My son is seeing things! Please HELP!
He would just appear in the hallway, after he'd already been asleep for a while, wandering around, sobbing, but not crying. If we tried to speak to him at all, he would scream "NO! STOP TALKING!" He'd wander downstairs (he was NOT sleep walking, he was wide awake, he even remembers to this day some of those nights, and can even explain what he was thinking now, and he's thirteen now!), into the kitchen, then just stand there, crying. If I turned on a light that was off, he would scream. If I shut a light off that was on, he would scream. If I closed or opened a door, he would scream. If I approached him, or backed away from him, he would scream. I almost had an ambulance come for him one night it was so bad, because I didn't think he would keep his car seat straps on (he used to squirm out of them all the time), but I did manage to get him to the hospital. He was almost calmed down by the time I got him there, but still gasping enough the doctors could see it. It was damned freaky. It started suddenly, lasted for several months, off and on, then just as suddenly, he never did it again.
We were told "night terrors," but we looked them up, and that is NOT what they were. He was wide awake every time he did it. We know because he remembers all those times even now. He just could not speak when it happened, even though he had been speaking for many months. Just not when that happened.
I can't tell you what's going on with your son, but I can tell you I KNOW what you are going through. It's damned scary, you don't know what it is or what to do, and even the doctors are probably no help at all.
All I can say is, he'll probably grow out of it. It isn't likely that stuff like that continues indefinitely. As for the paranormal comments, I don't have anything to offer in that department other than to say that most of the time, it's just inexplicable stuff. All three of my sons are mildly Autistic. Asperger's, PDD-NOS, and HFA. We've experienced all kinds of weird stuff, lost a LOT of sleep, and still do some nights (they're all teenagers now), and so far every weird experience passed, to be replaced by new, sometimes even more perplexing mysteries.
I wish I had something better to tell you, but sometimes we just want to "cure" the problem, when there is no cure but the passing of time. If you've had him checked out medically, and they've found nothing, give it time. This may happen for longer than you think you can stand, but you can. Trust me, you can. We did it with three of them, and we were not at that time, the most stable people. Come to think of it, I don't know that we're all that stable today either.
If it gets bad enough on any given night, take him up to the ER. I bet he does what mine did, and calms down on the way. You may need to take him for rides to get him to sleep. We had to do that for many months with all three boys. That was a trip too, because riding put two of them out, but the youngest loved it so much, he would never go to sleep until we got home. Even in the pitch black!
Autism, even mild Autism, at that age can be HELL. But please give him time. Let him just be who he is, and do your best not to freak out yourself, because that will only feed his freaking. By the way, we also allowed our kids to fall asleep with us. We did that a lot. We got a lot of flack for that from some people, but we were the ones who needed sleep and couldn't get any. I am in NO way ashamed of what we did. You shouldn't be either.
Do WHATEVER you have to do to get your own sleep, and keep your sanity. And NEVER be ashamed of what it takes. Don't listen to ANYBODY that doesn't have Autistic kids themselves. They do NOT have a clue.
I hope there is at least one sliver of hope somewhere in this. I really feel for you, because we have been there. It is scary, but it WILL pass. Just keep your head about you.
It's definitely good to hear that I'm not alone, not just with the autism part but with his sleeping problems. I can't imagine what you went though but the important part is that you got through it. It's very strange, because right now he is sleeping in his crib, my mother said he went to bed ok. So hes sleeping in the dark fine right now but then out of no where it can start up. But like you said, my son will get upset if I move in certain ways, if I take my hand off his eyes, If I turn a light on or off, he just upsets very easily as he is extremely affectionate and emotional. Hopefully it'll pass on like you said. I'm going to call and find some kind of psychiatrist that can maybe give me some pointers. I have not told any doctors about this yet as I thought it was just a "phase", but a my concerns grow stronger I'm going to call someone today to see if he needs tests done or something along those lines.
