NO support for older people in the UK with AS?

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nessa238
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10 Jan 2013, 11:08 am

MissMoneypenny wrote:
There is NO support. I'm 43.

I don't need counselling as I have no co-morbid mental health issues. Just the AS.

I don't need a social worker as I live independently with my long-term partner and have a job.

I don't want to join some "social" group to talk and play silly sports and games. How would this help me?

The help I actually need is with getting into an appropriate career, including proper financial support while I retrained if necessary (and I mean SUPPORT not some high-ticket student loan).


Well evidently there is support in some areas as evidenced above
and I started my own support group in my town

You sound as if you've done quite well in life and are asking for help a lot of NTs might want - not AS-specific help

Peoples' needs vary a lot - we can't all be high fliers and some people can get a lot out of 'silly sports and games'

What is an 'appropriate career'?



lonelyguy
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10 Jan 2013, 1:11 pm

I think Nessa you are right..sometimes for some people the groups for mental health issues might just help some people..but for me group sessions are a big problem..i just cant seem to go in and mix with people....but that is part of my problem..that's why i thought a group with adults that share the same interaction problems might have been better.
I agree for some people just getting out for an hour or so helps.
I am only hoping to get some kind of help to overcome my major issues right now..then maybe i can join the human race again and maybe just maybe find a job and move on in life ..i just want a life like other people no more no less!



Wandering_Stranger
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10 Jan 2013, 5:10 pm

MissMoneypenny wrote:
The help I actually need is with getting into an appropriate career, including proper financial support while I retrained if necessary (and I mean SUPPORT not some high-ticket student loan).


This is one problem I have. RNIB can't help because it's a mixture of disabilities which they can't deal with. They have a visual impairment and learning disability thing; but looking at it, it seems to be aimed more at people who work with people who are lower functioning. (not just ASD, things like Downs Syndrome too)

I tried NAS and they won't help either. :x



JellyCat
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11 Jan 2013, 1:00 am

The 'help' I've been given as a child has had (mostly) negative effects. They often force it on you.
In some ways it's good that you don't get help. No opportunity for them to mess you up (more).

I'm not saying that's it's definitely better if you have no help, I'm just trying to look on the bright side :).



lonelyguy
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12 Jan 2013, 4:54 am

I think with AS because it is a spectrum disorder we all have different issues..some people have minor issues and can work and keep a job and others have more complicated problems that they can't seem to solve on their own..like me..so support could be just a chat or it could mean getting some help to overcome serious problems that a lot of people with AS suffer from.

I hate the idea of people having to help me to cope with issues in my life..as i would rather be able to just get on and have a normal life like everyone else..but i find it almost impossible to cope sometimes..i feel isolated and lonely with no way of working and keeping a job as the social side is very difficult for me to cope with.
I also live alone in one tiny studio that is my sitting room and bedroom...with people living next door that i can hear talking all the time..and i have a big problem being sensitive to noise of most kinds..no not an easy life when you are trapped inside all day with no peace.

i do think we all need some kind of help with AS..as i said i want to be independent and have a normal life with friends and a job i can keep but getting to that point seems almost impossible without some kind of support of which there is none of in my area.