Has diagnosis worked out badly for you

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munch15a
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17 Mar 2012, 2:34 am

Hey everyone I have ever met lives improved dramatically including my own where they got the diagnosis and yet I see topic all the time should I get a diagnosis is this just them being uninformed (sorry have to be careful how I put that) or are there people out there whose lives have gotten worse from he diagnosis

My logic is I already knew I was different I knew what my problems where many I could not put into words once my diagnosis came I knew I was not just broken Learned some famous successful people who had it boasting my self-esteem and could point people to websites where they could find out my problems instead of the awful task of telling them how much I suck (I don’t but that’s what I feel like talking about my symptoms) it made those around me like teachers more understanding and it freed up funds for disability support

Are there those out there for worse or are most of us like me ?



Verdandi
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17 Mar 2012, 2:41 am

My diagnosis basically changed nothing.

Actually, that's not true: My family is far more likely to treat me like I don't know what I'm talking about.



invisibubble
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17 Mar 2012, 3:13 am

I just posted a question today with a topic about whether its worth getting diagnosed. The reason I've asked the question is because I have limited funds and lots of health conditions to contend with right now. Getting diagnosed WILL cost me a lot of money but MAY help me get welfare... so on that front its ambiguous as to whether it would help. I have always had problems of social retardation, stress, anxiety, not coping, unable to deal with emotions when I'm frustrated, highly critical and negative self talk etc, etc - I've long wanted help for it but didn't know how I'd explain all these symptoms that just seemed to spell "mildly crazy" in my mind until I learned about aspergers. At this point in time my bad health has robbed me of my job, my savings and my self esteem. The only way I think getting diagnosed could be a bad thing is if it costs me everything my partner and I have left to get a diagnosis, then I can't follow up with treatment, and neither my financial or mental situation improves.



BruceCM
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17 Mar 2012, 3:23 am

So far, at least, getting diagnosed certainly hasn't helped me at all. Thus, unless anybody really needs to get a diagnosis, I'd advise them not to bother. Unfortunately, if they need 'accommodations' at work or other help, they usually need to get a diagnosis first, though.


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BTDT
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17 Mar 2012, 7:18 am

If you actually do have Aspergers, it may help in that your family or spouse may make the proper accomodations--or at least not blame you for stuff out of your control. Or, even better, not blame themselves for stuff out of their control. For instance, cooling off by yourself after a full day of work or school is not a reflection on the spouse or parents, it is just the way most of us handle unreasonable stress. Sort of like the average person being forced to do difficult math, or deal with unreasonable bosses or customers all day long.

A diagnoses may be very useful if you actually have something else that can be treated. I'm lucky in that I've been able to make remarkable adaptations, so I can put in a full day of work and only need time for cooling off in the evenings after doing the chores needed to keep the house running.



aspi-rant
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17 Mar 2012, 7:24 am

all hell broke loose after my Dx… like sharks smelling blood going into a frenzy :?



BruceCM
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17 Mar 2012, 7:27 am

Instead of 'blaming you', they 'blame the AS'! Doesn't really make much difference, tbh, imo. :lol:


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Hanibal94
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17 Mar 2012, 9:40 am

I got mine when I was starting middle school, and it was great to know why I was so different.
My parents were then able to get help for me since I had a real hard time in middle school.
(Note to all teens: Middle and high school are NOT the best years of your life!)

As for getting a diagnosis, I would say it depends on your situation. If your family is understanding and supportive like mine, it's good.
But if they're not, I suppose it can be pretty tricky.



munch15a
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17 Mar 2012, 10:16 am

See primary school was hell for me while most of high school was ok it happens that most of high school was after diagnosis I understand how things could stay the same and I understand that the cost in getting diagnosed could be harmful but the having a label I don’t get how this could harm you In of its self



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17 Mar 2012, 5:42 pm

It helped with people around here not thinking I'm an odd loner who lives with his mother (who would probably be the first person the police look at if something ever happened around here that's unsolved). I'm just that gentle and quiet man with autism now (which is what I am).



MusicMama
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17 Mar 2012, 6:09 pm

Well, my reasons for not pursuing a dx currently have more to do with the fact that there isn't anyone local who has experience with diagnosing adult women than with how anyone else's dx turned out. If I see someone who usually diagnoses children or men then I won't believe them if they tell me I don't have it so I'd be better off waiting.

It also costs a lot of money and we don't have insurance coverage.

My husband is supportive, as is my boss (she's the one who suggested that I might have AS in the first place), and I'm not ready to tell my family yet anyhow so the support that I'd get from an official dx is a moot point for me right now.



glider18
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17 Mar 2012, 6:28 pm

I was happy in getting diagnosed with Asperger's because it told me the reason why I was the way I am. For a long time I had wondered about myself---and the diagnosis taught me a lot about myself. I was then able to be more relaxed about myself because I now knew why I was this way. I have told a lot of people about my diagnosis and have not felt anything negative from it.


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PhonixEep
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18 Mar 2012, 6:39 am

Does being diagnosed do anything besides giving you a label? Are there programs to help people with asperger's or medications or anything? Many people have suggested that I have it, but I haven't gotten a diagnosis because my awkwardness hasn't caused many problems and it isn't really important for me to know for sure. I'm just wondering if there are things a diagnosis can help with that I'm not aware of.