I do have a question for relating to your child's autism/pdd-nos. I know this is personal but how is your child doing now. I'm not to knowledgeable about autism except what his TSS worker tells me. He was getting Speech and OT therapy twice a week from a company called Alliance. He was diagnosed with nos I'd say maybe 2 months ago. The lady that diagnosed him gave us a few numbers for places that send out people to do therapy with your child at the house. His case manger from Alliance, the person who see over everything came with us, after we left she said she had her own place she recommended, it's called SouthWestern. So I'd say a week or two after he got diagnosed SouthWestern sent out someone to shadow my son, determine how sever he was, what he needed, how many hours of therapy a week he needed and so on. Well after a few visits, about 4 he decided 3 hrs a day, 15 hours of week would be a good start. He believed that my son was very smart and felt that he could get better with some help. Well he set us up with a TSS worker, I believe that's what their called, maybe you could help me on that part? Anyways, he was pretty young, only 23 and he pretty much no experience what so ever. My son was his first case. Well I wanted to give him a chance but after a few days it just did not work. He didn't seem interested in helping my son, is was just awkward silence for almost the entire 3 hours every day. I would have to start conversation with him, he didn't explain to me how he was helping my son, etc. I could go on and on but basically I didn't see him a good fit for my son. I want someone who truly cares about children's and want's to make a difference in there lives. I dont want someone just to take a case because it's the closest case to there house and what not. So I called our case manager at SouthWestern and told him our problem, he immedaitely told the TSS worker to stop coming. He then gave me a number to call to find a replacement. I call the number and they asked me what was wrong with the last person and what I was looking for a new person. I told them I'm looking for someone with expierence, someone who really wants to help and I dont want my son to be their first autism case. I just dont feel like they care, she told me that she found someone, so I asked "what kind of expiernce does she have" and all she said was that she is good with kids. No one takes any of this seriously. I'm wondering if you or anyone else on here could give me some pointers, maybe someone I can call? I'd be willing to pay for services for my child, If I have to pay $500 a week to get my son the best help possible I will. I just dont know where to go. And I feel bad because now I've been waiting for 2 weeks to get this new person in to my house. So now my son is going with no help for now, not getting his therapy.
My last question was, how is your son now? Does he live a normal life? Able to go to school, can he speak clearly now, good vocabulary and so on. Like I said I'm not really all to familiar with autism/pdd nos and I haven't been around children that have it, only seen 1 or 2 kids. My son has a speech delay it seems, not too bad but its there. He can say words like "football", "all done", "more drink", "yes", "no", "i'm alright" and son. He can tell me when he wants his drink, knows his ABCs, can count to 10, knows all his colors, all the animals and the noises they make, etc. But he does have a hard time asking for a lot of things. Before his therapy with Alliance started he wouldnt say anything so he come along way it's just hard for me notice. I'm always so negative, I dont want to be but I'm always looking at the bad part of his autism. I just want him to be able to ask me things, tell me if he went to the bathroom or needs his diaper changed or that he wants to go take a nap. He is starting to point to his bed whens he tired but hes getting really frustrated because he cant tell me what he wants.
He will play downstairs and have full conversation with me but it will be all mumbling, you pick out words here and there but most of the time you cant understand. He doesn't want to open up his mouth when he talks and its almost like he is talking through his nose. When he mumbles you can almost make out what he is saying. His therapist believes that if he was to open up his mouth instead of mumbling that full sentences would come out. He has a very hard time looking at people, especially at there eyes. If he does look at me its just for a glance. I'll hold him in front of me and he wont look at me, hell just turn his head. But when he wants something or if he is playing hell sit there and laugh and stare at me. Also, he really only wants to talk if he has too. For example, hell point to his sippy cup if hes thirsty, he will just reach out and mumble before and we would just give in because he would get upset. Now instead of just giving it to him we tell him to say drink, water, milk or whatever. So now he will still reach out and mumbler but we wont give in. He eventually will get frustrated and end up saying "drink" or "water". It's almost like hes use to getting what he wants and not having to talk.
When my son was about 1, 1 1/2 he got a infection in his mouth and throat, there where sores everywhere. He had a hard time eating, he didn't want to talk as he was in pain, they had him on Roxicet for the pain thats how bad it was. But what the doctors thinks is that maybe he learned to get what he wanted with out talking from his infections. That maybe he didnt want to talk and it was his safety mechanism? So I'm wondering if that infection caused a setback with his progression with talking? As a baby he also had acid reflux, colic and he has tubes in his ears, I think both fell out already. But we are also wondering if he had a hearing issues when he was born and that might of cause his speech delay. Because he got tubes not too long ago, so all that time with no tubes could of took away his communication and delayed it and now with the tubes hes just started to learn language now? He has a lot of problems with people touching his ears now due to all the doctor visits and ear infections he has had. Now he is constantly picking at his ears and every time I take him to the doctor they say his ears are fine? So I'm at a loss for words with that part.
