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Research Project: Emotion Regulation in ASD

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Damiano
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01 May 2012, 4:46 pm

Hi everyone. Firstly I hope this is the right section, I couldn't find a section that was specific to the topic :/

I'm an adult with Asperger syndrome and I am studying my PhD at the University of Queensland, looking at emotion regulation in adolescents and young adults with autism spectrum disorders. I'm currently running a survey for this project and I'm looking for participants to fill it out.

Participants could win a prize worth up to $350! If you'd like to participate and help me out please go to the following link! :) Please note you have to be between the ages of 16 and 30 to take the survey and it will take about 30 to 40 minutes to finish.

The survey includes questions on depression, anxiety, emotion regulation issues, substance use, and asks what coping strategies you use. You don't have to have emotion regulation issues to take the survey of course.

It would also help me a great deal if you could forward it or pass it along to friends/family/etc. who you know are on the autism spectrum :) Non-ASD can take it too! Thanks!!

Survey link:
https://experiment.psy.uq.edu.au/asd/


[Mod. edit: this survey has been OK'd by Alex and it's since been bumped a couple of times to gain more participants - as of today (4th Sep 2012) only 35 more are required, so please have a look at the survey]



ocdgirl123
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01 May 2012, 8:30 pm

I want my response to be anonymous so I didn't put my name in for the prize, will you still receive the response?


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Damiano
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01 May 2012, 8:55 pm

Hi ocdgirl123,

Yes I will still receive your response, thank you for participating it helps me a lot!

The survey itself and the system where you enter your email address are on two different systems to further ensure that responses are anonymous.



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02 May 2012, 1:22 am

Don't think this is the right forum, but I'm sure one of the mods will move it for you soon enough. Happy to help with your study.


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Damiano
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02 May 2012, 1:56 am

Yeah I wasn't sure.. I looked around to see where researchers in the past had posted their research on the forum and they seem to post it on topics that the research is relevant to. As you said I'm sure it'll be moved if it needs to. Thanks for helping me out!



CrazyCatLord
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02 May 2012, 9:18 am

Damiano wrote:
Non-ASD can take it too!


I'm self-diagnosed, but I'm 99% certain that I'm autistic. The only problem is that I'm 40 years old, and I can't enter an age higher than 30 in your survey. Would it falsify your data if I pick 30 years and participate anyway?



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02 May 2012, 9:52 am

He did say it was specifically a study on adolescents and young adults, so pretending to be that probably isnt most useful if ur not in that target demographic.


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CrazyCatLord
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02 May 2012, 2:51 pm

MudandStars wrote:
He did say it was specifically a study on adolescents and young adults, so pretending to be that probably isnt most useful if ur not in that target demographic.


Good point :) Sometimes I simply forget that I'm Old with a capital O, because I don't feel any different than I did when I was 18. Back then, I used to think that people would somehow wise up and become more mature at some point, but I'm still waiting for that to happen. The only thing life experience does is make you cautious (if not to say paranoid), jaded and cynical. I guess I will still feel like a teenager when I'm 70, which is a scary thought 8O Anyway, I'll leave this survey to the young whippersnappers :P



Damiano
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02 May 2012, 8:09 pm

Hi CrazyCatLord,

Yes unfortunately it is restricted to that age bracket. I think there may be differences between this age bracket and ages above 40 so it may invalidate my data. I do however appreciate your willingness to participate! When you're doing a study it can be hard to get willing participants, so it's good to hear that people are at least willing to help :P



SanityTheorist
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03 May 2012, 11:58 am

Is this going to be part of a big study, or is it a form of collecting data in general?


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Damiano
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04 May 2012, 9:00 am

Hi SanityTheorist, it's part of my Phd project, so it is one study in one big project looking at emotion regulation in ASD. I am hoping to get this study published in an academic journal though.



sensoryresearcher
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09 May 2012, 3:59 pm

Took it - I know from experience that finding NT to take these studies is surprisingly difficult! Good luck, you're researching a very interesting subject...



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21 May 2012, 12:17 am

[Permission was received from Alex]


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Rascal77s
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21 May 2012, 12:58 am

Damiano wrote:
Hi CrazyCatLord,

Yes unfortunately it is restricted to that age bracket. I think there may be differences between this age bracket and ages above 40 so it may invalidate my data. I do however appreciate your willingness to participate! When you're doing a study it can be hard to get willing participants, so it's good to hear that people are at least willing to help :P


Unfortunately I am too old also or I would do it. Damiano I read a study somewhere that indicated that the amygdala enlarges in men as they age and this is responsible for 'grumpy old men'. Do you know of any studies that have looked at this in AS men?



Damiano
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21 May 2012, 1:49 am

Hi Rascal77s,

Yes as part of the literature review chapters of my PhD I had to review some neurology of ASD, including the Amygdala as it is extremely important for emotional processing. As for the Amygdala in ASD, research is a bit mixed. Studies looking at children with ASD typically show enlarged amydalas, while studies looking at adults typically show smaller amygdalas compared to neuro-typicals. There is a meta-analysis conducted by Stanfield and colleagues that look at the size of the amygdala across 46 studies and while they found no significant differences in amygdala size between controls and ASD overall, they found a significant effect of age in ASD, where it tends to shrink relative to controls as they age.

Reference below:
Stanfield, A. C., McIntosh, A. M., Spencer, M. D., Philip, R., Gaur, S., & Lawrie, S.
(2008). Towards a neuroanatomy of Autism: A systematic review and meta-analysis of structural magnetic resonance imaging studies. European Psychiatry, 23, 289-299.



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21 May 2012, 2:04 am

Damiano wrote:
Hi Rascal77s,

Yes as part of the literature review chapters of my PhD I had to review some neurology of ASD, including the Amygdala as it is extremely important for emotional processing. As for the Amygdala in ASD, research is a bit mixed. Studies looking at children with ASD typically show enlarged amydalas, while studies looking at adults typically show smaller amygdalas compared to neuro-typicals. There is a meta-analysis conducted by Stanfield and colleagues that look at the size of the amygdala across 46 studies and while they found no significant differences in amygdala size between controls and ASD overall, they found a significant effect of age in ASD, where it tends to shrink relative to controls as they age.

Reference below:
Stanfield, A. C., McIntosh, A. M., Spencer, M. D., Philip, R., Gaur, S., & Lawrie, S.
(2008). Towards a neuroanatomy of Autism: A systematic review and meta-analysis of structural magnetic resonance imaging studies. European Psychiatry, 23, 289-299.


Thanks a bunch Damiano.