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littlelily613
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25 Aug 2011, 7:49 pm

78444 wrote:
littlelily613 wrote:

If you feel as though you were being "psychologically torture[d]", then why did you stay as long as you did?


It would have been even more painful. Also there was the hope that the therapist would do something to soothe the pain.


Interesting thought. When I went through the torturous session I never associated the giver of pain to the reliever of pain. So I find it difficult to see your point of view, but if that is how you felt, then that is how you felt, I suppose.


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78444
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25 Aug 2011, 7:54 pm

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Last edited by 78444 on 28 Aug 2011, 5:42 am, edited 1 time in total.

Callista
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25 Aug 2011, 8:00 pm

Suggest that when you are finished with the study you inform your therapist that you suspect ASD. They will need to know this to know whether to exclude your data or perhaps use it as basis for additional study.


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25 Aug 2011, 8:07 pm

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Tuttle
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25 Aug 2011, 8:35 pm

78444 wrote:
Callista wrote:
Suggest that when you are finished with the study you inform your therapist that you suspect ASD. They will need to know this to know whether to exclude your data or perhaps use it as basis for additional study.


But instead of writing on the report "this guy needs help with his AS-like symptoms", the emphasis is on paranoia. In other words, instead of helping the patient get the help he needs, they implicitly recommend he continues wasting time with people who are not qualified to treat him.


Like people have been saying, this didn't have to do with AS. They weren't looking for AS symptoms, they were looking for GAD symptoms. Expecting them to notice and write about symptoms that the study wasn't about makes no sense.

They were looking for GAD symptoms - GAD is associated with paranoia, they noted traits to do with paranoia and wrote about that.

The study wasn't about ASDs, why would they be writing about ASDs rather than about things that are associated with what they were looking for.



78444
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25 Aug 2011, 8:37 pm

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Last edited by 78444 on 28 Aug 2011, 5:43 am, edited 1 time in total.

Tuttle
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25 Aug 2011, 9:15 pm

78444 wrote:
ASD also comes with GAD.


Anxiety disorders are common in people with ASDs, however ASDs are not common in people with anxiety disorders. If you were in a study on ASDs you could expect them to notice anxiety problems, as the co-morbid rate is high. However, you weren't in a study on ASDs, it was a study on GAD, which does not have ASDs as a common co-morbid.



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25 Aug 2011, 11:41 pm

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Last edited by 78444 on 28 Aug 2011, 5:43 am, edited 1 time in total.

Knifey
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25 Aug 2011, 11:56 pm

you obviously want the report to say something it does not and can not. you came here to get sympathy for your point of view and don't care what we have to say unless we side with you. i think you should go whine to the psychologist or somebody else who can actually do something instead of wasting our time.

78444 wrote:
The point is that the patient was sent to participate in a study for which he was not qualified, as evidenced by the fact that he was ultimately dismissed from the treatment. The argument is that the patient had GAD therefore he was qualified to participate in the treatment; however, one needs to look at the overall picture of the patient in order to determine whether the patient is a good fit for a treatment aimed to ameliorate one of his many conditions. Obviously, a person with a neurological problem and GAD as a side effect (or any other problem and GAD as a side effect) is very different from a neurotypical person with a GAD that came out of the blue or due to the problems associated with daily living. If they had looked at the overall picture of the patient, if they had conducted a proper assessment, a lot of time and a lot of pain on the part of the patient would have been spared.

thanks captain obvious, you replied with something nobody gave the impression they didn't know.


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Tuttle
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26 Aug 2011, 12:42 am

78444 wrote:
Tuttle wrote:
78444 wrote:
ASD also comes with GAD.


Anxiety disorders are common in people with ASDs, however ASDs are not common in people with anxiety disorders.


Obviously.


So why are you expecting a report to include information about something that the study wasn't about, wasn't a common co-morbid of the thing the study was about, and the individual in question didn't have a diagnosis for?



littlelily613
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26 Aug 2011, 2:31 am

78444 wrote:
Maybe the patient, who was misdiagnosed, was invited to participate in the research study by the same people who misdiagnosed him?


I don't know what you mean. Misdiagnosed with what? GAD? I am assuming this, since you said you did not have an Aspergers diagnosis. How is this a misdiagnosis? It is confirmed in the paper, so is this a misdiagnosis according to you or according to psychologists?