He did have a sensory issue also where certain textures he just couldnt deal with. We would put for example ketchup or ranch on his plate and if he got it on his hands he would get ancy, I'd have to wipe it off and so forth. Now he fine getting dirty outside, he like paints with finger paints, hes ok with touch all kinds of foods and so forth. He still has a problem with certain food textures when he eats, hell spit a lot of stuff out. He use to have a bad gag reflex where he would throw up by me just showing him food. I would make him lunch and bring it out to him, he would just look at it and throw up before he even ate any. He's really picky about his foods which is driving me nuts. He would only eat chicken nuggets, that went on for a year and a half almost. Thats all he would eat, that and anything potato wise, fries, mash potatoes, etc. Now with his OT therapy, he will eat spaghetti, chinese and other different foods.
He does have certain OCD things that he does. He has to line everything up, for example hell take his flash cards and line them up across the couch and if you try to move one out of place or if he cant fit them all in a row he will get angry and start throwing them. He has a lot of stuff he does that has to go in order.
I dont mean to ramble on about this I just have no one to really talk to about my situation. I'm very angry that this happened, I'm devastated. I know that people have cancer and are dying, I dont mean to be selfish in any way but I feel like that world is crashing down on me. My mind is racing every day, I'm extremely depressed and my anxiety is at all time high. My depression and anxiety where bad before all this. Now with his autism and now with this recent dilemma my anxiety/depression is even worse. I've almost given up and the only thing keeping me going is my son. I just want to know that what Im doing is really going to help him, that this therapy will make him talk and get out of this Autism phase if you will. I just want him to be able to communicate when he wants to, I want him to be able to play with other kids, play sports, go to school, have a normal job, get married and have kids of his own. All day I think about is what he is going to go through when he gets older. The bullying, the special classes, him needing my help for the rest of his life.
I guess what I'm asking is...Will my son get better? What are the chances that in a year or two he will be able to talk just like any other child? Will he be able to live a normal life like me and you. Will he be able to go to school, hold a job? Will he be able to speak fully or will he mumble and only say a few words for the rest of his life? I know it might sound silly but this is what I think about because I dont know or understand that much about autism, all I know are the horror stories about autism and all I hear or see is the stuff on TV or the news which are the worst case scenarios. I feel my son is very smart and just needs a little push to get him out of this funk that he is in. I see so much potential and I see so much stuff just waiting to happen, he just doesn't know how to express it. You can almost tell what hes thinking and what he wants to say, just doesn't know how too.
I just really need someone to talk to, someone who understands what I'm going through, maybe a support group and even a place I can go to that will teach me more about what my child has and help to understand him more. Like these people that are "suppose" to be here and help my son. But I need help to, b/c If I dont understand whats going on that hes never going to get better. Because they are only here for 3 hours a day, I'm with him the rest of the time. I'm unable to work b/c my son needs someone here for him at all times. Weather is myself, my mom, dad, or my girlfriend, someone has to be with him at every moment. He is glued to my hip. When I'm in the kitchen I have to put him in his seat so he can watch what I'm doing. I was thinking about maybe a special "daycare" for him so I could go to work. But then I talked with my case manger and she said that it might not be the best idea right due to how much he relies on me. If he is in daycare they might not be able to understand him like we do. We not what he wants by his gestures. If he was thirsty, they would have no clue if he was or not. So certain people think that right now is not a good time for daycare.
But I want him to be around more kids, I even heard the him being around more kids will help him out with his autism? If thats true I dont know? We take him to this place called the SeeSaw Center. Its a giant play area in a church, it has everything for kids. Every time we take him there he gets so excited. He will try and talk to other kids, he will try and say "HI" but it'll come out very low and they wont understand him so they pretty much ignore my son. Hes trying so hard to fit in and wants to have friends. It breaks my heart to see him say "HI" to other kids and just get ignored.
