diagnosis from several tests on this site and a few others here and there most of my struggles now make some sense. I've completed an AAS degree in aircraft mechanics and have enough credits to have 2 BS degrees but no degree because I kept changing my major.
With this diagnosis I am able to see why the normal recomendations on how to alter my behavior don't work for me. I now know why I see things and do things so much different than most everyone else I know. I don't feel inadequate and helpless anymore. I have some amunition as I know what I'm fighting now. With more research (I love research as long as I don't have to document it in a paper), I'm sure I'll be able to find a way that works for me to learn to do things that are more accepted by the 'normal' world. Currently finishing up a BS degree in Family and Consumer Science Ed.
It's critical for me to finish this degree so I can get a job as a teacher. It's what I want to do and it's what I'm good at. I can't teach without the degree and license. I live in the USA.
I've been struggling with this in my head since I read the symptoms about AS.
I *know* I have Asperger's. My mom agrees. My Fiancé agrees....my sister told me that I'm just like my cousin that has AS.
But somewhere in the back of my mind, I doubt myself.
I thought that I had Dissociative identity disorder previously because I felt like I had a few different personalities in me at once. One for by myself(the natural me), one in front of family, one in front of friends, one in front of co-workers.
I felt like I shape-shifted to fit in even though I still was awkward. When I got stressed out, I would talk to myself and rock back and forth or side to side. But back then I didn't know what Asperger's was. The symptoms before seemed to fit, but not exactly.... So I wonder now, is there another condition that would fit me better than AS?
I'd like a diagnosis to once and for all prove to myself that there is and always has been something different about me, and its not because I'm "making it up and trying to be weird," as all of the kids in school would say, and even my siblings while we were growing up.
However, I have learned to cope with all that is Me. Just recently I've learned to adjust socially and blend in better. So I wouldn't require any social services or anything like that. So there would be no point of getting a diagnosis.
I dont *need* a diagnosis. But it would officially put the puzzle pieces together so that I can see the whole picture for what it is....that I'm not trying to be weird. It's how I was made.
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The challenge in self diagnosis is to avoid confirmation bias. Having decided that I am likely to be on the spectrum, I have to be careful to not only look at positive symptoms (stimming? yup. social ineptitude? yup) but also investigate other possibilities (delusions? nope. hallucinations? nope). Another problem is that I cannot actually determine if I am delusional. A delusional person does not believe that they are delusional. There are a number of symptoms that are difficult to identify through self examination.
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The road to my hell is paved with your good intentions.
great topic!
im a self diagnosed, but i feel like bit of a fake too
i think i need the seal of approval to feel like i really belong here, at th same time there's too much evidence for me not to make the self diagnosis
being diagnosed or not shouldnt make any impact on my life, which seems to be functioning pretty normally if not a little too normal (perhaps i try too hard?)
as long as i dont go pop and fall off some sort of deep end one day...
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The challenge in self diagnosis is to avoid confirmation bias. Having decided that I am likely to be on the spectrum, I have to be careful to not only look at positive symptoms (stimming? yup. social ineptitude? yup) but also investigate other possibilities (delusions? nope. hallucinations? nope). Another problem is that I cannot actually determine if I am delusional. A delusional person does not believe that they are delusional. There are a number of symptoms that are difficult to identify through self examination.
Actually there are some delusional people where, I know it doesn't make any sense if you have regular thinking, but they know on one level that they're delusional, and yet they fully believe their delusions at the same time. I guess it's what happens when part of you is self aware and yet another part of you is dead certain it's right. Just one more bit of illogic that humans are capable of.
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"In my world it's a place of patterns and feel. In my world it's a haven for what is real. It's my world, nobody can steal it, but people like me, we live in the shadows." -Donna Williams
What I think people can fail to see is not everyone has had the same life experiences and options available to them. AS wasn't diagnosed when I was a child. My mother is adamantly opposed the the idea that there is anything wrong with me, so even if I was born a decade later, ignorant parents could prevent a diagnosis. Experts admit that girls are often left undiagnosed. As others have mentioned, some professionals don't even recognize it.
As a community we need to accept that there are those who have struggled all their lives with the issues of AS but for some reason have escaped diagnosis. Even those who may not have enough traits for a full diagnosis still struggle. That is why they are here. We all can learn from each others experiences and insights.
The challenge in self diagnosis is to avoid confirmation bias. Having decided that I am likely to be on the spectrum, I have to be careful to not only look at positive symptoms (stimming? yup. social ineptitude? yup) but also investigate other possibilities (delusions? nope. hallucinations? nope). Another problem is that I cannot actually determine if I am delusional. A delusional person does not believe that they are delusional. There are a number of symptoms that are difficult to identify through self examination.
Actually there are some delusional people where, I know it doesn't make any sense if you have regular thinking, but they know on one level that they're delusional, and yet they fully believe their delusions at the same time. I guess it's what happens when part of you is self aware and yet another part of you is dead certain it's right. Just one more bit of illogic that humans are capable of.
I believe that's called psuedo-psychosis and may be found in schizotypal personality disorder or shortly beyond the prodromal stage of schizophrenia.
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