Either way, the point is the same: the study is about anxiety disorders, not private sessions by ASD specialists.


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littlelily613
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26 Aug 2011, 2:34 am

78444 wrote:
But instead of writing on the report "this guy needs help with his AS-like symptoms", the emphasis is on paranoia.


Maybe he sees your symptoms as related to some form of parnoia rather than AS. Maybe he disagrees with your self-diagnosis.


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littlelily613
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26 Aug 2011, 2:35 am

78444 wrote:
ASD also comes with GAD.


No it doesn't. It is a common co-morbiditym, but ASDs do not automatically come with an anxiety disorder. I don't have anxiety. I do have autism.


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littlelily613
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26 Aug 2011, 2:48 am

78444 wrote:
The point is that the patient was sent to participate in a study for which he was not qualified, as evidenced by the fact that he was ultimately dismissed from the treatment.


Okay, maybe you are unclear about what a research study is. First of all, there is no obligation to take part in a research study. One thing that should be understood before entering is that, really--whether it is explicitly stated or not--studies are for the RESEARCHERS not for the patients themselves. I mean, findings might benefit patients somewhere down the line, but the initial study is for the benefit of the person doing the research. That's just how it is. If you wanted private therapy, you should have gone to get it.

Secondly, throughout your report, it continuously states that you kept saying you wanted to quit, then changed your mind, and also that you set your own guidelines that were not consistent with the research study. This is why, the report states, the treatment was no longer effective. Because they were researching a particular type of therapy, and you did not want to go along with that. They are not private therapists who need to continue to alter their practices to find what suits you. They are researchers studying very specific therapies for specific individuals. If those individuals cannot agree to what they are studying, then what is the point of putting in continuous effort for nothing. Like I said, studies are not for the patients, but for those researching them. That is why it is called a study. Otherwise it would simply be called therapy.

It still seems as though you wanted a cheap way of getting ASD treatment and/or diagnosis. Obviously you learned (or not since you still feel you are in the right) that that is not going to occur through an anxiety-based research study. I think you feel like you were "emotionally raped", but I also think that is because you misunderstood what THEIR role AND what YOUR role was in this whole thing.


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YellowBanana
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26 Aug 2011, 5:29 am

littlelily613 wrote:
78444 wrote:
The point is that the patient was sent to participate in a study for which he was not qualified, as evidenced by the fact that he was ultimately dismissed from the treatment.


Okay, maybe you are unclear about what a research study is. First of all, there is no obligation to take part in a research study. One thing that should be understood before entering is that, really--whether it is explicitly stated or not--studies are for the RESEARCHERS not for the patients themselves. I mean, findings might benefit patients somewhere down the line, but the initial study is for the benefit of the person doing the research. That's just how it is. If you wanted private therapy, you should have gone to get it.

Secondly, throughout your report, it continuously states that you kept saying you wanted to quit, then changed your mind, and also that you set your own guidelines that were not consistent with the research study. This is why, the report states, the treatment was no longer effective. Because they were researching a particular type of therapy, and you did not want to go along with that. They are not private therapists who need to continue to alter their practices to find what suits you. They are researchers studying very specific therapies for specific individuals. If those individuals cannot agree to what they are studying, then what is the point of putting in continuous effort for nothing. Like I said, studies are not for the patients, but for those researching them. That is why it is called a study. Otherwise it would simply be called therapy.

It still seems as though you wanted a cheap way of getting ASD treatment and/or diagnosis. Obviously you learned (or not since you still feel you are in the right) that that is not going to occur through an anxiety-based research study. I think you feel like you were "emotionally raped", but I also think that is because you misunderstood what THEIR role AND what YOUR role was in this whole thing.


Thank you littlelily613 for writing so clearly exactly what I was going to write.

It was a research study. Not a diagnostic test. The OP is not diagnosed with ASD, and neither does he appear to have mentioned his suspicions to the researchers (if he had, he would likely have been disqualified from the study). There is no reason to expect the report to mention ASD, regardless of whether the OP actually has one or not.

The right thing for the OP to do now, is to contact the researchers and let them know so that they can decide whether the data collected is valid data for the study or needs to be excluded from the analysis.


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78444
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26 Aug 2011, 6:51 am

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Last edited by 78444 on 28 Aug 2011, 5:44 am, edited 1 time in total.