But the biggest thing I would say is our problems at home. Myself and my girlfriend are constantly fighting, it could be the smallest thing and where snapping at each other. This isn't your every so often fight, we scream, it's pretty bad. Everyone in the house is a mess right now. I currently live with my mother, father, girlfriend and son so it's pretty crazy in the house, no privacy nothing. Everyone is butting heads 24/7. Everyone's relationships are destroyed right now, I don't go out anymore, I lost a lot of friends, don't talk to my family anymore, pretty much just watch my son and sleep the rest of the time. I just feel alone with all of this, I dont feel like anyone understand what I'm going through. Everyone says "Oh well I cant imagine what your going through" or "I know what your going through". Until you have a child with autism and you go through the daily struggles with it you cant say anything to me about it, no one knows what I'm going through. Everyone thinks its so easy and that I shouldnt get treated any different for having a child with it. I dont want pity or someone to kiss my ass I just want a little recognition that I am doing that best that I can. Just because I dont have a 9-5 job, that doesn't mean I dont work as hard as the next person. I feel I work hard as anybody if not more. I get up at 7 and dont get a break at 9. Most the days I dont even get a chance to eat breakfast or lunch, I just dont stop. I just need help with this.
Sorry for rambling on guys, I dont talk about this much, it's a very touch subject for me, I'm extremely defensive about it. So when I do talk it all comes out in once.
Thanks for listening and I look forward to your comments/stories/suggestions about yours guys children's and so forth. I hope I can meet some new people here and build some relationships here.
Take care,
Brett
Geomagnetic storms have been known to reverberate Earth's magnetic field and this can affect humans by giving them behavioural issues, fatigue, hyperactivity and hallucinations. In fact, it could explain UFO encounters. I've actually had one of my own during a complex partial seizure.
My opinion is: the TV show has given him paranoid fears. If I watched that stuff I'd probably start seeing things. I'm just a visual persona nd it's bad enough I see mythological creatures and aliens everywhere. Oh and dinosaurs. I'm being serious too.
But think what you want. The best thing is to understand what's happening to your son and helping him recover from it.
Can not back it up with scientific data yet, but I have a theory about that. The brain dies but energy does not. The brain is the means through which the soul (energy) communicates with the body and the body communicates with the soul so that the soul can fully experience the physical world around it. After death of the body, the energy may well take on another form. In life it is limited by the physical world (physics, brain structure, any physical disabilities etc), in death different rules may apply.
No one has yet explained how the brain creates consciousness, we do not know. One theory of consciousness is the soul.
Do I believe in ghosts? I am not sure but I am not going to rule the possibility out until I have proof that they definitely don't exist.
Last edited by bumble on 30 Nov 2011, 4:21 am, edited 1 time in total.
Just adding to what I wrote to above in my giant article. I hope everyone can read the article before this, it'll explain everything I'm going through for the most part.
I'm looking for any website, phone numbers, articles, books etc. that can help me and help my son. I want to get him the best care possible so he can live a fucitonall life. I dont know if Alliance and Southwestern are the best thing for him. When the OT and Speech therapist come out I dont see them doing anything different, I see them doing the same things over and over. It just seems like they pull out flash cards and just ask my son "what color is this", "what does this animal say". I dont understand how this is going to help my son get better? Am I missing something?
Sweetleaf
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Posts: 34,924
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I'm looking for any website, phone numbers, articles, books etc. that can help me and help my son. I want to get him the best care possible so he can live a fucitonall life. I dont know if Alliance and Southwestern are the best thing for him. When the OT and Speech therapist come out I dont see them doing anything different, I see them doing the same things over and over. It just seems like they pull out flash cards and just ask my son "what color is this", "what does this animal say". I dont understand how this is going to help my son get better? Am I missing something?
Well with all due respect he is only 2, there is quite a lot of time for him to develop......and get better at what exactly? If he has autism he's not going to become NT if that's what you mean but yes I don't really see how such flash cards would really help with much especially if they just keep repeating the same ones over and over again.
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We won't go back.
I'm looking for any website, phone numbers, articles, books etc. that can help me and help my son. I want to get him the best care possible so he can live a fucitonall life. I dont know if Alliance and Southwestern are the best thing for him. When the OT and Speech therapist come out I dont see them doing anything different, I see them doing the same things over and over. It just seems like they pull out flash cards and just ask my son "what color is this", "what does this animal say". I dont understand how this is going to help my son get better? Am I missing something?
Well with all due respect he is only 2, there is quite a lot of time for him to develop......and get better at what exactly? If he has autism he's not going to become NT if that's what you mean but yes I don't really see how such flash cards would really help with much especially if they just keep repeating the same ones over and over again.
What I meant is I dont see what these people are supposdley helping him with. I feel like like he learns and develops more when he alone with me and I feel that they are wasting his time. I just want someone that can really help, not saying there not trying but maybe they arent the right fit?
And what I mean by "normal", will he be able to speak clearly, respond when people call his name, will he grow out of this? It's hard for me to explain.
Sweetleaf
Veteran
Joined: 6 Jan 2011
Age: 35
Gender: Female
Posts: 34,924
Location: Somewhere in Colorado
I'm looking for any website, phone numbers, articles, books etc. that can help me and help my son. I want to get him the best care possible so he can live a fucitonall life. I dont know if Alliance and Southwestern are the best thing for him. When the OT and Speech therapist come out I dont see them doing anything different, I see them doing the same things over and over. It just seems like they pull out flash cards and just ask my son "what color is this", "what does this animal say". I dont understand how this is going to help my son get better? Am I missing something?
Well with all due respect he is only 2, there is quite a lot of time for him to develop......and get better at what exactly? If he has autism he's not going to become NT if that's what you mean but yes I don't really see how such flash cards would really help with much especially if they just keep repeating the same ones over and over again.
What I meant is I dont see what these people are supposdley helping him with. I feel like like he learns and develops more when he alone with me and I feel that they are wasting his time. I just want someone that can really help, not saying there not trying but maybe they arent the right fit?
And what I mean by "normal", will he be able to speak clearly, respond when people call his name, will he grow out of this? It's hard for me to explain.
Well it sounded to me like they are wasting his time as well, I mean I only know what you've said here but based on that I would agree. And It kind of depends on what specific problems he has.....I mean as I said I had all kinds of wierd experiances when I was a young child, sometimes I would get up in the middle of the night and walk around, or wake up screaming because of a dream and basically a lot of what was mentioned in the original post. and I can speak pretty clearly most of the time, respond when people call my name......but no I did not grow out of the way my brains wired.
So yeah its hard to say for sure because everyones different.
_________________
We won't go back.
Here are my thoughts.
1. I know I had an INTENSE imagination as a child, and so my childhood fears were well-amplified in the dark. Not being able to see what was there, my mind would "fill in the blanks" and see things that weren't there. I suppose all kids deal with this, but I slept with a night light for a very long time.
2. I'm going to be honest and say there are more things in reality than we understand. Children are more inclined to see these things because adults are trained to "tune out" a lot of things we'd otherwise perceive naturally. To this day, sometimes I see things nobody else seems to see. I've heard things others don't hear. It's not a bad thing, but is it a mental/psychological disorder or is your kid perceiving things most people chose not to see or have trained themselves not to see? I don't know, and I'd be cautious about discussing this with a "professional" lest they prematurely label it as a disorder when it might be something legitimate.
Another possibility - could you have something in your walls making a disturbing noise, like some wiring problem or some kind of pests? Autistic children often have unusually acute hearing, so your son might be hearing something too high-pitched or quiet for you guys to hear. Maybe get a some technician or whatever to inspect your house and see if there's anything wrong with your house that's bothering your son.
Oh, another possibility no one has mentioned yet is seizures. Some seizures can cause hallucinations.
I'm not diagnosed but I have very sensitive hearing and can hear and smell some things others frequently can't. For example, I have an outlet in my bathroom that makes a humming noise that gives me panic attacks. Luckily for me shutting the light off cuts the power off to the outlet so now we just don't use the bathroom light. I find it somewhat distressing or annoying when I sometimes hear the hum from things like a tv or a plug used to recharge something. If I smell the faintest whiff of gas it bothers me.
One thing I thought of that hasn't been mentioned yet is could he have floaters? I sometimes do briefly when I wake up or at random times and I imagine that could be very distressing if you didn't know what they were.
I'm not diagnosed but I have very sensitive hearing and can hear and smell some things others frequently can't. For example, I have an outlet in my bathroom that makes a humming noise that gives me panic attacks. Luckily for me shutting the light off cuts the power off to the outlet so now we just don't use the bathroom light. I find it somewhat distressing or annoying when I sometimes hear the hum from things like a tv or a plug used to recharge something. If I smell the faintest whiff of gas it bothers me.
One thing I thought of that hasn't been mentioned yet is could he have floaters? I sometimes do briefly when I wake up or at random times and I imagine that could be very distressing if you didn't know what they were.
What are floaters? Oh and our old TV did use to make a high pitch noise that for some reason only myself and my girlfriend could hear. My parents wouldnt be able to hear it and they would look at me like I was crazy.
Oh, another possibility no one has mentioned yet is seizures. Some seizures can cause hallucinations.
He never once had a seizure.
1. I know I had an INTENSE imagination as a child, and so my childhood fears were well-amplified in the dark. Not being able to see what was there, my mind would "fill in the blanks" and see things that weren't there. I suppose all kids deal with this, but I slept with a night light for a very long time.
2. I'm going to be honest and say there are more things in reality than we understand. Children are more inclined to see these things because adults are trained to "tune out" a lot of things we'd otherwise perceive naturally. To this day, sometimes I see things nobody else seems to see. I've heard things others don't hear. It's not a bad thing, but is it a mental/psychological disorder or is your kid perceiving things most people chose not to see or have trained themselves not to see? I don't know, and I'd be cautious about discussing this with a "professional" lest they prematurely label it as a disorder when it might be something legitimate.
So do you agree with me bring some one in to do evps and what not? I'm about to call a child phycatrisT but on the other hand like you said I dont want to qucikly label him as there is something wrong with his head, who knows if he is really seeing things that others just cant see?
http://en.wikipedia.org/wiki/Floater
Now that I read that they are a bit young for that. Maybe it's from anxiety?
If it's any help, I bought an apartment a few years back and couldn't leave the smallest bedroom at night (at age 45) because there was a terrifying atmosphere throughout the whole place at night. It was really sinister. Since then I have rented it out and everyone else has loved the place. There is no reason why your son shouldn't be seeing or sensing something, even if it's not a ghost. Who knows what these things are? I am terrified of the dark, too, and if the lights were to suddenly go out (it doesn't bear thinking about) I would panic. As a child I was frightened of bedtime. My parents have told me since that I always used to pick up on eerie atmospheres in places when I was very young. Who knows what these things are that some of us pick up on?
Not all seizures are obvious. Some kids with epilepsy never have the 'collapse on the ground and twitch' kind of seizures - there are seizures which cause hallucinations, localized movements (eg arm jerking), sudden inexplicable emotions, etc.
More about seizures here:
http://www.epilepsy.com/epilepsy/Types_seizures
Are you sure he's "seeing things"?--as in, having a sensory experience without any sensory stimulus? He could be seeing the same things you're seeing and interpreting them differently...
I say this because there are some sensory experiences--sound, touch, light, visual texture--that can really affect me very strongly, while other people don't even notice them. Some sorts of sounds--sharp, strained sounds--or vaguely sticky textures--or some kinds of flashing lights--or a certain sort of bumpy look--can make me feel anywhere from creeped out, uncomfortable, spooked, disgusted, or generally uncomfortable. I don't know why; I know it's irrational; it's just that somehow my brain doesn't like these things. He may be interpreting certain textures--shadows, the sharp corner at the edge of a wall--as extremely unpleasant.
Imagining having those experiences as a two-year-old, I can quite well imagine that I'd have tantrumed. I did, in fact; my mom described me as crying "for no reason" at that age.
I do think you should talk to your doctor about it. There are lots of reasons why he might be doing those things, and some of them are things he would need medication for. Seizures are common on the spectrum; synesthesia, too. I don't know if you've heard of it--that's basically what happens when your senses get crossed, so that colors might have tastes or sounds might have colors or numbers might have shapes... It can be anywhere from pleasant to irritating, and is also common on the spectrum.
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